INIDA - Iatrogenic neuroimmune disease association @INIDAofficial
INIDA is a patient led association dedicated to collecting community data, researching and spreading awareness around iatrogenic disorders such as PSSD and PFS. inida.info Joined November 2024-
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Thanks for you support, our GPCR research is advancing! Could't do it without you 🙌 Yesterday, we reached our fundraising goal of 20k! #PSSD #Research
Our fundraiser is already 93% complete! Help us advance groundbreaking research on GPCR autoandibodies in PSSD 👏 Let's reach 100% together, every donation counts! gofund.me/38d817a61
Another small donation to help start the first "human" study conducted on actual #PostSSRISyndrome/#PSSD patients. @INIDAofficial Link: gofund.me/c37917390
We’re not at 90% thanks to an amazing couple of weeks! 🔥 Thanks to everyone who contributed!👏 If you’re interested in helping us reach our goal, either by donating or sharing our fundraiser, please click the link below🙏 gofund.me/0083d7803 #pssd #pssd #research
Thanks to a generous benefactor we are now at 89% towards the goal! 💥 Thanks a lot to everyone who has donated so far! 🙌 If you want to help us fill in the remaining 11%, please click the link down below that will take you to our fundraiser🙏 gofund.me/fb39e5958 #PSSD #research
Bring it home !
Thanks to you, we’re 40% funded! 🚀 Keep the momentum going – every contribution counts! gofund.me/38d817a61 #PSSD #GoFundMe
New donation of mine to @INIDAofficial. Help Launch the First Study on GPCR Autoantibodies in #PSSD/#PostSsriSyndrome Fundraiser link: gofund.me/38f34151a
@PhillipPssd @INIDAofficial I meant new donations, but it's okay. Here is another donation of mine:
Please consider donating to this PSSD study. Not only could it give PSSD biomarkers which would help in getting it recognized, but could also lead to treatments in the form of IVIG and other immune therapies. gofund.me/22cb5d7a2
If someone replies within 24 hours to this post with a screenshot of their own new donation. I will donate again ASAP.
New donation to help launch the First "Human" study conducted on actual #PSSD/#PostSSRISyndrome patients. Fundraiser organized by @INIDAofficial. Link to fundraiser: gofund.me/3fafa89f5
New donation to help launch the First "Human" study conducted on actual #PSSD/#PostSSRISyndrome patients. Fundraiser organized by @INIDAofficial. Link to fundraiser: gofund.me/3fafa89f5
Support @INIDAofficial in their Study on GPCR Autoantibodies in PSSD. I just donated.
Please support this GoFundMe by donating or sharing—every bit of help makes a difference. gofund.me/112666c29
gofund.me/7c0a272a1 Help Launch the First Study on GPCR Autoantibodies in PSSD! Great news, half of our $50k goal is already secured! We still need $20k by Oct 1 to ensure the study starts on time. Every contribution helps us cross the finish line.
🚨 Study Announcement Excited to finally announce that immonologists Dr. Chandra Menendez & Dr. Madeleine Cunningham will lead a new study on GPCR autoantibodies in PSSD! For more visit: inida.info/f/new-upcoming… @More4Science @INIDAofficial #pssd @PSSDNetwork @DrJosefWD
Two Decades of PSSD: A Life Stolen by Antidepressants By Jon Jacobsen Our two-year-long collaborative research project suggests that neuroimmune processes and related downstream mechanisms may play a role in PSSD. buff.ly/OT5NGSD
Happy to finally announce that our research document is officially out now! It has been published on Mad In America as well as hosted on our own platform. This is the result of a 2 year long community driven collaborative research effort involving: Data tracking📊 Tracking & interpreting test results across 6 categories collected from over 100 PSSD patients; • GPCR autoantibody tests (Celltrend & Cunningham) • SFN skin biopsies and QST's • Neuroimaging (MRI's & PET-Scans) • Lumbar punctures • Cytokine panels • GI map panels. Patient tracking📝 • Following multiple diagnosed cases, logging treatment trials & gathering “case reports” written by medical professionals Research🔎📄 Reviewing tons scientific literature Writing✍️ 100s of hours writing about various topics, including; • Exploring related conditions and potential shared mechanisms with PSSD • Investigating the nervous system (ANS, SNS & CNS) as contextual basis for interpreting the data • Interpreting & discussing the test results • Exploring potential etiology, triggering mechanisms & alternate hypotheses To read the full document, visit: inida.info/community-rese… Can also be viewed at: madinamerica.com/2025/05/two-de… @PSSDNetwork @MelcangiCosimo @abcsoka @joannamoncrieff @PGtzsche1 @KennethMPeters1 @taperclinic @PSSDCanada @SafeSpaceShared @Mad_In_America @PFSFoundation #PSSD #ssri #Pharmaceutical #Neurology #Immunology #autoimmunity #neuroinflammation #autoantibodies #autoimmuneencephalitis #SFN #gutdysbiosis #dysautonomia #disease #INIDA
I recommend watching this presentation on PSSD hosted by Yassie Pirani and her colleague Travis Salway earlier this week. It’s very good and goes indebth on all things #PSSD. We (#INIDA) also got a shoutout as well which was really cool!Check it out here: inida.info/news/f/bccdc-g…
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