Ependymoma Research Foundation @EpendymomaRF
We will find a cure! Ependymoma is rare tumor of the brain and spinal cord. We fund ependymoma research leading to more effective treatment options and a cure. linktr.ee/ependymomarese… Massachusetts Joined June 2020-
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Today is the day! Join us this #GivingTuesday . Help us reach our goal. facebook.com/donate/3434557…
Today is the day. Help us reach our goal! facebook.com/donate/3434557…
Thank You for Being a Part of the BattleGreen Run! We wanted to express our heartfelt gratitude to each and every one of you for being a part of team ERF at the BattleGreen Run. Your presence, enthusiasm, and support truly made the event unforgettable. Thank you!
Join ERF at the Battlegreen Run on 11/5, all proceeds will go toward the Ependymoma Research Foundation. Register for the race through the official event website runsignup.com/Race/MA/Lexing… and don't forget to select team "Ependymoma Research Foundation" on the registration form.
Join our team as a runner or a walker for an amazing opportunity to make a difference and support a great cause. Let's race towards success together! runsignup.com/Race/93027/Don…
Be part of the solution. #GoGold #ChildhoodCancer
The month is almost over. Help us reach our goal. facebook.com/donate/5366230…
Get ready to learn more about cancer research with Dr. Jeff Clayman! Join us tomorrow evening at Boston University’s College of Communication to meet Dr. Clayman and hear about the impact of a career in cancer research.
National Donate a Book Day holds a special place in our hearts. We are proud to share that we have donated over 100 books to local children's hospitals, Ronald McDonald Houses, and Hospitality Homes in Boston. We invite you to join us in spreading awareness, one book at a time.📖
Happy World Health Day! 💛 Help us find a cure for ependymoma and uphold the World Health Organization’s mission of championing health for the past 75 years and all the years to come. #WorldHealthDay #CancerAwareness #research #nonprofit #ERF #EpendyResearchFoundation
Meet Kim, a true fighter! Diagnosed with Ependymoma C2-C7, she underwent surgery in 2020 and recently started a 30-part radiation treatment due to regrowth. But she won’t let it win. Let’s join her on this journey of strength.
Exciting news in ependymoma research! ERF raised $50k for a new technique to eliminate protein EZHIP causing PF-A ependymoma. Also, CAR T cell therapy shows promise in treating ependymoma, following success in leukemia and lymphoma treatment. Let’s keep supporting research!
In 2015, Mariah was diagnosed with anaplastic ependymoma. This week is her last phase of radiation therapy. Mariah aims to share her story with other ependymoma warriors and encourages people to join and support local support groups, so let’s keep fighting together! 💪💛
Hey Burrito lovers! ERF is raising money to support ependymoma research. Join us at the Chipotle at 110 Mall Rd in Burlington, MA on Wednesday, March 15, from 4-8 pm. We can’t wait to see you there and appreciate your ongoing support!
Happy International Women's Day! 🎉 Join us in recognizing Samarrah Fine Clayman, founder of Ependymoma Research Foundation. Samarrah has helped fund groundbreaking research and raised awareness about ependymoma. Let's celebrate Samarrah and all the outstanding women worldwide!
Molly was diagnosed with anaplastic ependymoma stage 3 in August 2019. It is challenging for people in Molly’s age group to discuss and face cancer, so Molly wants to share her story to spread awareness. She urges people to raise awareness and secure funding to help find a cure.
Julio, diagnosed with anaplastic ependymoma in 2018, is undergoing radiation treatment and chemotherapy after a second brain surgery. He shares his story to inspire others. Join Julio and participate in surveys, questionnaires, and clinical trials to help advance research.
Today is International Childhood Cancer Day (ICCD). We stand with children and families affected by #ChildhoodCancer. Let's come together to raise awareness and support vital research to find a cure for #ependymoma.💛 #InternationalChildhoodCancerDay #ERF
The Ependymoma Research Foundation is excited for the new year—a year of new beginnings, new challenges, new love, and support! Let’s welcome 2023! #newyear
Dracen, originally from Ontario, Canada, was diagnosed with posterior fossa ependymoma in September 2022. His friends, neighbors, and family have been the best support system ever, and he encourages everyone in the ERF community to keep a positive outlook. #ependymoma
Nick Vitanza @VitanzaNick
6K Followers 1K Following 🏥🧠 pediatric neuro-oncologist 🚙💉 #CARTcell clinical trialist 🧬🔬 physician scientist focused on #DIPG #DMG #ATRTAnnie Huang @DrAnnieHuang
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4K Followers 1K Following The Pediatric Brain Tumor Foundation leads the way in funding research, supporting families and advocating for policies to end childhood brain cancer.Craig Horbinski @CraigHorbinski
11K Followers 3K Following Director of #Neuropathology, Nervous System Tumor Bank, and Path Core at #Northwestern. My #NIH-funded laboratory studies #glioma and #meningioma.Team Beans Fund @TeamBeansFund
14K Followers 1K Following A community raising money for research and raising awareness of childhood cancer to create a legacy for Francesca "Beans" Kaczynski, who died at 9 months old.Stefan Moore 🎗 @2StefanMoore
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840 Followers 2K Following Our super HERO son Oscar U14s @westham Goalkeeper since 9 years old diagnosed with 7cm brain tumour on 25/08/23. This is our journey. 25/09/23 diag EpendymomaMake a wish foundatio.. @Jamesk198
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3K Followers 642 Following pediatric neurooncologist and physician scientist, passionate about finding new treatments for pediatric brain cancer @dfbc_pedcare @danafarber @bostonchildrensMichelle Monje🎗️ @michelle_monje
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63K Followers 41K Following Nonprofit fighting childhood cancer, one cup at a time. Connecting with our childhood cancer supporters & giving ways to help in the fight. #OneCupAtATimeAnnie Huang @DrAnnieHuang
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10K Followers 507 Following A multidisciplinary society of healthcare professionals dedicated to promoting advances in neuro-oncology through research and education.Roel Verhaak @roelverhaak
5K Followers 487 Following Yale Neurosurgery prof studying brain tumors, husband, dad, football enthusiast, likes karaoke and drums. Disclosures: https://t.co/LZmv16girKshitscaredmum @shitscaredmum
62K Followers 435 Following Mum of girls, lost Laura to brain cancer May '23 Raising funds & campaigning for change #bemorelaura @OurBrainBank https://t.co/sI85Fw4zV6 9/5maria g castro @castro2355_mg
4K Followers 5K Following Working towards a cure for brain cancer @UMich 1st generation #Latina. Prof of Neurosurgery & Cell & Developmental Biology. Science & social justice advocate.Pediatric Brain Tumor.. @PBTF
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1K Followers 255 Following KiTZ combines patient care and cancer research under one roof to understand, treat and defeat childhood cancer. Joint institution of #DKFZ #UKHD #Uni_HDTeam Beans Fund @TeamBeansFund
14K Followers 1K Following A community raising money for research and raising awareness of childhood cancer to create a legacy for Francesca "Beans" Kaczynski, who died at 9 months old.Joe Baber @JoeBaber1
2K Followers 500 Following Father 2 Beth Anne, JoAnna, Julie, Dustin, Deric. Grandfather 2 Conor, Cami, Grace, Dylan,Charlotte. 50 yrs retail, now a Ninja #ChildhoodCancer Bastard 🕵️♂️Stefan Moore 🎗 @2StefanMoore
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5K Followers 4K Following DIPG is 100% fatal & underfunded. We're committed to improving clinical treatments for UK children through research. - Reg 1149400 https://t.co/AG3CWCHce3Mark Lewis @marklewismd
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25K Followers 2K Following We're here to support our broad cancer research community of 4,000 scientists and clinicians. For general Cancer Research UK news & fundraising follow @CR_UKDan Santat @dsantat
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4K Followers 4K Following The largest patient support NGO for childhood cancer. Global, parent-driven, recognized world-wide as the voice for children with cancer, families and survivorsLexington Police (MA) @LexingtonPolice
4K Followers 233 Following Offical account for the Lexington, MA Police Department. This account should not replace calling us and reporting crimes immediately via 911 or 781-862-1212.PREP4Gold @PREP4Gold
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17K Followers 3K Following Nonprofit that empowers & educates people with cancer to thrive in their workplace. Free programs for patients, survivors, healthcare/hr pros & employers.William Curry @WTCNeuroscience
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1K Followers 3K Following This 501 (c) (3) not for profit foundation was created to serve cancer fighters, caregivers and the community nationwide. https://t.co/toxvFfDvJOFiske School is so grateful to @deidreaking @jayne_jeannie Ashley Lawton, Angelina Amato & Chandaleya Kum for beautifying Fiske with very generous donations from McCue’s Garden Center, Seasons 4, and Fiske’s PTO. This is what community is! #doyourpart #careforyourselfandothers
NYC will soon have a COVID vaccine requirement for bars, restaurants, nightclubs and more. Should Boston follow New York's lead? newyork.cbslocal.com/2021/08/03/nyc…
@EpendymomaRF @SurvivorsDay i am a cancer survivor 4 years all cleared of two lots of lymphoma
You lose a lot of faith in this country when you see so many fellow pediatric cancer families having to crowdfund their child’s funeral costs. We have failed as society that let’s people go broke from caring for their sick children.
📅 The International Childhood Cancer Survivors Week starts soon! Did you know that 2/3 of survivors have late mental and physical side effects of treatment? Please share your experience with us, we are here to listen!
Every single damn day there is another child like Francesca. A child who dies of cancer. A family who found out their child's cancer returned. A family that just learned their baby has cancer. We aren't doing enough. It makes me so angry we don't treat this like an emergency.
Thank you so much for donating these books to our HH guests!! They are so inspiring 💛🧡
Happy to announce that we have donated over a 100 copies of Will Jax Be Home for Thanksgiving to @chris_haven and @HospHomes to ensure that this story is in the hands of those who need it! Get a copy or donate one here ependymomaresearchfoundation.org/donate.html
One goal that I have for my neurosurgical career is to create the first neurosurgery residency program at an HBCU. There are 4 HBCU medical schools in the US. Morehouse, Meharry, Howard, and Drew. Not one of them have a nsgy residency program. Hope someone does it before me..🤞🏾
One Boston Day serves as an opportunity to celebrate the resiliency, generosity, and the strength demonstrated by the people of Boston and those around the world. This year, we’re asking people to make this a day of reflection and service. #OneBostonDay
On #OneBostonDay we join the @CityOfBoston in a day of service and gratitude, and encourage all to support the community through acts of kindness. Consider donating blood, supporting a cause close to your heart, or thanking a frontline worker for their service.
I hate childhood cancer, it’s so unfair to our babies.
Tune in to NBC tonight to catch 2018 wish recipient Andrew Marshall from #BoxfordMA, compete in the battle rounds on @NBCTheVoice! 🎤 Best of luck tonight, @awmmusic! Your Make-A-Wish family is cheering you on from home! 💙 #TheVoice #TeamNick
2nd dose of Pfizer behind me! And no side effects... thanks again SEPTA for your help! #lucky
More great news. The CN Tower @TourCNTower has told me they've accepted our request and will be going Gold on September 6th for Childhood Cancer Awareness month to honor Francesca and all children fighting cancer.
Join our friends at @EpendymomaRF for #NationalSiblingsDay! We hope to see you all there!
This Saturday is #nationalsiblingsday and to celebrate we will be hosting an online book reading with Ronald McDonald House @rmhcne and @chris_haven ! Join us with your family! #epENDymoma Register Here ⬇️ eventbrite.com/e/national-sib…
Thank you so much. The pain of Francesca’s loss is strong and overwhelming at times. The fact we’re raising so much money for Dana Farber brings me at least some peace. #TeamBeans
@KFILE @RachelEnsignWSJ here’s my 19 yo daughter, a 13 1/2 year brain cancer survivor, wearing #TeamBeans. Thank you for the good you’re doing in Francesca’s name for the childhood cancer community. #graceforgood @rccarey
There's all sorts of strange things you find humor in when you're spending night and day in the hospital when your kid had cancer. I buzzed my hair in September when Francesca started chemo and then almost none of her hair fell out. We still laugh about it.
@EpendymomaRF Thank you for sharing this!
Hard work! 💪👏🙏🎗🙏 physiotherapy