Hodgkin's International @HodgkinsIntl
Advocating for long-term survivors of Hodgkin lymphoma. Erin Cummings, Executive Director, tweeting. hodgkinsinternational.org Martha's Vineyard, MA Joined April 2019-
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thanks for this Julia! This is a common and sometimes life-threatening late effect for many Hodgkin's survivors. #cancersurvivor #lymphoma #Hodgkinlymphoma
thanks for this Julia! This is a common and sometimes life-threatening late effect for many Hodgkin's survivors. #cancersurvivor #lymphoma #Hodgkinlymphoma
Introduction: The history of cancer survivorship programs in the USA: progress, challenges, and opportunities | Journal of Cancer Survivorship. #survonc Please see new @jcansurv series ⤵️ link.springer.com/article/10.100…
Join us this June in Boston! hodgkinsinternational.com/news-and-event…
This goes to the very ❤️of #CardioOnc! Thank you @itsnot_pink for bringing the patient voice. I look forward to learning about Patient-focused drug development and @FDAOncology perspective. Live Sat, Feb 10, 2024, at the Heart House! @ACCinTouch
This goes to the very ❤️of #CardioOnc! Thank you @itsnot_pink for bringing the patient voice. I look forward to learning about Patient-focused drug development and @FDAOncology perspective. Live Sat, Feb 10, 2024, at the Heart House! @ACCinTouch
Fighting cancer is an arduous, sometimes impossible task...the last thing our health care system should be doing is creating unnecessary headwind for pts & families during such a vulnerable time. My dad’s care was delayed, & psychological harm was done. jamanetwork.com/journals/jamao…
Delighted to announce Kevin Oeffinger, MD, and Susan Leigh, RN, BSN as the recipients of our Honor of Excellence awards, to be given at our conference, on 6/8/24 in Boston. Congrats to you both! #hodgkin survivors, #ASCO @oncologynursing
Fantastic podcast on Hodgkin lymphoma research. This is a game-changer for Hodgkin's survivors worldwide. A huge thank you to the HoLISTIC consortium on behalf of long-term survivors. #HodgkinLymphoma #HoLISTIC consortium @draevans bloodcancerstoday.com/podcast/what-i…
Response to a survivor asking about breast cancer risk post-Hodgkin's: "Don't think about it" "Your breast cancer is low risk" "We treat you the same as everyone else" "Well, you could walk outside in the next 5 minutes and be hit by a car" Seriously? NOT OK #hodgkins #survivors
Please help! "I live in Australia. In America, has there been any research using tamoxifen (or similar drugs) to prevent breast cancer occurrence post-treatment for Hodgkin's Lymphoma? I am aware that these types of clinical trials are being run for people with BRCA1 and BRCA2"
Pleased to be the new Chair of @COSAoncology Survivorship. We have an ambitious program of work with an excellent team of people. Expressions of interest to join the Survivorship Executive will be advertised shortly (imminent) and will close pre-Christmas break! #SurvOnc #SuppOnc
Looking for your support on this Giving Tuesday. Our organization is making great progress in reaching survivors all around the world and educating them about late and long-term effects. But we need your help. We can't do it alone. Thank you! facebook.com/donate/6661434…
Excited to announce our 1st gathering & conference on long-term cancer survivorship and late effects, Jun 7-9, 2024 in Boston. Featured speakers include Kevin Oeffinger, Larissa Nekhlyudov, Deborah Mayer, Shelley Fuld Nasso, & Michael Stubblefield. hodgkinsinternational.com/new.../2024-sy…
Congrats to Dr. Bertagnolli!
Congrats to Dr. Bertagnolli!
We need more events like this! Understanding the role of primary care in survivorship is KEY to making sure that we keep surviving! events.cancer.gov/ocs/primary-ca…
Thank you, @RepDeSaulnier, for reintroducing the Cancer Care Planning and Communications Act, which would establish a Medicare service and payment for cancer care planning. Thank you for your dedication to ensuring survivors have access to quality cancer care! Learn more:…
NCCS Elevate Ambassador Erin Cummings understands that Hodgkin's survivors face unique long and late term effects from their cancer and treatment. Through her work with @HodgkinsIntl, she shares education and hope. Learn more: youtube.com/watch?v=a7B4VR…
Are caregivers or patients more proactive in seeking information about the cancer diagnosis and treatment? Post your reply in the comments, then register to join us October 3, 1PM ET to find out the results. Register: canceradvocacy.org/survey2023/ #CancerSurvivorship
After a median 1-year follow-up of Stage III or IV classical #Hodgkinlymphoma, progression-free survival with nivolumab plus #chemotherapy was 94% versus 86% for the brentuximab plus chemotherapy. ow.ly/qQqK50PLcah
New study from Jones lab: In >11,000 people with cancer and up to 25 yrs followup, exercise reduced all-cause mortality by 25% and reduced risk of cancer-specific death for kidney and head and neck cancers. Summary: mskcc.org/news/does-exer… Article: ascopubs.org/doi/abs/10.120…
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Nothing better than an unexpected lunch date with @coffeemommy!
I’ve been dragged under the surf by ‘what ifs’ so many times. I have to fight my way back to the surface each time. I have to remind myself that I’m still here. I’m still swimming. I’m still living. I have to stop to find the good parts like the warm sun, the breeze… 🩵
Salty Sunday: anonymous confessions from the cancer community translated into art by me ❤️
Important but less discussed topic #bcsm
Cancer incidence is on the rise: there’s been an 8 percent increase of breast cancer among younger women in recent yrs. Join Dana Farber’s @AnnPartridgeMD & @bcrf for a virtual panel, exploring the challenges young mothers face when diagnosed w/cancer: zoom.us/webinar/regist…
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There are no words to Thank You enough, Julia Maues, for empowering the Patient Voice and Inspiring us All! Lets put all the forces to improve Patient-Centered Care @itsnot_pink @FDAOncology @ACCinTouch @ASCOPost @DLMann_MD @PennThalheimer @sdent_duke
Thank you @ACCinTouch and @AnaBaracCardio for bringing us all together for #cardiooncology at #acccardiooncology2024 Nothing better than hearing a patient perspective… after all, that’s #mywhy
New city, similar obelisk. 😍 In Buenos Aires for the beginning of our luna de miel! 🍯🌙 So excited for 2 weeks of R&R in Argentina with my hubby.
Excited to present @NRGonc Winter 2024 Symposium on Advocacy at the Local, Community and National Level That Improves Access of Underrepresented Patients In Clinical Trials tinyurl.com/yck8vehk
Vulnerability is scary but it’s worth it. 🩷
All the snow, I want all the snow! #onmyhiketoday #snowshoehike #wildandwonderful
On the topic of #CardioOnc, @touchbbca has a "The Doctor Is In" episode coming up tomorrow, January 10 at 6pm ET, about breast cancer & heart disease, with the wonderful @NeNe_LaShaun of @VCUMassey.
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So here’s what I was doing at 2:45 am today - testifying virtually with @QUBCancerProf to @CommonsHealth on the future of cancer. I appreciate the opportunity to be part of the discussion & welcome opportunities to enhance global collaboration. @EuropeanCancer @ASCO
BIG DATA at its best - The HoLISTIC consortium is answering Qs we never thought we could. @DrAEvens @MaurerStats, Dr. Parsons et al have done the superb work & share w me how it all started. A #HemOnc Pulse exclusive. @Blood_Cancers DON’T miss it. bloodcancerstoday.com/podcast/what-i…
January 6th was a dark day for American democracy. As we mark the 3 year anniversary of the attack on the Capitol, I’m reminded of the fragility of our democracy and the dire need to protect it.
To the lady who stopped on Christmas Day 11 years ago while I slept in this doorway (across from the West Hotel at Pender & Carrall in the DTES) to give me a Tims coffee, a hug, and 50 bucks … please reach out if you remember me! I want to THANK YOU. You gave me hope in a very…
I’m so proud of my Son @JamesRBullockJr for being a remarkable young man on and off the court. Thanks @JeffVorva for this wonderful article!! Basketball: James Bullock Jr. inspires Marian Catholic - Chicago Tribune - goo.gl/alerts/bWFNr8 #GoogleAlerts
Exciting new manuscript from us at @CancerResrch out today demonstrating a trend towards increased post marketing requirements for dosing in oncology over the past 10 years. With an increased focus on #doseoptimization, doing so earlier will be better for all!
New @CancerResrch publication today in @CCR_AACR’s Clinical Cancer Research, shows that a majority of oncology drugs undergo additional dose evaluation after approval through Postmarketing Requirements (PMRs). Read the publication here: bit.ly/3uTnLSn
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