Honor The Gift @Honor_The_Gift
Protecting coverage for post-transplant diagnostic tests. honorthegift.org Joined December 2018-
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For a year, we’ve advocated to restore access to post-transplant blood tests following rollbacks from a Medicare contractor. Recently, it was discovered that direct advice from experts was ignored when making this decision. Read more from @WSJopinion: ow.ly/3PqQ50RkeeO
Leading transplant clinicians sent a letter to CMS on restrictions that stop doctors from using non-invasive post-transplant blood tests. Clinicians are now reporting a rise in rejection among organ recipients that may be associated. Our statement: ow.ly/Hru550RhsLE
Amazing to see this portrayal of friendship and the living donor journey!
Amazing to see this portrayal of friendship and the living donor journey!
This week, our allies @KidneyPatients held a policy roundtable where Paul Conway and Dr. Steven Potter discussed last year’s Medicare coverage restriction for non-invasive post-transplant tests. Read AAKP’s Closer Look report on this hypocrisy: ow.ly/JIBm50QGJgI
Our allies at @KidneyPatients recently released a report highlighting a concerning double standard on access to vital blood tests. Read more about how this undermines efforts to improve transparency and remove barriers to post-transplant care: ow.ly/4bOa50QCrym
NEW: In @NYDailyNews, our Exec. Chairman, @OfficialAlBSure calls on lawmakers, staff & administrators to work together to reverse @CMSGov’s decision to cut Medicare coverage for life-saving blood tests for transplant patients echoing a call from @TheRevAl: nydailynews.com/2024/02/02/al-…
Melissa McQueen, founder of @transplantfams, an HTG coalition member, shared in the @TucsonStar why access to innovations in care, such as donor-derived cell-free DNA (dd-cfDNA) diagnostics, is so important for organ recipients. Read her full op-ed: ow.ly/iG0b50Qvuto
Honor the Gift advocates Glenda Daggert and Ira Copperman of @TRIO_National were featured in a recent @statnews piece on caregiving for organ recipients. Thank you both for everything you do for the transplant community! The full article: ow.ly/NbSy50Qroub
Thank you @RepHorsford, Chairperson of @TheBlackCaucus, for calling on CMS and HHS to protect post-transplant care! Join Honor the Gift in calling for action: ow.ly/2RbZ50QnXRq Find the full CBC letter: honorthegift.org/news/congressi… #honorthegift #equityfortransplantcare
Honor the Gift applauds the latest action taken by the @TheBlackCaucus, calling on CMS and HHS to immediately halt canceled blood tests. Our fight to restore Medicare coverage for these vital post-transplant tests remains as strong as ever in the new year.
Honor the Gift applauds the latest action taken by the @TheBlackCaucus, calling on CMS and HHS to immediately halt canceled blood tests. Our fight to restore Medicare coverage for these vital post-transplant tests remains as strong as ever in the new year.
Thank You, Allies & Supporters! Your dedication made a real impact this year. Happy Holidays! Looking forward to continuing our vital work to reinstate Medicare coverage for tx tests. If you haven't yet, take action by writing to your Congress member — bit.ly/3TyHq4s.
Special thanks to @OfficialAlBSure, @TheRevAl and @transplants4all for bringing visibility to this very important issue! We will continue to fight for Medicare coverage for vital post-transplant blood tests and equity in transplant care. #honorthegift #equityfortransplantcare
Special thanks to @OfficialAlBSure, @TheRevAl and @transplants4all for bringing visibility to this very important issue! We will continue to fight for Medicare coverage for vital post-transplant blood tests and equity in transplant care. #honorthegift #equityfortransplantcare
Patients and doctors speak out on the serious impact of Medicare cutbacks on transplant testing. Margaret Gamble, 2-time kidney tx recipient, shares her experience with Medicare cancelling her non-invasive tests this year. postandcourier.com/health/medicar…
Latest episode of @newtgingrich's podcast “Newt’s World” dives into the struggle tx patients face after Medicare rolled back coverage for non-invasive tests. Hear more on the issue from Congressman Michael Burgess, MD, Dr. Steven Potter and Eddie Garcia. @transplants4all
Latest episode of @newtgingrich's podcast “Newt’s World” dives into the struggle tx patients face after Medicare rolled back coverage for non-invasive tests. Hear more on the issue from Congressman Michael Burgess, MD, Dr. Steven Potter and Eddie Garcia. @transplants4all
Thank you to the hundreds of transplant advocates who fought for Medicare coverage for vital blood tests and equity in transplant care on Capitol Hill last week. Keep the pressure up! It’s easier than ever to act: ow.ly/WHip50QjlvK #honorthegift #equityfortransplantcare
Lung transplant recipient and advocate Sam Kirton shares why access to coverage for non-invasive blood tests is important to him—and why he’s in the fight against Medicare rollbacks. Join Sam and call on Congress to demand the Biden Administration to Act. ow.ly/p6i250QiW25
.@OfficialAlBSure, music legend, transplant recipient, & Exec. Chairman of @transplants4all; @TheRevAl; and @newtgingrich are fighting @HHSGov's Medicare change eliminating Medicare coverage for blood tests that detect organ rejection. Read @TheMessenger: themessenger.com/politics/al-sh…
Earlier this week, transplant patients, physicians & advocates took to Capitol Hill to ask members of Congress to help reverse Medicare cutbacks that have impacted access to post-tx blood tests that detect rejection for transplant recipients. Stay tuned as we continue to fight!
Keeping the pressure on the Biden Administration to take action! Transplant patients, doctors & U.S. Senator Kirsten Gillibrand of NY weighed in about the importance of access to lifesaving transplant blood tests that detect the signs of early rejection. bit.ly/41eCgME
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The Kidney Boyz @kidney_boyz
77 Followers 180 Following The Official Account of The Kidney Boyz Jeff and Ryan!Our leaders @OfficialAlBSure and @TheRevAl joined @SymoneDSanders on @symonemsnbc to discuss our fight to ensure @HHSGov restores coverage for transplant patient blood tests to detect early signs of rejection. Watch their full conversation here: bit.ly/477KWG1
40% of transplant recipients in the U.S. are Black and brown Americans and 50% of the 100k people on a waiting list. @OfficialAlBSure and @TheRevAl are determined to change the issue through the Health Equity in Transplantation Coalition. They share what impact they hope to make.
TUNE IN: This Saturday at 4PM ET on @symonemsnbc, our leaders @OfficialAlBSure & @TheRevAl will sit down with @SymoneDSanders to share how @HHSGov's Medicare cutbacks for blood tests to detect early signs of organ rejection are putting Black & Brown transplant recipients at risk.
For my latest podcast, I talk with Dr. Steven Potter, Eddie Garcia, and Congressman Michael Burgess about the red tape challenges transplant patients are facing. @EddieGarci92904 #honorthegift gingrich360.com/2023/12/16/new…
So grateful for the group of people and the team of patients that came together! #honorthegift @TRIOOkla @TRIO_National
Honor the Gift was proud to award three of our esteemed leaders for their dedication to advocating for Medicare coverage of post-transplant, non-invasive testing. The Advocacy Action Days were the culmination of a year filled with hard work and countless meetings with lawmakers.…
Tonight, as we celebrate our Transplant Champions and reflect on today’s remarkable advocacy efforts at our Celebratory Dinner, we want to thank all of our incredible transplant patients, advocates, and physicians for joining us on this journey to attain #EquityForTransplantCare.
“I am extremely disappointed with the coverage guidance from private contractors that is not supported by science.” - Kiran Kaur Khush, MD, Professor of Cardiovascular Medicine and Heart Failure Cardiologist at @StanfordMed
"Congress needs to exercise its oversight. They need to hear your voices as patients...No independent contractor in the United States should have the ability to do that, especially when...paid by US taxpayers.” - Paul Conway, Chair of Policy and Global Affairs for @KidneyPatients
HAPPENING NOW: Tune in to hear from @OfficialAlBSure @TheRevAl as they join @Honor_The_Gift @RepDonBacon @SenGillibrand @newtgingrich @KidneyPatients and other leaders to fight for #EquityForTransplantCare! WATCH LIVE HERE ➡️ bit.ly/3T67Iec
We are LIVE from the Cannon Caucus Room on Capitol Hill! We’ll be live tweeting throughout the press conference, so be sure to follow along here and at @Honor_The_Gift and join our conversation! #EquityForTransplantCare #HonorTheGift
“This is a really important issue for people of color, who account for 40% of transplant recipients...If we don’t prioritize policies to ensure access to transplants and optimal post-transplant care, we are failing patients.” - @SenGillibrand
“Blood tests can detect rejection up to 3 months early…Blood tests make it safer to be out and about in the world…We need equity and inclusion all the way around, including access...We have to get these blood tests covered.”- @OfficialAlBSure, Exec. Chairman of @transplants4all
“We do not want some bureaucrat cutting off the patients of America from the kind of care that they could have that will save their lives, improve the quality of their lives, and ultimately save all of us money.” – @newtgingrich
“All our families have been touched in some way with a transplant story...I stand here with this great group and all of you today saying let’s increase the odds of success for every patient that needs an organ.” – @RepDonBacon
"The molecular test that Medicare has decided not to cover, saved my life. It saved my life...This decision that Medicare made in March, is inadvertently signing death certificates for tens of thousands of Americans.” – Eddie Garcia, a heart transplant patient from San Jose, CA
“I am here today to speak for those who are unable to in the hopes that public officials will hear all the stories and write the wrongs of the private contractors.” – Marcia Gayle Shaw, kidney transplant recipient
“Detecting rejection at the earliest stages is key right now for stopping rejection and providing for a patient like Genie.” – Sheri Norris, caregiver to her late wife, Genie Kilpatrick, who was a double lung transplant recipient
“As a doctor, I am alarmed by these events, but as a transplant recipient, I am heartbroken...Restoring these Medicare cuts will show solidarity with Black, Brown and under-resourced communities who already live with the medical decks stacked against them."
"As a healthcare provider, I am aware...the post-operative care is equally as important. It requires taking precautions, being vigilant, and meticulous self-care.” - Marsha A. Harris, MD, kidney transplant recipient and general surgeon
“We are concerned that limiting access to these important tests will harm patients, inhibit innovation, and impede efforts to improve long-term transplant organ patient and patient organ survival." – Steven Potter, MD, Professor of Surgery @GUMedicine
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