Jemma Woodley @JemmaWoodley2
Information & Policy @agooddeath MSc from @KCL_Law (she/her). onlinelibrary.wiley.com/doi/10.1111/14… Joined January 2022-
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A new blog on our recent report on #DNACPR decisions. Communication is everything when it comes to DNACPR... and yet it's important to acknowledge: Conversation ≠ Understanding. compassionindying.org.uk/blog-post/dnac…
Back to basics: Members of the public are entitled to observe public Court of Protection hearings without explaining who they are (beyond "a member of the public") or why they want to observe the hearing. Public means public.
> When does the CoP get involved in cases where a person stops eating and drinking? > Is there a right to stop eating/drinking? > What type of considerations apply in these cases? I answer these questions here (thanks to @Capacitylaw for sense check) openjusticecourtofprotection.org/2024/03/26/whe…
A huge thank you to @BIHRhumanrights and @AGoodDeath for their research into this important topic and in supporting our calls for DNACPR processes to be improved.
A huge thank you to @BIHRhumanrights and @AGoodDeath for their research into this important topic and in supporting our calls for DNACPR processes to be improved.
This is a triumph for patient power and meaningfully listening to the voices of people and their families. Thanks to @meropemills and family for campaigning so tirelessly for change. It's crucial this policy is now embedded well into healthcare culture. theguardian.com/society/2024/f…
Delighted to see how popular this event is proving to be. Join us on Monday 9 October at 12pm to hear from an expert panel @UshaGrieve @AGoodDeath Taskin Saleem and Naheed Anwar @subcotrust @olly_clabburn @JamillaHussain1 goodgrieffest.com/events/talking…
Delighted to see how popular this event is proving to be. Join us on Monday 9 October at 12pm to hear from an expert panel @UshaGrieve @AGoodDeath Taskin Saleem and Naheed Anwar @subcotrust @olly_clabburn @JamillaHussain1 goodgrieffest.com/events/talking…
Today we’re sharing what we learnt working alongside @subcotrust + @GGC_Bristol. We make recommendations we believe are fundamental to good care. Without them personalised care will be hard to attain for many people in diverse South Asian communities. compassionindying.org.uk/resource/advan…
As Marion says, we're all going to die. We don't know when or how. A lovely guest post where she explains how she's got 'wonderful peace of mind' by making an advance decision (living will). compassionindying.org.uk/blog-post/we-a…
Where do you draw the line between protecting P’s faith and the family’s belief that he would want to continue treatment at all other costs, against the decision not to protract death and to manage this in a dignified way? openjusticecourtofprotection.org/2023/09/01/pro… via @OpenJusticeCoP
‘The feeling of being in control is often taken away from you with a diagnosis. If you grasp it by the scruff of the neck and believe in yourself, the future can be more positive.’ @WendyPMitchell on what she's learned since her diagnosis of young-onset dementia.
Happy Birthday @OpenJusticeCoP The best initiative EVER! I have learned so much and feel privileged to have written your first blog :) Wishing you many more years of enormous success 💐🍾🥰
Three years ago today we launched what we thought was a small niche Project to promote court transparency. How it has grown! Today welcoming new Project members: @TorButlerCole @CounselTweets @AnnaJonesBrown & @DanielClark132 openjusticecourtofprotection.org/2023/06/15/hap…
"When you see an oncologist, he really knows the score, seen hundreds of cases before, and you are on your own, so having some ideas of what to ask him is very powerful."
"When you see an oncologist, he really knows the score, seen hundreds of cases before, and you are on your own, so having some ideas of what to ask him is very powerful."
@OpenJusticeCoP This is incredibly valuable - thank you "Anna." We often tell the people who call @AGoodDeath for help with implementing Advance Decisions and LPAs that the Court of Protection is a supportive process. You've helped us all to better understand this. Thank you!
📢 Today we launch our new brand and website. We look different, our name is the same. But the important thing is what we say and what we do - focusing on amplifying the voices of the people we support. @UshaGrieve blog explains more 👇 🧵 compassionindying.org.uk/blog-post/for-…
A really insightful presentation today and great to see @AGoodDeath’s free Advance Decision to Refuse Treatment online resource being signposted to. mydecisions.org.uk
A really insightful presentation today and great to see @AGoodDeath’s free Advance Decision to Refuse Treatment online resource being signposted to. mydecisions.org.uk
We make freedom of information (FOI) requests because we need up-to-date guidance for our callers. We recently ran an FOI of ambulance trusts as people tell us how worried they are that their wishes will be respected and followed in an emergency. medium.com/death-dying-an…
For #NationalGriefAwarenessWeek Heather told us about her experience of grief after her mum died. Betty knew what was right for her at the end of life and recorded this. She talked, planned + ultimately this helped her family through their bereavement. medium.com/death-dying-an…
She's in her 20s and refusing clinically assisted nutrition and hydration (and has chewed through several NG tubes). Deemed not to have capacity to decide for herself, the judge authorises a PEG. REport by @de_upeka and @JemmaWoodley2 openjusticecourtofprotection.org/2022/12/06/it-…
Plenty of recent news stories about how long it's taking to register a Lasting Power of Attorney (20 weeks). We know it's crucial to have things in place *before* a crisis hits → @JemmaWoodley2 outlines other ways to record your wishes in the meantime. medium.com/death-dying-an…
Advance Care Plan Day.. @ACPDay2024
167 Followers 349 Following Advance Care Plan Day #ACPDay2024 is the UK's national awareness & action day highlighting the importance of advance care planning. 🗓️ 8th May 2024
Karen Chumbley @kchums
571 Followers 686 Following Chief Clinical Officer at St Helena. Associate Professional Director for Frailty and End of Life Care for Suffolk and North East Essex ICB All opinions my own.
Lisa Quattromini 🇪.. @LisaQuattromini
782 Followers 776 Following “Practical but not funny” R.B.Morgan 2018 📚🇪🇺🐕💛💚⚽️🏏🎾🐝🐈⬛📚AlwaysEuropean Verdazurine As you sow, so shall you reap 🌱 @lisaq.bsky.social
Dr Gill Loomes-Quinn @GillLoomesQuinn
7K Followers 6K Following Socio-Legal Scholar • Mental Capacity + 'Voice' • Autism • Co-Director: @OpenJusticeCoP • User of Wheels and Social Care • #AutisticsInAcademia • Éist le mná
David Smith @david3012
18K Followers 8K Following Trustee @HospiceUK & @StLeonardsYork. ANED @HumberNHSFT. #MentalHealth #PEOLC. Geeky caravanner. #IkHouVanHolland🇳🇱 🏳️🌈
Rhiannon @Rhiannon_Snaith
54 Followers 60 Following ESRC/PhD student researching media representations of end of life decisions at @cardiffuni
Sher Khan Foundation @SKF_Charity
22 Followers 106 Following We’re a UK registered charity with a 100% donation policy. We believe in a world where everyone has shelter, health, and access to an education.
Emma @TraineePsychEA
264 Followers 1K Following Currently researching assisted dying in the UK. Thank you to everyone who participated, liked & retweeted 🙏🏻
Rhonda B. Peterson @GregorySonnie
573 Followers 2K Following There's nothing much to write about myself, I'm just here to make new friends. I am responsible for what I say not how you feel about what I say.
Judy Doman 🌿🌸�.. @holidayletlady
944 Followers 4K Following Our holiday let in Shipston on Stour comes fully equipped & complete with its own access statement. Here for everyone, all ages, affordable & carer friendly!!
Tommee Tippee @MrTomSpicer
6K Followers 245 Following Workaholic with the ability to give guys their hair back & tweet random shite 24/7 😊 Sharing my stories at the hope it helps! Never taking life too serious! 🤭
James Johnson @JamestheTJ
190 Followers 338 Following
Arthur Webber 🏳️.. @BernieTranders
43K Followers 4K Following mediocre footballer ⚽️ | Children’s author 📚 | @dpdormouse 👨❤️💋👨 | he/him
Good Grief Connects @GGC_Bristol
231 Followers 271 Following Research and engagement project aiming to support public conversations around death & grief, building on @GoodGriefFest. See https://t.co/pkwTrI14ic
mentalcapacitycat @thecapacitycat
4K Followers 4K Following “Paws for thought” on all things Mental Capacity. Contact [email protected] or DM us re: your training needs on MCA/DOLS/LPS and more!
Friends at the End @FriendsAtTheEnd
1K Followers 1K Following Scottish charity (w/UK membership) working to increase choice at the end of life, including legalised Assisted Dying Sponsor CPG End of Life Choices @ScotParl
Jo Murphy @JoMurph42325589
0 Followers 3 Following
Jen Noel @jmc_noel
114 Followers 162 Following Information Manager @AGoodDeath | Trying to help improve what dying is like in the UK | staffies for life | Minnesotan-in-law
Dying With Dignity Vi.. @DWDVic
767 Followers 1K Following We aim to provide ongoing information, education & guidance to the Victorian community & the health sector regarding medical & legal aspects of the new VAD law.
claire martin @DocCMartin
814 Followers 4K Following NHS psychologist with older people. @Assoc_CAT therapist. @OpenJusticeCoP core member. Knits. Views can never truly be your ‘own’, can they? Rtw =\= endorsement
The Good Grief Trust @goodgrieftrust
34K Followers 27K Following The UK’s leading network of bereavement services under one umbrella Help & Hope from day one. Secretariat APPG on Bereavement Support.
Sophie Grassano @SophieGrassano
678 Followers 270 Following Sophie Grassano, Pour conserver nos libertés et développer les droits de et la dignité de toute personne.
Olly Clabburn @olly_clabburn
789 Followers 1K Following Qualitative social researcher (...amongst many other things!) Interested in VCSEs, wellbeing, health & social care.
Dorset Mental Capacit.. @McaDorset
855 Followers 504 Following Dorset Mental Capacity Act Team in @dorsetcounciluk promotes respectful, personal and lawful MCA practice. (Please note this account is not monitored 24/7)
Dr Anushka Aubeelack�.. @bumblebeenush
4K Followers 4K Following Wife + Mum | NHS Specialist Anaesthetist + SAS Tutor + Associate Medical Director | Vice chair @agooddeath | Committee member @Anaes_SAS | Opinions are my own
Nicky Ryder @NickyMCltd
140 Followers 433 Following As a Codirector for Mental-Capacity Ltd, OT and Advocate, I seek to empower the individual's rights, voice and support in overcoming barriers.
Jenny Kitzinger @JennyKitzinger
6K Followers 6K Following Journalism, Mental Capacity, 'Coma', Ethics, Law, End-of-Life decisions. Professor @CardiffJomec, co-director @cdocUK, Cardiff University.
Coma Research @CDOCuk
2K Followers 3K Following Care for Prolonged Disorders of Consciousness patients (Vegetative/MCS). Staff training: https://t.co/tEYFpOTZ6P Resource for Families: https://t.co/0OZ0ZZVbja
Sirpa Tarvainen @Sirp.. @SirpaTarvainen
1K Followers 2K Following PhD candidate, former chair of the Finnish Association of SLTs, entrepreneur. Reseach on oral language comprehension interventions in children w #DevLangDis. 🌍
Nikita Ghodke (she/th.. @Nikitaghodke04
4K Followers 4K Following Incoming MS SLP Student @NYU_CSD | RA @britobabylab | Co-found @deversityinacad + @projectuspas | Infant-Toddler Cog🧠 + LMICs | YA @lancetyouth | ♿ in Academia
Molly Rose Pike @mollyrosepike
569 Followers 619 Following Media and campaigns @dignityindying @agooddeath. Theme park stan.
Bethany Kirkaldie @BethanyKirkald1
15 Followers 52 Following
Kirsty-Louise Stuart @MrsArcticride
3K Followers 2K Following Public Law & Human Rights Snr Associate @irwinmitchell mummy to ND Islay & Hugo,Legal aid lawyer of the year 2021 #disabilityrights,also tweets as @LACRnetwork
Kill Phil: The Podcas.. @KillPhilPodcast
250 Followers 820 Following Kill Phil: The Podcast. Following @philnewby5's journey with MND as he unpacks the debate on assisted dying with prominent experts and campaigners.
MCAteamBradford @MCAteamBradford
4K Followers 3K Following Tweets about social work, MCA, Human Rights, COP, DoLS & LPS from the Mental Capacity Act Team in Bradford
drcammclaren @drcammclaren
401 Followers 379 Following Husband, father, Medical Oncologist, Palliative Care provider (NOT specialist), VAD assessor. Believe in patient-centred care from Dx to death. Views my own.
Dignity in Dying @dignityindying
57K Followers 9K Following We believe in choice at the end of life. Including the option of #AssistedDying for terminally ill, mentally competent adults. #YesToDignity
Allegra Enefer @AllegraEnefer
232 Followers 591 Following Future Pupil @serjeantsinn | formerly @weareadvocate | @LSELaw grad | views my own (she/her)
Francesca Hall @fran_hall1
1K Followers 2K Following Campaigner @dignityindying. Cyclist. https://t.co/Ck7l3sMANz for dog & bike pics. All views my own (she/her)
sadie @sadie978
105 Followers 232 Following
Lucy Selman @Lucy_Selman
6K Followers 5K Following Associate Prof. Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
Zoë @OT_Consultants
4K Followers 3K Following Director, NHS & Independent BIA (DoLS), OT & Care Expert Witness, Assistive Technologist. Interests: Learning Disability, Dementia, Neuro #Capacity4What?
Ally Thomson @allythomson01
891 Followers 2K Following Director of Comms for Dignity in Dying and Director of Dignity in Dying Scotland.
Frances McFadden @Franchemuss
128 Followers 278 Following Proud campaigner for assisted dying. Senior Strategy & Scotland Campaigns Officer for Dignity in Dying. 🏳️🌈 she/her
David Pearce @medavep
2K Followers 4K Following Fundraising & Marketing for @agooddeath & @dignityindying | 'Slick and well-funded' | Dog lover
Liz King @busybeejaneT
168 Followers 827 Following NHS through & through. Bannau Brycheiniog. F**k Brexit.
Jane Townson OBE @drjanetownson
9K Followers 8K Following CEO of the Homecare Association, Shaping homecare together so we can all live well at home and flourish in our communities. Tweets about care, health, life.
MSC @ukmedschools
5K Followers 651 Following The Medical Schools Council is the representative body for UK medical schools.
James Sanderson @JamesCSanderson
11K Followers 1K Following Director Community Health & Personalised Care @NHSEngland @NHSEnglandCHS @Pers_Care. Trustee @ReadingAgency Chair @GSP_Alliance My Views
Hannah Al-Othman @HannahAlOthman
54K Followers 9K Following Journalist @thetimes. Northern Powerhouse, running bore 🏃🏽♀️, MUFC 👹. Send news: [email protected]. DM for WhatsApp/Signal
Sarah West @SarahWestComms
328 Followers 102 Following Hospice UK Director of Campaigns & Communications
Charlotte Augst @CharlotteAugst
8K Followers 4K Following Voluntary and community sector leadership: Community is where health is created or undermined- it has to be part of the solution
Advance Care Plan Day.. @ACPDay2024
167 Followers 349 Following Advance Care Plan Day #ACPDay2024 is the UK's national awareness & action day highlighting the importance of advance care planning. 🗓️ 8th May 2024
ALASTAIR CAMPBELL @campbellclaret
1.1M Followers 9K Following Writer, communicator, consultant, strategist, mental health campaigner. Does podcast The Rest is Politics with ex Tory minister Rory Stewart.
The Rest Is Politics @RestIsPolitics
192K Followers 164 Following An insider’s view on politics at home and abroad, while bringing back the lost art of disagreeing agreeably with @RoryStewartUK & @CampbellClaret 👇
The Lancet @TheLancet
747K Followers 471 Following Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
UCL Marie Curie @MCPCRD
4K Followers 1K Following Marie Curie Palliative Care Research Department, UCL. Working to improve care for people with advanced, progressive illness towards the end of their lives.
Dr Sabine Best @sabinebest
2K Followers 795 Following Associate Director, Research Management & Impact, Marie Curie. Interested in end of life, PPI, #openaccess etc. Trustee Daphne Jackson Trust. All views my own.
Department of Health @healthdpt
50K Followers 929 Following News and information from the Health and Social Care Sector. Account maintained by the Department of Health in Northern Ireland.
Public Health Agency @publichealthni
35K Followers 757 Following We are the regional organisation in Northern Ireland for health improvement and health protection. Account not monitored 24/7. https://t.co/EE1G2jsvl1
Karen Chumbley @kchums
571 Followers 686 Following Chief Clinical Officer at St Helena. Associate Professional Director for Frailty and End of Life Care for Suffolk and North East Essex ICB All opinions my own.
Suffolk & North East .. @SNEE_ICS
1K Followers 296 Following Suffolk and North East Essex ICS brings together a full spectrum of partners to improve the health and wellbeing of the one million people who live in our area
PACAC Committee @CommonsPACAC
13K Followers 527 Following The Public Administration and Constitutional Affairs Select Committee (PACAC) is a cross-party committee appointed to scrutinise Government. RTs ≠ endorsements.
The British Institute.. @BIHRhumanrights
21K Followers 10K Following BIHR is a UK-wide charity working with people, communities and public bodies to make positive change through human rights. All about using the HRA practically!
Geri Scott @Geri_E_L_Scott
12K Followers 4K Following Senior political correspondent @thetimes | Ex @PA @yorkshirepost @EDP24 | Trustee @SPAJournalism | 50/50 blood to caffeine ratio
Angela Rayner 🌹 @AngelaRayner
702K Followers 5K Following MP for Ashton-under-Lyne | Deputy Leader @UKLabour | Shadow Deputy PM | Shadow Levelling Up, Housing and Communities Secretary | New Deal for Working People
BMJ @bmj_company
62K Followers 6K Following https://t.co/Xpvd56ITee BMJ shares knowledge and expertise to help health professionals improve patient outcomes worldwide.
Beth Rigby @BethRigby
493K Followers 2K Following Political Editor, Presenter and Podcaster, Sky News. RTS Political Journalist of the Year.🎙️Electoral Dysfunction podcast out every Friday 🎙️
Dr Chloe Beale 🏳�.. @DrChloeBeale
10K Followers 575 Following Consultant liaison psychiatrist. Mental capacity law bore. Fond of a lengthy jog. May contain cats
Dr Rosena Allin-Khan @DrRosena
209K Followers 8K Following 🌹 Labour MP: #Tooting 👩⚕️A&E Doctor 🏡 Born and raised in Tooting 📧 [email protected] "Rosena" rhymes with "tenner" (she/her)
The National Lottery .. @TNLComFund
79K Followers 4K Following Awarding @TNLUK funding to strengthen society and improve lives across the UK. #ItStartsWithCommunity Available Mon - Fri, 9am - 5pm. 📞 0345 4 10 20 30.
Dr Gill Loomes-Quinn @GillLoomesQuinn
7K Followers 6K Following Socio-Legal Scholar • Mental Capacity + 'Voice' • Autism • Co-Director: @OpenJusticeCoP • User of Wheels and Social Care • #AutisticsInAcademia • Éist le mná
Wes Streeting MP @wesstreeting
198K Followers 10K Following Labour MP for Ilford North. Shadow Health & Social Care Secretary.
David Smith @david3012
18K Followers 8K Following Trustee @HospiceUK & @StLeonardsYork. ANED @HumberNHSFT. #MentalHealth #PEOLC. Geeky caravanner. #IkHouVanHolland🇳🇱 🏳️🌈
Rosamund Urwin @RosamundUrwin
50K Followers 3K Following Media editor, The Sunday Times. Passionate about maternal health. For stories and tips please email me: [email protected]
Libby Sallnow @libby_sallnow
3K Followers 482 Following Associate Professor at Marie Curie Palliative Care Research Department, UCL. Lead author of The Lancet Commission on the Value of Death. All views my own.
Rhiannon @Rhiannon_Snaith
54 Followers 60 Following ESRC/PhD student researching media representations of end of life decisions at @cardiffuni
WaterAid Global @wateraid
30K Followers 1K Following Research and insight from WaterAid – a leading not-for-profit determined to end the global water, sanitation and hygiene crisis, for good.
WaterAid UK 💦 @WaterAidUK
75K Followers 19K Following Global water charity working for a world where everyone has clean water, decent toilets & good hygiene 💧 Use your voice and VOTE WATER ⬇️
Accelerated Access Co.. @AACinnovation
3K Followers 813 Following We bring together industry, government, regulators, patients and the NHS to remove barriers and deliver the best health innovations to patients faster than ever
Sarah Woolnough @swoolnough
4K Followers 2K Following Chief Executive @TheKingsFund. Our vision is that the best possible care is available to all. Trustee @MQmentalhealth. Views my own.
Health Services Safet.. @theHSSIB
9K Followers 1K Following We investigate patient safety concerns across England to improve NHS and independent healthcare at a national level.
Health and Social Car.. @CommonsHealth
31K Followers 214 Following A cross-party committee of MPs scrutinising the work of @DHSCgovuk and related bodies. RTs ≠ endorsement. Posts by our Chair are signed 'SB' or accordingly.
Department of Health .. @DHSCgovuk
677K Followers 1K Following We support ministers in leading the nation’s health and social care to help people live more independent, healthier lives for longer.
Kate Masters @katemasters67
3K Followers 2K Following #DNACPR #CPR #NHS #patientexperience https://t.co/YcLisLRcSG
transparency project @seethrujustice
9K Followers 3K Following We make family justice clearer (England & Wales). RTs for interest not agreement. We are an educational charity - we don’t take on casework / give legal advice.
PinkNews @PinkNews
308K Followers 1K Following World’s most read & watched LGBTQ+ digital media publisher. Snapchat: PinkNews.
Tommee Tippee @MrTomSpicer
6K Followers 245 Following Workaholic with the ability to give guys their hair back & tweet random shite 24/7 😊 Sharing my stories at the hope it helps! Never taking life too serious! 🤭
James Johnson @JamestheTJ
190 Followers 338 Following
Healthwatch England @HealthwatchE
28K Followers 2K Following We make sure NHS leaders and other decision makers hear your voice and use your feedback to improve care.
Arthur Webber 🏳️.. @BernieTranders
43K Followers 4K Following mediocre footballer ⚽️ | Children’s author 📚 | @dpdormouse 👨❤️💋👨 | he/him
matt @mattxiv
412K Followers 154 Following queer jew w very long nails, host of a bit fruity, he/they
Election Maps UK @ElectionMapsUK
172K Followers 186 Following 🗳️ mapping the uk's votes & collating polls since 2017 || if you appreciate my work, tips are very welcome here: https://t.co/MIsC3KNCQ6
Resuscitation Council.. @ResusCouncilUK
30K Followers 2K Following Resuscitation Council UK is working towards a day when everyone in society has the skills they need to save a life. Visit us at https://t.co/f4pSgxJada
Farewill @Farewill
2K Followers 750 Following Farewill is the number one wills, probate and cremation specialist in the UK. Rated 4.9/5 by over 10,000 people on Trustpilot.** Family tragedy and institutional delay in best interests decisions about life-prolonging treatment New blog by @KitzingerCelia + @JennyKitzinger openjusticecourtofprotection.org/2024/04/09/fam… via @OpenJusticeCoP
Ran africa. Was proper hard. Got it done. Strawberry daiquiri secured. Gave my beautiful girlfriend a big kiss. Went absolutely potty to @softplayband at the afters. Back in the UK later
Enjoyed writing this one. I wrote about: 1️⃣ Our new report on #DNACPR decisions 2️⃣ Conscious competence 3️⃣ Having fun with GOV.UK prototyping zachmoss.co.uk/week-29-dnr-de…
🚨Lowest levels of satisfaction with the NHS in the 41 years we've been asking, at 24%. Very high levels of support for founding principles - free at point of need, available to everyone, publicly funded. Key message: people support the NHS, they want it to work better 👇
🧵Today we publish our analysis with @NuffieldTrust on the latest British Social Attitudes survey, which shows public satisfaction with the #NHS has fallen to 24%, the lowest level since the survey began 1983. kingsfund.org.uk/insight-and-an…
Every clinician having advance care planning conversations should read this report. In @SNEE_ICS we have moved to ReSPECT and we continue to advocate and educate for better communication in the last phase of life.
Today our new report shows the work to improve #DNACPR decisions and conversations remains urgent and unfinished since the @CQCProf review in 2021. Together with @PHSOmbudsman and @BIHRhumanrights we're calling for urgent action. A thread🧵 compassionindying.org.uk/resource/what-…
“By the time you’ve watched this I will have died.” Shortly before Paola died alone at Dignitas, she made this incredible short film with @rankinphoto Britain's blanket ban on assisted dying robbed Paola of choice in the UK. Please sign her open letter dignityindying.org.uk/paola
Forewarned is forearmed openjusticecourtofprotection.org/2024/03/15/for… via @OpenJusticeCoP
Even if they’d given me a million words it wouldn’t have been enough. theguardian.com/society/2024/f…
This is Sarah and Gemma, Wendy’s daughters. Our mum died peacefully early this morning. She wrote a blog post before she died so you can read about it from her perspective. Sarah and Gemma whichmeamitoday.wordpress.com/2024/02/22/my-…
.@whartonswords on how @WendyPMitchell changed how we view dementia & how we die. Talking about dying allows us to live well at the end. At the moment we prolong death and prolong suffering. Need national guidelines on voluntarily stopping eating and drinking. #R4Today
On @BBCr4today @whartonswords spoke passionately about her wonderful friend @WendyPMitchell. Wendy valued making her own decisions over both her life and death. These values were reflected in her decision to voluntarily stop eating and drinking (VSED). A 🧵on what VSED is⬇️
Such powerful words from Wendy Mitchell. We're thankful for her tireless campaigning to put choice and control at the forefront of healthcare, as well as her good humour. She was an inspiration and will be greatly missed.
This is Sarah and Gemma, Wendy’s daughters. Our mum died peacefully early this morning. She wrote a blog post before she died so you can read about it from her perspective. Sarah and Gemma whichmeamitoday.wordpress.com/2024/02/22/my-…
Two years ago David Minns launched our @Daily_Express campaign. One year ago he died, in exactly the way he'd feared. This week his son Matt took David's message to No 10. Both Tory & Labour leaders will now make time for assisted dying in the next parliament. This is huge.
This week @sam_lister_ took assisted dying campaigner Matt Ryan to meet Rishi Sunak and ask him to help change the law. I’m so glad Matt was able to do this in memory of his brilliant dad David, who launched our #GiveUsOurLastRights campaign with @dignityindying.
There is no “miracle cure” for dying, but from watching TV you’d think CPR could bring anyone back to life. The reality: very few people make a full recovery following CPR. We owe it to the public to be honest about this so people understand why DNACPR decisions exist.
Today, we are calling for end-of-life conversations to happen earlier and to be a normal and expected part of life. This is to make sure conversations do not happen in a time of stress or crisis and that people can remain in control of their end-of-life decisions.
Going to Sainsbury’s now. Don’t even need anything. Just want to go add an extra body to the chaos
NEW - people failed by a digital system not fit for purpose. @UshaGrieve: the people we support need #eolc records to, 1) share info across settings 2) cross geographical boundaries 3) allow patients to access/edit 4) with a workforce supported to understand and use it
Dying people are being failed by the NHS's approach to sharing information ift.tt/QNJYmA8
When my mum died of an illness I had never heard of, I set myself a goal of becoming an expert in it. As of yesterday, I officially achieved that goal 🥹 #PhDone
On my way to Cardiff for our @GGC_Bristol event with @BywNawr. Extremely dark outside! With thanks to @TNLComFund for funding what I know will be an inspiring day.
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