Haemochromatosis UK @IronOverloadUK
We're the UK's only charity supporting people affected by genetic #haemochromatosis (#IronOverload). For advice contact our helpline (Mon-Fri 12-3pm, UK only). haemochromatosis.org.uk/join-us Great Britain Joined January 2013-
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Good luck to Joanne who is taking part in the Glasgow Kiltwalk for Haemochromatosis UK in memory of Jim McMahon. You can show your support on her JustGiving page: justgiving.com/page/joanne-bo…
MyIron+ the free #IronOverload app with Alice AI companion - get answers to your #haemochromatosis questions 24x7. Download now : Apple - bit.ly/3oWT5x4 Android - bit.ly/43UIl1e #TeamIronOverload #EarlyDiagnosisSavesLives
Become a member (UK or international) and enjoy loads of benefits : haemochromatosis.org.uk/member-benefits Join now : haemochromatosis.org.uk/join-us #MembershipHasBenefits #haemochromatosis #IronOverload
Are you handy in the kitchen? A Bake-Off pro? Get involved in Undiagnosed Children's Day by baking these #PINKathon cupcakes! Full recipe : bit.ly/3TUuPqT
Join Prof Patrick Kiely discussing #haemochromatosis arthropathy at lunchtime today. ▶️ Exhibition Stage 2 at 12.45pm today at #BSR24 Visit us on stand 7 for info & resources. Learn more : haemochromatosis.org.uk/arthropathy #EarlyDiagnosisSavesLives #Rheumatology
It's day 3 of #BSR24 and sadly our last day with @RheumatologyUK in #Liverpool... BUT we still have lots of #arthropathy resources on stand 7, including these #EarlyDiagnosisSavesLives lollies. Grab 'em whilst stocks last!
Today is Undiagnosed Children's Day where we spread the word about what it means to be affected by a syndrome without a name (SWAN)/undiagnosed genetic condition. Learn more : bit.ly/3PVzNCI #PINKathon #EarlyDiagnosisSavesLives
This is great news. The more people who are at risk who can be screened earlier in life, the better.
This is great news. The more people who are at risk who can be screened earlier in life, the better.
Did you know that #haemochromatosis can cause skin problems? Learn more in our guide to skin conditions, free for members in every membership pack. Join now : haemochromatosis.org.uk/join-us #MembershipHasBenefits
Chondrocalcinosis - could it be #haemochromatosis? Visit us on stand 7 at #BSR24 for info & resources. Learn more : haemochromatosis.org.uk/arthropathy #EarlyDiagnosisSavesLives #Rheumatology
Make a difference - contact your elected representative, today! Tell your Westminster MP, MSP, MLA or MS why #haemochromatosis matters to you. Follow our handy campaigning guide online : haemochromatosis.org.uk/campaign-with-…
Subchondral cysts - could it be #haemochromatosis? Visit us on stand 7 at #BSR24 for info & resources. #EarlyDiagnosisSavesLives #Rheumatology
Hooking osteophytes at MCPJs in #Haemochromatosis by @IronOverloadUK
A great first day at #bsr24 talking #rheumatology & #haemochromatosis. Catch us on stand 7 all week for patient/clinician resources, notebooks, stickies & chat!
Amazing news for those of us with haemochromatosis & our families. It was really hard for one of my sisters to get her GP to test her - despite having a 1 in 4 chance. Shouldn't be so tough in future #RustyArmy
Amazing news for those of us with haemochromatosis & our families. It was really hard for one of my sisters to get her GP to test her - despite having a 1 in 4 chance. Shouldn't be so tough in future #RustyArmy
Follow our handy campaigning guide online : haemochromatosis.org.uk/campaign-with-… Tell your Westminster MP, MSP, MLA or MS why #haemochromatosis matters to you. Make a difference - contact your elected representative, today!
Tell-tale signs of #haemochromatosis : hook-like osteophytes. Visit us on stand 7 at #BSR24 for info & resources. #EarlyDiagnosisSavesLives
Frustrated by NHS delays? Our UK-wide genetic testing service at a glance : ✴️ order & return test kit by post ✴️ results within 2 weeks ✴️ free specialist nurse appointment to discuss the results More details : bit.ly/3HxWBE6
We are delighted to share that we have received #NationalLottery funding from @TNLComFund for a major 5-year programme across England, to roll-out family screening for #haemochromatosis! Thank you National Lottery players, helping #MakeAmazingHappen. bit.ly/3Irqeaw
Do you know anyone else with #haemochromatosis? We didn't when first diagnosed.... Join one of our regular Iron Brew socials online - a chance to share your story & make new friends. Book online (free) : haemochromatosis.org.uk/Listing/Catego…
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This is great news. The more people who are at risk who can be screened earlier in life, the better.
We are delighted to share that we have received #NationalLottery funding from @TNLComFund for a major 5-year programme across England, to roll-out family screening for #haemochromatosis! Thank you National Lottery players, helping #MakeAmazingHappen. bit.ly/3Irqeaw
Hooking osteophytes at MCPJs in #Haemochromatosis by @IronOverloadUK
Amazing news for those of us with haemochromatosis & our families. It was really hard for one of my sisters to get her GP to test her - despite having a 1 in 4 chance. Shouldn't be so tough in future #RustyArmy
We are delighted to share that we have received #NationalLottery funding from @TNLComFund for a major 5-year programme across England, to roll-out family screening for #haemochromatosis! Thank you National Lottery players, helping #MakeAmazingHappen. bit.ly/3Irqeaw
@quality_nguyen Northern European male ancestry, I’d be running iron and ferritin every time. Hereditary haemochromatosis is a leading, and preventable, cause of metabolic syndrome and dementia.
@BBCWorld Not one mention in this report of Haemochromatosis which can damage to your liver over time. It is a genetic disease that is easily identified via a blood test and treated by regular venesections. @IronOverloadUK
@IronOverloadUK Thank you for your prompt and informative reply. I know a Long Covider getting tested for this but they display more symptoms that line up with MCAS.
Celtic Curse. I urge anyone with #Irish, #Scottish or #Welsh ancestry, or from #Cornwall, 2 check their blood for #haemochromatosis. To pay c £125 4 a #DIY blood test @IronOverloadUK #charity could help save your life. Don’t delay; do it #r4today! youtu.be/hXDqJYRh_TM
@MichaelRosenYes ‘ Haemochromatosis ‘ I like the word… but that is rather ironic @IronOverloadUK
@IronOverloadUK This is amazing news! Huge thanks to our players for helping make it possible to fund Good Causes like this! 🎉 🙌 #ThanksToYou ^Skye
@TNLComFund I hope your funding will help prevent the premature passing of loved ones. Please take a moment to watch Peter’s tragic story youtu.be/m_nO3HSisxQ @ShaunLintern
🥳 this is a great cause for celebration @IronOverloadUK lincsonline.co.uk/spalding/news/…
@IronOverloadUK This is amazing news! A massive thanks to our players for helping make this possible! 👏 🙌 #ThanksToYou ^Skye
@IronOverloadUK Thank you All for the great support for #NHWeek keep posting Please Thanks 🙏👏🙏 @mynameisAndyJ
Just back from my first venesection at the Borders General Hospital for my #GeneticHaemochromatosis. I received wonderful care from the gastro specialist nurse and clear treatment plan for the future. Only post-bleed exhaustion now to worry about @IronOverloadUK
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