Genetics Policy Hub @GeneticsPolicy
Latest US genetics policy information. Information posted is for educational purposes only. Posts/follows/reposts/likes≠endorsement. Run by @nccrcg. geneticspolicy.nccrcg.org Joined July 2020-
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On April 23, 2024, #TN @GovBillLee signed a bill to require screening for #genetic, #metabolic, or other heritable conditions, including, but not limited to, those on the Recommended Uniform Screening Panel (#RUSP), effective July 1, 2024. Learn more at: bit.ly/4b7fslZ
The April 8-12th 2024 GPH X Wrap-Up of the Week includes 2 bills enacted in #VA relating to #SickleCell disease; and a bill introduced in #NJ relating to coverage for #BiomarkerTesting. Subscribe to receive the Wrap-Up in your inbox weekly! geneticspolicy.substack.com/p/genetics-pol…
On April 8, 2024, the #NJ Assembly introduced a bill to require health insurers to provide coverage for #BiomarkerTesting. Learn more at: bit.ly/4cQqU77
#VA Governor @GlennYoungkin signed a bill on April 4, 2024, to create a statewide registry of #SickleCell disease patients to be maintained by the VA State Health Commissioner. Learn more at: bit.ly/3vNnLUS
The #VA House introduced a bill on January 4, 2023 to create a statewide registry of #SickleCell disease patients to be maintained by the @VDHCommissioner. Learn more at: bit.ly/3vqk07z
On April 4, 2024, #VA Governor @GlennYoungkin signed a bill to provide for an annual review of medications, services, and forms of treatment available to individuals diagnosed with #SickleCell disease and eligible for coverage under #Medicaid. Learn more: bit.ly/3vLqrm4
The #VA House introduced a bill on January 9, 2024, to provide for an annual review of medications, services, and forms of treatment available to individuals with a diagnosis of #SickleCell disease who are eligible for coverage under #Medicaid. Learn more: bit.ly/3tOeMBQ
The April 1-5th 2024 GPH X Wrap-Up of the Week includes an enacted state bill in #VA; introduced state bills in #Louisiana and #NY; and a Executive Order published in #IL, all related to #SickleCell disease. Subscribe to receive the Wrap-Up in your inbox! bit.ly/3J8BPeQ
On March 29, 2024, #IL @GovPritzker published an Executive Order, effective March 18, 2024, to establish The Advisory Council on Financing and Access to #SickleCell Disease Treatment and Other High-Cost Drugs and Treatment to advise @ILDHFS. Learn more: bit.ly/3TGxUe5
On April 2, 2024, the #Louisiana House introduced a bill which would allow healthcare providers to execute an agreement to allow for the communication of patient information to #SickleCell disease associations. Learn more at: bit.ly/43ITSBG
The #Louisiana House introduced a bill on April 2, 2024, to require physicians and physician assistants practicing emergency medicine to complete a 3-hour continuing education course on the treatment of #SickleCell disease every 3 years. Learn more at: bit.ly/43Icz8C
A bill introduced by the #NY Senate on March 28, 2024, would direct @HealthNYGov to conduct a sickle cell disparity study to determine disparities between treatment accessibility and affordability for persons with #SickleCell disease. Learn more at: bit.ly/43LT5jr
On March 28, 2024, #VA Governor @GlennYoungkin signed a bill which provides that every adult resident of the state may be offered screening tests for #SickleCell disease or sickle cell trait. Learn more at: bit.ly/3JalqGx
The March 25-29th 2024 GPH X Wrap-Up of the Week includes introduced state bills in #AL, #MN, and #NY related to #NewbornScreening; coverage for #GeneticTesting; and #SickleCell disease. Subscribe to receive the Wrap-Up in your inbox weekly! bit.ly/49iAaOz
A bill introduced by the #NY Senate on March 28, 2024, would require #SickleCell disease coursework or training for every medical student, medical resident and physician assistant student in the state. Learn more at: bit.ly/4aAntPW
On March 28, 2024, the #NY Senate introduced a bill to map locations of occurrence of #SickleCell disease; promote screening, detection, and education; and provide counseling and referral services. Learn more at: bit.ly/3J09WWm
The #NY Senate introduced a bill on March 28, 2024, to require the @HealthNYGov Health Equity Council to issue mandates related to the treatment of #SickleCell disease. Learn more at: bit.ly/49fuzZc
The #AL Senate introduced a bill on March 21, 2024, which would require the State Board of Health to add any condition on the Recommended Uniform Screening Panel (#RUSP) to the state’s #NewbornScreening panel. Learn more at: bit.ly/3IZYIAQ
On March 20, 2024, the #MN House introduced a bill which would require health insurance plans to provide coverage for clinical #GeneticTesting for enrollees with a personal or family history of #cancer, effective January 1, 2025. Learn more at: bit.ly/4a8ViIg
The March 18-22nd 2024 GPH X Wrap-Up of the Week includes a newly introduced #MA state bill relating to #SickleCell disease. Subscribe to receive the Wrap-Up in your inbox weekly and read this week's issue at: geneticspolicy.substack.com/p/genetics-pol…
On March 12, 2024, the #MA Senate introduced a bill to establish a statewide Steering Committee on #SickleCell Disease; and the Sickle Cell Disease Detection and Education Program within @MassDPH. Learn more at: bit.ly/4cl1CxM
On February 23, 2024, the US House introduced a bill which would enable State #Medicaid programs to provide comprehensive, coordinated care through a health home to individuals with #SickleCell disease. Learn more at: bit.ly/49ZQHaG
Institute for Genome ... @GenomeScience
12K Followers 6K Following Leading-edge research in all-things 'omics: #microbiomes, #neurogenomics, #genomics, #fungi, #parasites, & #cancer. Also: @genomescience.bsky.social
Lei @Lei87626468
28 Followers 2K Following
Ashley Connors @AM_Connors
547 Followers 1K Following PhD Candidate👩🏼🔬 @NCState studying #toxicology #immunology #PFAS #macrophage #zebrafish🐟 Previously in 🐭🧠 #neuroendocrinology Views = my own. She/her
Anjali Chawla @TrippyNeuron
42 Followers 43 Following PhD candidate in Neuroscience, McGill University. #HBHL #DKG #FRQS fellowship recipient. Studying #epigenetics in the human brain at single-cell resolution.
Seethal Jacob, MD, MS @seethal_jacobmd
2K Followers 2K Following #SickleCell Provider/Advocate, #PHOdoc, #HealthServicesResearch Let’s talk #ImplementationSci and #Telehealth. Tweets are mine.
Organic Acidemia Asn @OrganicAcidemia
928 Followers 1K Following The Organic Acidemia Assn, our mission is to support families, share awareness of organic acid disorders, fund research for better treatments & advocate NBS.
Teresa Coe @TBrookeCoe
11 Followers 80 Following University of Toronto MHSc Candidate in Medical Genomics with a passion for sharing the wonderful world of genomics in Canada
Lisa Aiello PhD, RN @aiellolisa136
285 Followers 928 Following Cancer Genetics Nurse Scientist. My tweets are my own.
DeBio.Network @DeBio_Network
7K Followers 283 Following The Decentralized Bio(-Informatics/-Medical) Network. Sequence your genes anonymously & pay in crypto.
Mia A. @SraMiaa
293 Followers 2K Following Visionary| Civic Enthusiast| @SusanGKomen| @onwardtogether| Team @DickDurbin| @youngdems| @amnestyusa| She/Her(s) #kindness🗽🖤
ST @SOLK_TD
3 Followers 23 Following
CMVTransmITstudy @CMVTransmIT
81 Followers 289 Following A study at UMass Chan Medical School to research CMV transmission in group childcare and early education settings in Worcester & Cambridge, Mass.
Southwest Telehealth ... @SWTRC1
207 Followers 122 Following The @UAZATP Southwest Telehealth Resource Center (SWTRC) was created to advance the effective use of telemedicine services throughout the Southwest region.
Aneta Kaczmarczyk @ane_ka
0 Followers 22 Following
Jennyphane Alexandre @Djenalex
3 Followers 68 Following
UCSF Genetic Counseli... @UCSF_GCP
269 Followers 86 Following Official account of UCSF's Genetic Counseling Graduate Program.
Walter Reichert @wwreichert3
19 Followers 189 Following
Karyn Roberts PhD, RN... @DrOakie22
298 Followers 1K Following Mom, nurse, scientist, child and family researcher,#family strengths passionate about improving the health of children and families. #IFNA
AASPA @AASPASurgeryPA
3K Followers 3K Following The American Association of Surgical Physician Assistants is the Premier Professional Association for Surgical PAs, PA Students, and Pre-PAs all over the world
Christine @biochristine
108 Followers 946 Following Follower of all things healthcare, pharma and biotech. All tweets are my own. Retweets are not endorsements Caesar salad is not a vegetable
yellowhead @TayfunCinleti
2 Followers 2K Following
Gabriela @staycray
1K Followers 2K Following this is just for funsies 🕉 embryologist 🧫big sports girl but mostly for attention
Kala Visvanathan @kalavisvanathan
458 Followers 1K Following Oncologist Epidemiologist,Cancer Genetics | passionate about cancer prevention, improving outcomes for survivors, mentoring & DEI. Love a laugh.Tweets my own
Dr. Partha Das, MBBS,... @pdmanas30
96 Followers 305 Following Pathologist with a morbid interest in #data #AI & #ML. BM driven drug development #PrecisionMedicine Leader @Janssen. #MolPath #precisiononcology. T/RT my own
UConn Genetic Counsel... @uconngc
15 Followers 28 Following Preparing the Next Generation of Professionals to Translate Genomics for Health.
Rebeca Venezia @rebecaveneziat
308 Followers 349 Following
Alicia 🌸 @gueezy
265 Followers 428 Following Biostatistics PhD student @umichsph 🧬📊 • @UNM Alum 🐺🐾 • #NMTrue 🌶️🏜️ ➡️ #GoBlue! 〽️💙
AiLife Diagnostics @AilifeD
34 Followers 244 Following AiLife Diagnostics is a CAP/CLIA laboratory that provides end-to-end genomic testing, interpretation services, and NGS analysis tool.
Nathaniel H Robin @NatRobinMD
346 Followers 433 Following Medical Geneticist| Professor, Department of Genetics, University of Alabama at Birmingham | Medical Director, UAB Genetics | *tweets are my own
hillary🌼 @Hillary_Esplen
175 Followers 140 Following MD Anderson M.S. in Diagnostic Genetics & Genomics ‘23🧬
Taylor McClinchey @TMcClinchey
86 Followers 214 Following Genetic Counselor | @uabgctp class of 2021 | @universityofga alum | she/her
Christina Dailey @GC_ChristinaD
81 Followers 42 Following Certified Genetic Counselor, Views are my own
Taylor Dunn @TaylorMDunn
85 Followers 224 Following Prenatal & Cancer Genetic Counselor | @uabgctp ‘21 | @uiowa ‘18 | she/her | views my own
Fuki M. Hisama @FukiHisama
29 Followers 9 Following Physician specializing in Medical genetics. My interests include precision medicine, neurogetics, progeroid syndromes and cardiac genetics.
Erica S @ericalynn5590
74 Followers 231 Following
Laura Andolina @LauraAndolina1
3 Followers 19 Following
AmyPonte @HelixChick
3 Followers 9 Following
Ericashirin @ericashirin
17 Followers 114 Following Passionate about Women’s healthcare, prenatal genetics, the ocean and its orchestra, and wildflower gathering.
Owen Hirschi @NotOwenHirschi
75 Followers 264 Following PhD student @BCMGenetics Tweets are unfortunately my own
wherleygirl @wherleygirl1
1 Followers 16 Following
Murugu Manickam @Murugu_m
163 Followers 297 Following clinical geneticist, editor for Genetics in Medicine, holder of obscure facts, fan of a spoiled Rottie and spoiled Puggie, brown Irish.
Dr. Mira Irons @IronsMiraMD
156 Followers 327 Following President and CEO, The College of Physicians of Philadelphia
Sue Kang, PhD @kangdrsue
54 Followers 59 Following Cytogeneticist, Molecular geneticist, Baseball enthusiast ⚾️🌴😎
Kate Saylor, Ph.D. @kwsaylor
340 Followers 438 Following Assistant Prof of Bioethics @GeisingerHealth. Bioethics, genetics, priority-setting. Former: @PennMEHP, @unc Public Policy PhD, @nih science policy, @ngpohsu
PerkinElmer Genomics @PKIGenomics
510 Followers 362 Following A global leader in #genetic and #genomic testing focused on rare diseases, newborn screening, and inherited cancer. Let's end the diagnostic odyssey together.
The American Journal ... @bioethics_net
12K Followers 194 Following Providing daily #bioethics news, webinars on trending topics, AJOB journal articles from leading scholars, and essays at Bioethics Today.
Baby's First Test @BabysFirstTest_
160 Followers 261 Following Baby's First Test is the nation's newborn screening education resource center for families and health professionals.
Elizabeth Reynolds @EReynolds_
195 Followers 572 Following Founder @TheChampFound | Fighting to cure Pearson syndrome
GSFLendingLibrary @GSFLibrary
55 Followers 304 Following Take a book, read a book, leave a book. Come see what your fellow genetic counselors and friends are reading at the GSF booth. Follow the books as they travel.
Kentucky Department f... @KYHealthAlerts
4K Followers 62 Following Health alerts from the Kentucky Department for Public Health, Cabinet for Health and Family Services
PA Legislature @PaLegis
18K Followers 0 Following Roll Calls, Journals, and Committee Meeting announcements from the Pennsylvania General Assembly.
Pennsylvania Senate @PaSenate
754 Followers 0 Following The Senate of Pennsylvania. Follow @PaLegis for updates on legislative activity.
Neurofibromatosis You... @NFYIForum
265 Followers 94 Following 📍Renaissance Baltimore Harborplace Hotel 🔜📅Submission deadline: Sept 8th Supported by independent educational grants from Alexion & SpringWorks Therapeutics.
NM Voices for Childre... @NMVoices
3K Followers 717 Following Working to improve the lives of New Mexico's children and families since 1987. Non-partisan research, analysis, and advocacy. #NMKidsCount #nmpol #nmleg
ABMGG @TheABMGG
391 Followers 36 Following The mission of the ABMGG is to serve the public and the medical profession by promoting and assuring standards of excellence in medical genetics.
Alliance for Connecte... @ConnectwCare
638 Followers 584 Following Leading advocacy voice for #telehealth and #remotepatientmonitoring with policymakers in Washington, DC.
Heartland TRC @HeartlandTRC
1K Followers 820 Following Your resource for #telehealth success in Kansas, Missouri & Oklahoma. Most services free. Call (877) 643-HTRC.
Sandra Soo-Jin Lee @sandrasoojinlee
477 Followers 300 Following Medical Anthropologist, Professor @Columbia & Chief, Division of Ethics @ColumbiaEthics, Co-Director of CERA @ELSIhub, @HastingsCenter Fellow, Tweets are my own
Genevieve Wojcik, PhD... @genandgenes
3K Followers 945 Following Assoc Prof of Epidemiology in @JohnsHopkinsEpi, but views my own. || Genetic epi for diverse and admixed pops. || Mostly coffee, but still tired.
Institute for Medicai... @Innov8Medicaid
1K Followers 371 Following National nonprofit, nonpartisan 501(c)3 dedicated to generating & disseminating evidence-based info that informs #Medicaid policy, clinical practice, & research
Rare Disease Report @RareDR
15K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi
RareConnect @RareConnect
18K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
Emily Bonkowski @ebonkowski
453 Followers 1K Following Neuro GC & Research Program Coord | Public Health Genetics PhD student @uwsph | interests in bioethics and pediatrics, science is real, views are mine | she/her
Joan Alker @JoanAlker1
10K Followers 2K Following ED of @georgetownccf and Research Professor at Georgetown U’s @McCourtSchool of Public Policy; https://t.co/WgQeobKjFI. Medicaid/CHIP obsessed.
Simons Searchlight @s_searchlight
2K Followers 3K Following Accelerating research by collecting data/biosamples from ppl w/rare #genetic causes of #autism & other neurodev dis. Researchers can get data: https://t.co/kokQ7uLYWd
Alliance for Health P... @AllHealthPolicy
8K Followers 688 Following Nonpartisan, nonprofit organization dedicated to helping policymakers and the public better understand health policy. RT≠ endorsements #ThisIsYourAlliance
Jennifer Ng'andu (she... @JennNgandu
532 Followers 479 Following Working to ensure every child can be at their healthiest; firm believer that it takes a village; Views are my own
Center on Budget @CenterOnBudget
44K Followers 1K Following Informing debates. Shaping policy. Producing results.
Compendium of Cancer ... @ccgawiki
514 Followers 1K Following The Compendium of Cancer Genome Aberrations (CCGA) group is a collaborative effort to document and describe chromosome and other genomic abnormalities in cancer
American Nurses Assoc... @ANANursingWorld
139K Followers 2K Following Championing nurses, pioneering healthcare innovation, and igniting change. That is The Power of Nurses™. RTs & Likes are not endorsements
Sara Gerke @gerke_sara
703 Followers 309 Following Associate Professor, College of Law and European Union Center, University of Illinois Urbana-Champaign
Andrey Ostrovsky, MD,... @AndreyOstrovsky
9K Followers 723 Following Investor @SocialInnoVntrs. Physician. Former Chief Medical Officer @MedicaidGov. Cofounder @CareAtHand (acq by Mindoula). Ukrainian American.🇺🇦🇺🇸
The Patient-Centered ... @PCORI
21K Followers 1K Following PCORI funds patient-centered comparative clinical effectiveness research (CER). Links, RTs, favorite ≠ endorsements/advice.
Sick Cells @SickCells
3K Followers 629 Following Sick Cells’ mission is to elevate the voices of the SCD community and our stories of resilience.
Duke-Margolis @DukeMargolis
4K Followers 571 Following Improving health, health equity, and the value of health care by developing and implementing evidence-based policy solutions locally, nationally, and globally.
CaliforniaHealthline @CalHealthline
11K Followers 954 Following Daily news service on health care policy, politics, business and how California's health care system does and doesn’t work, by @KFFHealthNews for @CHCFnews.
AcademyHealth @AcademyHealth
22K Followers 998 Following The professional home for health services researchers, policy analysts, and practitioners, and a leading, non-partisan resource for the best in HSR.
APHA @PublicHealth
463K Followers 13K Following Official account of the American Public Health Association. We champion optimal, equitable health and well-being for all.
Sachin H. Jain, MD, M... @sacjai
27K Followers 2K Following
AHRQ @AHRQGov
74K Followers 67 Following U.S. Department of Health and Human Services' Agency for Healthcare Research and Quality
David Grabowski @DavidCGrabowski
9K Followers 1K Following Professor, Health Care Policy, Harvard Medical School -- health economics, aging, long-term care, post-acute care
Adrianna McIntyre (@a... @onceuponA
20K Followers 431 Following I study administrative burdens in health insurance coverage, strategies to reduce these barriers, and the politics of health reform also @adrianna.bsky.social
Larry Levitt @larry_levitt
32K Followers 1K Following Executive Vice President for Health Policy, @KFF. Cal Bear.
julie rovner @jrovner
34K Followers 3K Following Chief Washington Correspondent KFF Health News/horse person/corgi mom X 2. Host, KFF Health News's "What the Health?" podcast. #GoBlue!
KFF Health News @KFFHealthNews
182K Followers 1K Following A national newsroom that produces in-depth journalism about health issues; a core program of @KFF.
KFF @KFF
108K Followers 27 Following The independent source for health policy research, polling, and news.
This Is Public Health @TIPHtweets
3K Followers 601 Following This is Public Health brand was created by ASPPH to promote public health awareness. Share your tweet by using #ThisIsPublicHealth
ADM Brian Christine, ... @ADM_Christine
222K Followers 5K Following Official account of ADM Brian Christine, MD, Assistant Secretary for Health. Posts prior to 11/18/25 were from previous federal officials.
National Public Healt... @NPHW
26K Followers 5K Following The American Public Health Association (@publichealth) will celebrate the 30th National Public Health Week April 7-13, 2025. See you for #NPHW!
UnitedHealth Group @UnitedHealthGrp
41K Followers 603 Following Built for Better Health Media inquiries: https://t.co/ThZff5qPFC
Muin J. Khoury @MuinJKhoury
4K Followers 352 Following Physician, Epidemiologist, Medical Geneticist, Public Health Professional. Retired Director of the Office of Public Health Genomics at the CDCYou might like
