EGFR Positive UK @EgfrUk
The only UK charity for EGFR+ lung cancer advocacy, empowerment & support 💜 Our community offers hope & learning for those living with EGFR+. Get involved ⤵ linktr.ee/egfrpositivelu… Joined February 2019-
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Losing your driving license 🚙 is yet another hurdle for #LungCancer patients with #BrainMets. Reapplying isn’t easy either, as our #EGFR+ UK trustee Natasha discovered. She shares her experience and helpful tips on navigating this complex process 🔗 egfrpositive.org.uk/mar24-driving-…
What a fabulous #BTOG24 💜 - educational, inspirational, meaningful and fun! Plus, so great to hang out with our friends at @UKALK1 and @RuthStraussFdn #LungCancer #EGFR
Great poster session at #BTOG24 last night ✨ Our study, led by our Research Trustee Prof Gini Harrison was a collab with @UKALK1 and @RuthStraussFdn and looked at online wellbeing support for oncodriven #LungCancer patients. See our poster: egfrpositive.org.uk/btog-2024-well…
🚨 Not the kickoff to #BTOG24 we expected! Our flight from Birmingham was rerouted back after a security scare and B'ham airport has had to close. Currently waiting as the airport handles the situation with all our luggage on the plane! See you soon Belfast...hopefully!✈️🤣
EGFR+ UK is heading to #BTOG2024 in Belfast. Angela Terry, EGFR+ UK Chair & Professor Gini Harrison, our Research Trustee, will represent our community, engaging with the latest lung cancer research and advocacy strategies. Stay tuned for updates and highlights #LungCancer #EGFR
Last weekend our trustees got together with our strategy advisor to map out ways to boost the wellbeing & care of our #EGFR+ #LungCancer community 💜 It was a v productive meeting & we're excited to put our plans into action to support our 750 members!
Catch up with EGFR+ UK's latest in our Spring newsletter: mailchi.mp/eec22efa0249/j… 🌷 For updates every 2 months, filled with news and community inspiration, join our mailing list: mailchi.mp/egfrpositive/j… 💌 #EGFR #LungCancer
On #WorldHealthDay, we face a stark reality: UK's #LungCancer survival lags by 7.6% vs peers (@CR_UK ) and over 40% in Eng wait >2 mths for trtment (@radiotherapy_uk). It's the deadliest cancer in 🇬🇧, yet least funded for research. Quality healthcare is a right #MyHealthMyRight
🚨 Update on #Mobocertinib: Withdrawn, but not forgotten @EgfrUk is tirelessly working for Exon 20 #LungCancer patients, seeking alternatives & navigating regulations. Our fight for better access continues. Full story ➡️ egfrpositive.org.uk/mar24-mobocert… #EGFR
Our @EgfrUk Spring newsletter will be making its way to subscribers this weekend. If you’re not already on our list sign up here mailchi.mp/egfrpositive/j… to join our community. Subscribers receive the newsletter every two months as well as timely ad-hoc bulletins #LungCancer #EGFR
EGFR+ UK's Strategy Trustee Richard Warren @RKW is stepping down, but will continue supporting as an advisor. A huge thank you to Richard who has been involved since the very beginning, ensuring we stay true to our Founders’ vision #EGFRPositive #LungCancer
Thank you Kate
Thrilled by the success of our Manchester Wellbeing & Research Event with @UKALK1 and @RuthStraussFdn a day filled with hope, learning, and community for those with mutation-driven #lungcancer. Huge thanks to near 40 attendees and our experts for making it meaningful. #EGFR
Today on National Cancer CNS Day we thank those who offer unparalleled care & support to our #EGFR+ #lungcancer community. With cancer service demand rising, it's more important than ever we recognise the complex & skilled nature of their roles 💜
Certainly seeing a rise in lung cancer among people who have never smoked. Lung cancer needs to be in the differential for various health concerns and we need more research, more funding to develop treatment and prevention strategies. #LCSM @NBCNews nbcnews.com/news/us-news/a…
🚨URGENT: UK's #EGFR+ Exon 20 lung cancer community faces a crisis as #Mobocertinib is withdrawn today, 8 March, with no alternative targeted drugs or treatment lines available. Lives like Gini's are in limbo. We need swift action to safeguard these patients. #lungcancer
Good news for patients, but in 🇬🇧 we still have no access to targeted drugs for EGFR Ex20Ins, since withdrawal of Mobocertinib This is not acceptable and patients are missing out. @EgfrUk
Good news for patients, but in 🇬🇧 we still have no access to targeted drugs for EGFR Ex20Ins, since withdrawal of Mobocertinib This is not acceptable and patients are missing out. @EgfrUk
EGFR+ UK, in collaboration with @UKALK1 & @RuthStraussFdn, invites mutation-driven #LungCancer patients & loved ones to a wellbeing & research event in Manchester on 16 Mar. Connect, learn & join our research. ➡️openss.qualtrics.com/jfe/form/SV_ct… Sign up by 6 Mar #LungCancersupport #EGFR
⏰ Time is ticking! Help shape #EGFR+ #LungCancer support by taking part in our Members' Experience Survey. Conducted by EGFR+ UK, this 10-15 minute anonymous survey is for patients and those acting on their behalf. 🔗 Survey: surveymonkey.com/r/LPWRSZJ Closes March 27th!
EGFR+ UK, @UKALK1 & @RuthStraussFdn are exhibiting at Best Practice London, Feb 28-29, Olympia. Visit us at G65 for insights on non-smoking #LungCancer & early detection. Looking forward to meeting HCPs & inspiring change. #EGFR #BestPracticeLondon #LungCancerAwareness
Sanjay Popat @DrSanjayPopat
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41K Followers 1K Following Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooksAngus Pratt 🇨🇦 @anguspratt
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1K Followers 151 Following Summit: Nov 2-4, 2023 • Chicago, IL • @egfrresisters @CEC_onc Abstract Submission Deadline: CLOSED⏩https://t.co/i1jrgLUVG3ALK Positive @ALKPositiveinc
2K Followers 909 Following We are a patient-driven organization, dedicated to improving the life expectancy & quality of life for ALK-positive cancer patients worldwide. #StrongerTogetherCelebrating the incredible women of @WeillCornell Hematology & Oncology! Our #HemeOnc Women Physicians’ Group spring meeting was an enlightening & enriching experience. #WomeninMedicine @HemOncWomenDocs @WCMHemOncFellow
Student Sooyun Caroline Tavolacci, MD, MSCR, Shares How Mount Sinai Inspired Her to Study Thoracic Oncology and Enhanced Her Career in Medicine health.mountsinai.org/blog/student-s… via @MountSinaiNYC
Great to see lung cancer research highly represented at the @ASCO plenary session. This has been a long time coming! #LCSM @WinshipAtEmory.
⏰NOW OUT‼️ #ASCO24🔥Plenary Session #LCSM ✅#LBA3 Early palliative care via telehealth vs in person 🎙️Dr.Joseph Greer ✅#LBA4 LAURA: Osi after CRT in EGFRm 🎙️@RamalingamMD ✅#LBA5 ADRIATIC: Durva after CRT in ES-SCLC 🎙️@DavidRSpigel @OncoAlert @ASCO meetings.asco.org/meetings/2024-…
Thanks to @StephenVLiu, Tina Cascone and @IDEOlogyHealth for this great conference @TLCconference @drshieldsmd @christine_lovly @BrendonStilesMD @Latinamd @NarjustFlorezMD @RachelSanbornMD @edgardo_ny @marinagarassino @HosseinBorghaei @ChristianRolfo @chulkimMD @PatelOncology…
10/10: A Belgian Waffle in Belgium 🇧🇪 @DrSteveMartin
Enjoying #Miami with this ray of sunshine,🕶️☀️ @NarjustFlorezMD 🕶️☀️at the @precisca_ fellows forum! Meeting many bright minds🧠and current and future leaders in #oncology! @HemOncFellows #lcsm
Offline: It is time to take cancer more seriously - The Lancet thelancet.com/journals/lance…
Celebrating International Girls in ICT Day! Let's empower girls in tech with equal opportunities and quality education in ICT from an early age. Together, we can achieve full participation and equality in the digital world! 💻🌍 #HeForShe #GirlsInICT
🚨Just 1️⃣ week to go for the @SylvesterCancer Miami Precision Medicine 2024 & Patient Symposium open to patients and caregivers! 📆 May 4-5, 2024 📍Diplomat Hotel, Hollywood FL 👉🏽Live and Virtual event for International attendees! 👉🏽Learn more and REGISTER today:…
Featured today by @MSKLibrary: HERTHENA-Lung02: phase III study of patritumab deruxtecan in advanced EGFR-mutated NSCLC after a third-generation EGFR TKI dx.doi.org/10.2217/fon-20… @TonyMok9 @MartinReck2 @ConorSteuerMD @StephenEsker @HelenaYu923
Non–Small Cell Lung Cancer Metastatic Without Oncogenic Alterations | American Society of Clinical Oncology Educational Book ascopubs.org/doi/10.1200/ED… #ASCO24 #LCSM @MartinReck2
Gefitinib vs Gefitinib Plus Pemetrexed and Carboplatin Chemotherapy in Lung Cancer @VanitaNoronha @JAMAOnc jamanetwork.com/journals/jamao…
New research published from the lab! It has taken 2 years from preprint to publication but finally there with funding from @NeuroblastomaUK and @CwC_UK that began with a @CRUKCamPaeds @CRUKCamCentre funded PhD student @CamPathology link.springer.com/10.1038/s41467…
#BTOG24 highlights: part 2 The results of HALT trial, looking at treating certain #lungcancer progression w radiotherapy, are hotly anticipated in the UK. Drs @gerryhanna & @fifimcdrmh share where we are and what’s next in this trial. Stay tuned for more @BtoG updates. #LCSM
How can we get #lungcancer #biomarkertest results back faster? In this #BTOG24 highlights reel Drs @gerryhanna & @tnewsomdavis discuss a #BTOG24 poster which found that placing EBUS tissue samples on saline instead of formaldehyde improves results Listen in & stay tuned. #LCSM
Chad, Sarah, Brittany& Linda are all never-smokers with RET-positive #lungcancer. They are parents, siblings, friends & spouses. This is their story. #lcsm @StephenVLiu @NarjustFlorezMD @VivekSubbiah youtube.com/watch?v=UJwRfb…
Join our study as we understand risk factors for young patients with lung cancer.
Were you or someone you know diagnosed with lung cancer before age 50? Your story can help researchers understand why younger adults are getting this disease. Help us find answers! Learn more today: bit.ly/3OuQxyZ
What you should know about the Pregnancy & Lung Cancer Registry? 1. It’s an international registry & ANYONE from ANYWHERE can submit cases 2. Median time for case ~20 mins 3. Updates will be published every 6-12 mos so we ALL learn Email: [email protected]…