Heart Failure Policy Network @HFPolicyNetwork
We are a multidisciplinary network of patient advocates, HCPs and policymakers. We work to raise awareness of #HeartFailure among decision-makers across #Europe hfpolicynetwork.org Joined March 2016-
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Three weeks ago, we hosted the Heart Failure Policy Summit 2024. It was fascinating to hear insights from our speakers on the landscape of HF research and care. The recordings of both sessions are now available to watch on our website: hfpolicynetwork.org/project/heart-… #HFPolicySummit24
Do you want to connect with other heart failure advocates and hear about opportunities to participate in HFPN activities? Email [email protected] to learn more about becoming a Network member. hfpolicynetwork.org/members/
The European Commission has responded to questions on heart failure funding posed by #HeartFailureMission Policy Champions @DemPapadakis and @BarryAndrewsMEP. We are delighted to be moving #HeartFailure up the political agenda in Europe. hfpolicynetwork.org/european-commi…
Did you know that #HeartFailure affects around 1 in 4 people and is the leading cause of preventable hospitalisation in Europe? If every country had a dedicated heart failure plan in place, many of those hospitalisations could be avoided. hfpolicynetwork.org/hfpn-launches-…
Last year, we called for the greater provision of mental health support to improve outcomes and ensure that people live well with #HeartFailure. Read our call to action to find out what needs to be done: hfpolicynetwork.org/mental-health-…
Are you looking to convince policymakers of the importance of addressing #heartfailure? Our website contains many resources to support advocates across Europe. You can access our resources here: hfpolicynetwork.org/resources/
Specialist nurse-led care can reduce #HeartFailure hospital readmissions by up to 33%. Yet most EU Member States lack funding and accreditation for HF specialist #nursing. Our call to action outlines how these issues can be addressed: hfpolicynetwork.org/hfpn-calls-on-…
We were honoured to have the @sanidadgob Minister Mónica García Gómez open the #HFPolicySummit24. Her keynote address invited other ministries of health to work collaboratively to develop ‘resilient and caring health systems’. Watch the full address now: youtu.be/9m62FL-TIOM
This #EuropeanPatientsRightsDay, we’re proud to support @GlobalHeartHub’s Patient & Caregiver Charter. Network Director Ed Harding recently talked to @AisteStaraite about how the Charter can be used to change #HealthPolicy. youtube.com/watch?v=SqyIXr…
Investment in #HeartFailure care can reduce hospitalisations, save costs and cut waiting times. Share our #HeartFailureMission infographic with your network to show the benefits that political prioritisation of heart failure could have. hfpolicynetwork.org/hfpn-launches-…
Thank you to our speakers for their time and insights at #HFPolicySummit24. If you couldn’t attend but would like to know more, check out our live tweets from both sessions using the hashtag #HFPolicySummit24, and visit our webpage for Summit recordings.
Carys Barton 💙🫀.. @CarysBarton
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577 Followers 946 Following Husband to an inspiring wife, President @ETDSF1, Treasurer @WTGF1, Social Media Ambassador @ESOTtransplant, Supporter @SanctuaryRunner.'As air quality is predicted to worsen, its negative impact on health will likely be more acutely felt than ever before.' On #EarthDay, the Lung Cancer Policy Network @LungPolicy, for which HPP acts as secretariat, outlines the urgent action needed to tackle global air quality.
Despite clean-air commitments, air pollution remains the largest environmental health risk in the world. Long-term exposure has a devastating effect on lung health. This #EarthDay, we explore the need for immediate action to tackle air pollution. #LCSM lungcancerpolicynetwork.com/air-pollution-…
Session 2 of the #HeartFailure Policy Summit takes place today and Global Heart Hub is delighted to share updates on the work of our Heart Failure Patient Council, presented by Dr Marilyn Prasun, Chair of our HF Patient Council. ⬇️ hfpolicynetwork.org/project/heart-… @HFPolicyNetwork
The Heart Failure Policy Summit takes place today and on Thurs, discussing the latest advances in #heartfailure care and policy change. Today's session focusses on heart failure as a top priority: the road to political commitment. hfpolicynetwork.org/project/heart-… @HFPolicyNetwork
Excited to present at the HF Policy Global Summit in just 30 minutes! 🌍 Sharing the groundbreaking @HeartLifeCanada National Framework - a big step for Canada in driving positive policy change. Let's make history! #HFPolicySummit #HeartLifeFramework #ChangeMakers
The first session of the Heart Failure Policy Summit 2024 starts in less than an hour! We can't wait to hear our speaker's insights on how we can encourage greater political commitment for HF. You can still sign up! Register here: hfpolicynetwork.org/project/heart-… #HFPolicySummit24
#HeartFailure #HFPolicySummit24
Marc Bains from @HeartLifeCanada joins us for the next session of the #HFPolicySummit24 to discuss how change can be driven through a Heart Failure Policy Framework.
#HeartFailure @HFPolicyNetwork
Tomorrow is the first session of #HFPolicySummit24 (15.00 CEST). Join us to ask our speakers questions in the Q&A and share your ideas on how we can encourage greater political commitment for heart failure. There’s still time to sign up! Register now: mailchi.mp/9b21df38361f/h…
1 in 4 will be diagnosed with #heartfailure at some point in our lives. ⚠️ On 9 and 11 April, the @HFPolicyNetwork will host the 3rd Heart Failure Policy Summit, bringing together experts in policy + practice, making the case for investment in HF care. ⬇️ hfpolicynetwork.org/project/heart-…
#HeartFailure @HFPolicyNetwork
Heart failure remains a condition overlooked by policymakers. Join the #HFPolicySummit24 to hear from leading policy experts about how to present the business case for increasing investment and political commitment in #HeartFailure. hfpolicynetwork.org/project/heart-…
@HFPolicyNetwork Congratulations are in order! Outstanding speaker line-up and meaningful discussions. Well done to all of you at @HFPolicyNetwork and the incredible community around you!❤️
At the European Heart Failure Mission launch. 💙🇪🇺 Heart failure is a critical public health issue affecting numerous lives across Europe. We realize that addressing heart failure is not just a medical challenge but a political one. So, count on me and my colleagues to make it…
I'm delighted to announce that I will deliver a speech at the launching of the European Heart Failure Mission. 🌍💙 This is a crucial platform where we will come together to address heart failure and its far-reaching impacts. @HFPolicyNetwork
Great to see @Jerikkho share the @BSHeartFailure vision at the @HFPolicyNetwork #HeartFailureMission at the @Europarl_EN
Janine Hogan, Director of External Affairs @BSHeartFailure: "Heart Failure is the endpoint of many CVDs. We ask that you please support the #HeartFailureMission that we are launching today - it is a really important first step." #HeartFailure
Idag deltar FOKUS Patient på lansering av kampanj för uppmärksamhet om en folksjukdom- hjärtsvikt. Många talare i @Europarl_EN bl a fr @karolinskainst @HFPolicyNetwork
Working together #25in25 initiative will realise the #heartfailuremission across the EU with the support of @HFA_PresidentEU @Jerikkho
Janine Hogan, Director of External Affairs @BSHeartFailure: "Heart Failure is the endpoint of many CVDs. We ask that you please support the #HeartFailureMission that we are launching today - it is a really important first step." #HeartFailure
Honoured to host the #HeartFailureSummit today in the European Parliament. Our attendees heard from 🇮🇪 Tánaiste & @fiannafailparty Party Leader @MichealMartinTD who gave a passionate address. There must be a 🇪🇺 solution. Thanks to @HFPolicyNetwork for helping to organise.
Congrats for all the work done @HFPolicyNetwork #heartfailure
Professor Damien Gruson, Cliniques Universitaires Saint Luc in Belgium: "We have the technologies to improve heart failure care. We are not dreaming we can make it. If we detect it early, we can treat early." #HeartFailureMission @DAMGRU
"The important role of patients and caregivers should be recognised in future research opportunities," says @AisteStaraite today as she presented to the European Parliament on the #HeartFailureMission. @HFPolicyNetwork
Let's make #heartfailure a political priority in #Europe. Well done to everyone on the launch 👏
Thanks so much to everyone who joined us for the launch of the European #HeartFailureMission in Brussels! Following today’s successful event, HFPN looks ahead with excitement to building momentum for this multi-year campaign to make #HeartFailure a political priority in Europe.
#heartfailure nurses (&AP) are key members of the HF MDT & have an important role in improving outcomes Across Europe we need a focus on standardising nursing as a profession & defining adv practice, education & competence req to then facilitate & grow sub-specialty roles
We need @EU_Health to invest in #HeartFailure specialist nursing, which is vital to facilitate person-centred care and reduce hospitalisations. Read our call to action: hfpolicynetwork.org/hfpn-calls-on-… #HF #specialistnursing #HeartFailureMission