Bladder Confusion @ConfusedBladder
Chronic UTI/rUTI/IC/PBS patient, depending on who you ask . . . The loo, mostly Joined December 2018-
Tweets1K
-
Followers744
-
Following256
-
Likes2K
"the immune system has a dual role as protector and cause of disease: in addition to being protective, increasing evidence shows that innate immune responses can become excessive and cause acute symptoms and tissue pathology during infection."
"the immune system has a dual role as protector and cause of disease: in addition to being protective, increasing evidence shows that innate immune responses can become excessive and cause acute symptoms and tissue pathology during infection."
'Intensive farming behind antibiotic-resistant MRSA, say researchers' #StopSuperbugs #AMRSOS newfoodmagazine.com/news/166168/in…
This podcast is fantastic. These ladies are incredible. They took the time to listen & get it right. I have cried all the way through it because I have this illness & I am hanging on for dear life. Hugely let down by doctors and the NHS as a whole. Things must change.
This podcast is fantastic. These ladies are incredible. They took the time to listen & get it right. I have cried all the way through it because I have this illness & I am hanging on for dear life. Hugely let down by doctors and the NHS as a whole. Things must change.
I dread to think how much I have spent but it’s way more than this. Travelling to London every 3 months for private healthcare from Scotland: train, accommodation, food; then having to pay for medication, blood tests. Treated like my health doesn’t matter. #chronicuti
I dread to think how much I have spent but it’s way more than this. Travelling to London every 3 months for private healthcare from Scotland: train, accommodation, food; then having to pay for medication, blood tests. Treated like my health doesn’t matter. #chronicuti
Listen to women and their experiences and symptoms. Too many UTI sufferers are fobbed off after “failing” ancient diagnostic tests that the scientific literature has long since shown are flawed. We need more empathy, more research funding —> better tests and treatments
Listen to women and their experiences and symptoms. Too many UTI sufferers are fobbed off after “failing” ancient diagnostic tests that the scientific literature has long since shown are flawed. We need more empathy, more research funding —> better tests and treatments
💯 In my experience: - UTI fails to respond to culture indicated abx -> "it was probably just a contaminated sample" - UTI responds to non-culture indicated abx -> "it was just residual inflammation that resolved" - UTI responds to culture indicated abx -> "of course it did"
💯 In my experience: - UTI fails to respond to culture indicated abx -> "it was probably just a contaminated sample" - UTI responds to non-culture indicated abx -> "it was just residual inflammation that resolved" - UTI responds to culture indicated abx -> "of course it did"
@thebladdergroup An alternative explanation may be that the prevalent bacteria isolated from cultures may not be the species causing symptoms - something the late James Malone-Lee suggested decades ago. Although I suggest an additional explanation for their findings I 💯 agree with the conclusion
Panel poll #2. @ChronicUTIAus @ConfusedBladder @BladderHealthUK @cuticuk @liveUTIfree Providers can help UTI patients best by:
Impressive results from @GarethLuTheryn using ultrasound and bubbles to disrupt biofilms and bacteria. We cannot wait to see more of his research and talk about implications for practice.
Impressive results from @GarethLuTheryn using ultrasound and bubbles to disrupt biofilms and bacteria. We cannot wait to see more of his research and talk about implications for practice.
@BladderHealthUK My local MP took the issue of CUTI directly to the Health Secretary and asked what they would do in regards to this debilitating illness…the response she received “nothing”…I’m incredulous 🤬
@DrNighatArif Great to see Hiprex on there….just to flag latest guidance to patients on infections that keep coming back - could in fact be chronic UTI i.e not a new UTI but same one embedded in bladder lining. See guidance below
STOP SACRIFICING UTI PATIENTS OVER AMR FEARS
#ChronicUTI community please fill this in & share widely - they are explicitly asking for our experience of NHS UTI treatment…. Tell us: what is your experience of women’s healthcare in England? theguardian.com/lifeandstyle/2…
I have long suspected that Hipprex does more then just prevent UTIs—now we have some data to show that it is anti-inflammatory and may help heal the bladder barrier, as well. journals.lww.com/fpmrs/Abstract…
Chronic UTI sufferer Sarah Heaton tells @theipaper she was driven to contact Dignitas after feeling she had no other way out of the pain. This condition makes people suicidal and those with the power to improve treatment must do more. (by @connie_dimsdale) inews.co.uk/news/health/ch…
@zoelouisedrew @connie_dimsdale @theipaper petition.parliament.uk/petitions/6107… Lets get the link for the petition promoted here and perhaps in the article itself?
‘I’ve battled crippling UTIs for three decades, it’s time politicians took this seriously’ / MPs, sufferers and campaigners say better treatment for chronic UTIs is long-overdue, reports @connie_dimsdale for @theipaper inews.co.uk/news/health/ch…
Often followed by 'are you anxious/stressed/depressed'. Even if you are, probably because of the impact of your physical symptoms, you don't want to tell them, because from then onwards everything physical will be blamed on mental health and ignored.
Here is the link to the full report of the @ALTAR_Trial - all 206 pages. It contains a lot more detail than our BMJ paper so for those who are interested - happy reading! journalslibrary.nihr.ac.uk/hta/QOIZ6538/#…
It’s actually mad how hard you have to fight to get medical attention or a diagnosis for things like endometriosis, fibroids, or ovarian cysts. It’s feels like the starting point for clinicians is to mistrust what you’re saying about your body!
𝒥𝑜𝒶𝓃𝓃�.. @JoanneMckinlay4
1K Followers 140 Following Founder of Chronic UTI Global Support. Fully Qualified Counsellor specialist area - Chronic Pain,Trauma and Grief.Barrie Engel @BarrieEngel
1K Followers 521 Following Campaign & Education of Chronic Embedded UTI aka “Intracellular parasitisation of urothelial cells”, https://t.co/iGyji48ZNQCUTIC @cuticuk
3K Followers 928 Following Chronic Urinary Tract Infection Campaign. Action for better testing, diagnostics and treatment of chronic urinary tract infection.Leah @LRH33
748 Followers 573 Following Campaigning for better testing & treatment of recurrent & chronic UTIs.D @xxxD30xxx
235 Followers 286 FollowingChronic & Recurrent U.. @cUTIrUTIAusNZ
551 Followers 130 Following A patient support group for Australian and NZ suffers of Chronic or Recurrent UTIs. Advocate for recognition and improved treatment of Chronic Embedded UTIs.UTI Global Alliance @GlobalUti
950 Followers 46 Following An international society of clinicians, researchers, and biomedical professionals dedicated to improve the lives of patients that suffer from UTIsJo Marshall 💙 @jomarshall2
3K Followers 2K Following Author:'Managing Anxiety With Mindfulness for Dummies'& 'Mindfulness Workbook For Dummies.' Also speaker,campaigner,cat lady, actor, literature lover, she/her.The UTI Doctor 💙 @DrAFocusMedical
2K Followers 375 Following Portfolio GP with special interest in women’s health, passionate about better care in menopause, UTI and biofilm infectionsEmma @EmmaJac70734987
521 Followers 523 Following Helping to spread awareness about chronic UTI 💛🚽💛 #chronicutiEricka. 🌸 CUTI. ME.. @Aicha2008
749 Followers 2K Following My family are my world. #FreePalestine ME/Cfs ProfessorJamesMaloneLee3 #CystitisUnmasked #CUTI #Chronicuti #cUTiJames Malone-Lee @JamesMaloneLee3
5K Followers 15 Following I have treated and researched lower urinary tract symptoms (LUTS) for 40 years and I have particular interest in chronic UTI (cUTI), IC/BPS/PBS.Jane Currie @janecurrie
2K Followers 3K Following Obstetrician and Fetal Medicine subspecialist in Bristol. UCL Chadburn Lecturer researching UTI in pregnancy, preterm birth. Creator of @fetalmedcastEleanor Kashouris @EKashouris
679 Followers 2K Following Mildred Blaxter Postdoctoral Research Fellow in Sociology working on UTI and AMR @UniofNewcastle she/herProf Jennifer L. Rohn @JennyRohn
14K Followers 2K Following Cellular microbiologist lab head at UCL, novelist, broadcaster, writer, pundit, Editor of https://t.co/NxRlQMeyyy, all things geek-chic https://t.co/5I9t59j2AeSamantha Evans💙 @SamTalksSex
8K Followers 5K Following Sexual health & pleasure expert Founder of Jo Divine https://t.co/zEu9xD3que (w/ @wholesomepaul) featured on Davina McCall Sex, Myths and the Menopause @Channel4Michael Neugent PhD @MikeNeug
1K Followers 1K Following Ruth L. Kirschstein NRSA Postdoctoral Fellow | @NIDDKgov | Women's Health | host-microbiome | metabolic interfaces |@TheDeNiscoLabJill Heidi Osborne �.. @icnjill
3K Followers 1K Following US Bladder & Pelvic Pain Spokesperson. Founder - IC Network - Health care activist - Live Weekly Support Meetings on YT & FBKati A. @KatiA95911810
1 Followers 34 Following♕ kari ♈⚔️ @dehighrated
6K Followers 6K Following There's more time to kill than I am looking for • Revati sun, Ashwini moon, Uttara Phalguni risingDr Issa Aden @dr_fazagah
329 Followers 2K Following Passionate medic sharing clinical expertise and advice to enhance patient outcomes. Dedicated GP focused on preventing harm through primary care.Digital Microbiology @digitalmicrobio
4 Followers 34 Following Rapid, sensitive and accurate profiling of urine and vaginal microbiomes through advanced DNA sequencingUTI Health Alliance @utihealthally
165 Followers 81 Following A patient advocacy resource creating awareness, education & community around UTIsDeirdre Moore @DeirdreMoore373
6 Followers 20 FollowingRaffaella Ciccarelli @raffaella_cicc
474 Followers 239 Following Senior News Producer at @9NewsAus + @ninecomau. Writes about the environment, animals, health and science.Lara @Lara1273
3K Followers 3K Following Former nurse. Spinal cord decompression & disc replacement surgery: #Lhermittes #cervicalmyelopathy #disabled #longcovidRuth @SisterStokes1
459 Followers 965 Following Proud Mom to a beautiful teen🧜Proud NHS Nurse👩⚕️Senior Sister💙Working in Nursing Quality @RWT👍 MBA student at Aston Uni 🎓 Want to be back on the beach...MicroGenDX @microgendx
401 Followers 932 Following Empowering infection diagnostics with DNA precision 🧬 Right Bug Right Drug #chronicinfection #antibioticresistance For technical content: @ma_microgendxSarah Chadwick 💙 @Sar_Chadwick
779 Followers 2K Following Proud Mancunian married to a lovely WestYorkshireman with 2 wonderful teenagers, boxer dogs, 🐰’s &🕊 AMR Programme Manager @WYpartnership & lover of 🧫🧪🔬Rachel Calvert, RGN @Rache_72
140 Followers 393 Following Mum to 3 awesome lads 💙 RGN/Research Sister @ BTHFT. Former Practice Educator @BDCFT. Former Senior Cöntinence Nurse Specialist @ LTHT. All views are my own.katie @Fullenglish222
14 Followers 111 FollowingRobert McConkey @robmcgalway
714 Followers 2K Following Parkrunner, Hiker, Swimmer. (views are my own, not my employers). Retweets are not an endorsement.SFGF @tay_sox_gym_fan
5 Followers 172 FollowingNichole ☮️ @ladystarsfan
161 Followers 3K Following Donut Addict. Mother of tall people. My cat owns me. Crochet is my therapy. Find the Funny. Pitter Patter.libby williams @_libbywilliams
70 Followers 324 FollowingDr Kate Peters @katepeters3
2K Followers 3K Following Leverhulme Early Career Fellow, University of Sussex. Interested in all things dopamine, neuronal ensembles, learning, food, reward, addiction. She/HerSC Nutra @scnutra
454 Followers 777 Following SC Nutra produces a range of Supplements, including Waterfall D-Mannose, UniBac Probiotics, Urine Test Strips, Oregano Oil, D-Ribose, Vegan Vitamin D3 & MoreSue Geyer @SueGeyer21
0 Followers 9 Followingsarah victoria Dufose.. @DufoseeSarah
0 Followers 37 FollowingSilke @S_Sorgenfrei
2 Followers 59 FollowingRachael @rachd711
180 Followers 969 Followingrp @r260708
84 Followers 843 Following his grace is enough, wife, RMT consultant, love learning, love reading, love running, dislike germs, like all things straight, tidy and stationary related.Pam Mains @pammains1
4 Followers 50 FollowingCatherine White @CatherineWh1te
588 Followers 2K Following Trainee Health Psychologist in CAMHS | Health Psychology Champ @divhealthpsych | MH Lived Exp | Interested in BCTs, cancer screening, women’s health 🐶🎵🌈Jo Stephensen @jo_stephensen
3 Followers 37 FollowingCas @nuttingbag
82 Followers 246 Following Ancient and wise. Lapsed folk singer, lover of all things musical.Alicja Długosz-Szare.. @Alicjadsz
0 Followers 11 Followingleon @leon46449753
12 Followers 100 FollowingChukwujekwu Aleke @ChukwujekwuAle1
217 Followers 5K Following I am a self-motivated individual who sustains a high level of focus with an enthusiastic mindset for biomedical science research.Kristian Stærk @KristianStaerk
81 Followers 129 Following MD, Ph.D, Postdoc at Dept. of Clinical Microbiology, Odense University Hospital. Studies urinary tract infection - mainly using an experimental pig model.Piñatas México UK @PinatasMexicoUk
24 Followers 152 Following Handcrafted piñatas for all occasion. DM to order. Delivery all UKMaureen @ICGal28
7 Followers 54 FollowingSavannah @savannah_o1234
24 Followers 93 FollowingClau13 @Clau1376843350
52 Followers 246 FollowingChloe @SecretsInRain
68 Followers 860 FollowingDivaromah @divaromah
14 Followers 2K Followingmartin @MartinTakeHeart
99 Followers 902 Following Stationery, books, adventure.🏳️🌈 Schreiner 2017 UL 2021𝒥𝑜𝒶𝓃𝓃�.. @JoanneMckinlay4
1K Followers 140 Following Founder of Chronic UTI Global Support. Fully Qualified Counsellor specialist area - Chronic Pain,Trauma and Grief.Chris Harding @chrisharding123
4K Followers 469 Following Professor of Urology, Freeman Hospital/Newcastle University. Chair, European Association of Urology @UROWEB female LUTS guideline panel. @BHAHorseracing Doctor.Barrie Engel @BarrieEngel
1K Followers 521 Following Campaign & Education of Chronic Embedded UTI aka “Intracellular parasitisation of urothelial cells”, https://t.co/iGyji48ZNQCUTIC @cuticuk
3K Followers 928 Following Chronic Urinary Tract Infection Campaign. Action for better testing, diagnostics and treatment of chronic urinary tract infection.Leah @LRH33
748 Followers 573 Following Campaigning for better testing & treatment of recurrent & chronic UTIs.Chronic & Recurrent U.. @cUTIrUTIAusNZ
551 Followers 130 Following A patient support group for Australian and NZ suffers of Chronic or Recurrent UTIs. Advocate for recognition and improved treatment of Chronic Embedded UTIs.UTI Global Alliance @GlobalUti
950 Followers 46 Following An international society of clinicians, researchers, and biomedical professionals dedicated to improve the lives of patients that suffer from UTIsJo Marshall 💙 @jomarshall2
3K Followers 2K Following Author:'Managing Anxiety With Mindfulness for Dummies'& 'Mindfulness Workbook For Dummies.' Also speaker,campaigner,cat lady, actor, literature lover, she/her.The UTI Doctor 💙 @DrAFocusMedical
2K Followers 375 Following Portfolio GP with special interest in women’s health, passionate about better care in menopause, UTI and biofilm infectionsEmma @EmmaJac70734987
521 Followers 523 Following Helping to spread awareness about chronic UTI 💛🚽💛 #chronicutiEricka. 🌸 CUTI. ME.. @Aicha2008
749 Followers 2K Following My family are my world. #FreePalestine ME/Cfs ProfessorJamesMaloneLee3 #CystitisUnmasked #CUTI #Chronicuti #cUTiJames Malone-Lee @JamesMaloneLee3
5K Followers 15 Following I have treated and researched lower urinary tract symptoms (LUTS) for 40 years and I have particular interest in chronic UTI (cUTI), IC/BPS/PBS.Jane Currie @janecurrie
2K Followers 3K Following Obstetrician and Fetal Medicine subspecialist in Bristol. UCL Chadburn Lecturer researching UTI in pregnancy, preterm birth. Creator of @fetalmedcastEleanor Kashouris @EKashouris
679 Followers 2K Following Mildred Blaxter Postdoctoral Research Fellow in Sociology working on UTI and AMR @UniofNewcastle she/herProf Jennifer L. Rohn @JennyRohn
14K Followers 2K Following Cellular microbiologist lab head at UCL, novelist, broadcaster, writer, pundit, Editor of https://t.co/NxRlQMeyyy, all things geek-chic https://t.co/5I9t59j2AeDr Agnes Arnold-Forst.. @agnesjuliet
7K Followers 4K Following Writer, Historian, and Chancellor’s Fellow @EdinburghUni | NOSTALGIA out w/ @PicadorBooks April 2024 | Agent @OliAgent | Views own | She/herSamantha Evans💙 @SamTalksSex
8K Followers 5K Following Sexual health & pleasure expert Founder of Jo Divine https://t.co/zEu9xD3que (w/ @wholesomepaul) featured on Davina McCall Sex, Myths and the Menopause @Channel4Helen OConnell AO @OconnellProf
1K Followers 885 Following President USANZ Urologist Surgeon ResearcherNHS NE&Yorks AMR - Ph.. @AntibioticLeeds
6K Followers 2K Following @nhsney Regional Antimicrobial Stewardship Lead. Visiting Prof @LeedsMedHealth @HCAILeeds @AMRatLeeds VP @BSACandJAC @ukcpapin @fip_org tweets = own viewMarjon de Vos @LizScurious
2K Followers 2K Following Cares about tiny things in a larger context - same handle elsewhereDr Joshua Wolrich (BS.. @drjoshuawolrich
13K Followers 305 Following NHS doctor (HAES) & nutritionist (ANutr) • weight stigma, misinformation & social inequity • Sunday Times Bestselling author of 'Food Isn't Medicine' • He/HimTheWalkerLab @WalkerLab_UTH
239 Followers 182 Following The Walker Lab at UTHealth are microbiologists studying the mechanisms bacteria use to cause chronic infections.Wendy Figueroa @wfigueroac3
686 Followers 630 Following Postdoc @jrpenades lab. PhD from @Cambridge_Uni. Studying pathogens evolution: Genomic plasticity, HGT, Polymicrobial interactions 🇲🇽AntibioticResearchUK @1Antruk
7K Followers 5K Following Join the fight to save modern medicine by tackling bacterial antibiotic resistance through research, education and patient support.Lisa Ridgway @RidgwayEJ
335 Followers 235 Following Mum, retired NHS Medical Microbiologist, President of Healthcare Infection Society, views my ownKate Farnell MBE @ButterflyThyro
839 Followers 258 Following Wife,Mother,Cancer Survivor,Patient Advocate,CEO Butterfly Thyroid Trust,Patient Thyroid Cancer Advisor NCCC Freeman .Trustee BAETS ,RSM Oncology MemberMathew Stracy @M_Stracy
1K Followers 703 Following Group leader at the Dunn School of Pathology, University of Oxford. Investigating antibiotic resistance and tolerance.Fardod O'Kelly @FardodOKelly
2K Followers 588 Following Paediatric, Adolescent & Adult Congenital Urologist 🇮🇪 A/Prof UCD & RCSI. EAU Guidelines Panel. RCSI Sports & Exercise Med. Views personal. RT ≠ EndorsementChristopher Blick @Blick_CG
262 Followers 259 Following Consultant Urologist at the Royal Berkshire hospital and the Forbury Clinic. Views my own.Brad Spellberg @BradSpellberg
23K Followers 191 Following CMO Los Angeles General Medical Center, hospitalist, infectious diseases expert, researcherHannah Fearn @hannahfearn
26K Followers 10K Following Journalist, mostly social affairs. In @theipaper @theleaduk @ObserverUK etc. Chat @OhGodWhatNowPod. Ex @independent opinion ed. [email protected]European Association .. @Uroweb
45K Followers 15K Following We are: 18,000+ urologists. We do: Numerous scientific meetings, CME accreditation, scientific publications, research, awareness and more.Ana Garcia Mingo @AnaGarciaMingo
908 Followers 655 Following Humanitarian. Infection consultant. NTDs & OPAT. MSF & Mum. De Madrid al cielo. 🇪🇺🇪🇸🇬🇧🌍Mohamed.Ezz @Mohamed__Ezz__
64 Followers 16 Following Cuti , PBS , IC , Chronic prostatitis , Urethritis , epididymitis ( basically anything u think of and attach a itis in the end )Gus Hamilton @gushamilton
1K Followers 963 Following Infection, bugs, and how to survive them. Academic infection doctor and researcher.Charlie Tee @CharlieTeeDJ
7K Followers 2K Following Award winning 🏆 @bbcradio1 D&B Show Host @totallabel label ❤️🔥 @unitee.events Promo: [email protected] https://t.co/wC1uj59P3ZBSAC @BSACandJAC
10K Followers 788 Following The British Society for Antimicrobial Chemotherapy 'Saving lives by fighting infection'Jashkaran Gadhvi, PhD @jashkaran
248 Followers 571 Following PhD. Cell and Molecular Biology. Immunology. Quizzer. The Quibbler. he/himRichard Williams @RLWillers
492 Followers 821 Following CEO @healome_tx | forged career @HTIbham | passionate about better, faster and sustainable healthcare | love sport 🏉XC🚵🏻🏎🏑🏏🏈Charlie Brookfield @CRBrookfield
151 Followers 433 Following Consultant Medical Microbiologist LUHFT Likes:Microbiology, running, coffee, beer Dislikes:EnterococciTrisha Elliott @Trisha_the_doc
17K Followers 12K Following Interested in life in general and people in particular...Gepan Instill @Gepan_Instill
113 Followers 165 Following Restoring freedom to enjoy life for BPS/IC, OAB, rUTI & radiation cystitis patients. Highlighting life-limiting diseases. Distributed by Purple Orchid Health.MyPainfulBladder. @mypainfulbladdr
90 Followers 100 Following Blogger w Interstitial Cystitis, Lyme Disease, Chronic UTI, Mold & more 🤍Anna ✨ @sparkle_fairy_
956 Followers 1K Following Mainly tweet about how crap my bladder and brain are 🤷🏼♀️Thyroid UK @thyroiduk_org
8K Followers 588 Following We are here to help anyone who has thyroid disease or a related disorder. You are not alone!Ian White @EM__Ian
443 Followers 54 Following Biological Electron Microsopist, colourblind, cynic, misanthrope, curmudgeon and biscuit lover. Views expressed ENTIRELY my own (except quotes and plagiarism😉)Ellen C Scott @EllenCScott
19K Followers 1K Following Acting Digital Content Director at @StylistMagazine. EX Lifestyle and Weekend Editor at @MetroUK and co-creator of @MentallyYrs. she/her.Sami B. @Kangerine
127 Followers 99 Following Software engineer. Opinions are my own. (Or sometimes not even.) Avatar based on the logos from https://t.co/zvkCGDjkG0 and KDE SC 4.Philippe Zimmern @PhilZimmern
122 Followers 27 Following FPMRS at UT Southwestern. Treats incontinence, prolapse, UTi and speaks FrenchProf. Dr. H. Hashim @urohash
3K Followers 389 Following Consultant Urological Surgeon| Prof. of Urology (Hon.)|Director of Urodynamics Unit at world-renowned @BUI_NBT| Assoc. Ed. @BJUICompass & @NeurourolUrodynKimberly Kline 🏔 @KimInGeneva
4K Followers 948 Following Professor @MIMOL_UNIGE. Bacterial development, bacterial communities, and bacterial stealth. Formerly @KimInSingapore 🌴. Tweets are mine.DoctorOstomy @DoctorOstomy
2K Followers 3K Following • Doctor/Patient • Nice • #CivilitySavesLives • Paediatric spinal cord AVM • Here to learn & share experiences for better patient care •Michele Paduano @MichelePaduano
4K Followers 635 Following Just trying to get at the truth. Journalist who believes that the system will protect itself.Ravi Barod @RaviBarodUrol
2K Followers 1K Following Surgeon, Specialist Centre for Kidney Cancer @RoyalFreeNHS @KEVIIHospital | Chair @NCL_ICS Urology Network | @BAUSurology Council | Lecturer @UCLDivofSurgeryHatty Collier @HattyCollier
3K Followers 2K Following Deputy Head of News @theipaper. Ex-@TheSun, @eveningstandard and @guardian Scott Trust.Jocelyn J. Fitzgerald.. @jjfitzgeraldMD
38K Followers 5K Following Urogynecologist and Pelvic Reconstructive Surgeon Gynecologic Economics ⚖️ IG: @jjfitzgeraldMD 💡Opinions are my own and do not reflect my employer.Laura Elliott @TinyWriterLaura
14K Followers 2K Following Writer, maker, chronic illness incubator. Disabled journo. Words in @guardian, @MetroUK, @theipaper, @BylineTimes etc. Rep’d by @PortyLiteraryAize Pellon @aizepellon
519 Followers 880 Following Postdoc at @LabMoyes @KingsCollegeLon #microbiology #immunology #SinCienciaNoHayFuturo Before: @microbiomicsEHU @upvehu @AnguitaLab @CICbioGUNEGrant submitted! Being on the weekend!
Positive tweet! Emotional and happy day today, very grateful to my wonderful supervisor @PrenatalTherapy for supporting me all the way through my PhD with @UCL_IfWH. A proper inspiration! We missed @JamesMaloneLee3 and @catpeejay. Ceremony delayed by Covid but worth the wait. ☀️
@ConfusedBladder Thank you so much for this reply, this is exactly what I was looking for! It might take a bit but we will try to compile a reference sheet or something with that information to pin to the channel for patients to see / access.
Been to a couple of urologists lately. Almost all of them are starting to disregard conventional (urine/Semen) C&S Some of their replies "False negative" " obsolete" " misleading" " misses almost everything" "useless" " for acute inf. Only" Change is coming , there is hope.
Great ALTAR trial presented by Prof @chrisharding123: “Non-antibiotic prophylactic treatment with methenamine hippurate might be appropriate for women with a history of recurrent episodes of urinary tract infections” - full article in The BMJ: bmj.com/content/376/bm… #EBM #EAU22
Really fun to talk UTI in pregnancy at the UCLH fetal medicine teaching. Sad not to be there in person but it ran well as a hybrid. Fab presentation by @NSYL3 about her PhD on machine learning and UTI @PrenatalTherapy @RKhasriya . Thanks for inviting us!
Great diverse talks @MICROBIOLOGYUCL about microbes in hot & cold deserts, a probiotic shift in architecture & rethinking how to better diagnose & treat #UTI in pregnancy from @janecurrie. Thanks to Jo Santini & team for the meeting.
Half of the Rohn Lab enjoying the UCL Division of Medicine’s research away day! @Sanchutha1 @MasetRamon @NVJafari @ClaudioDelFatti
#PresenterSpotlight: @Sanchutha1 is an avid hot cocoa drinker, a fan of flower photography🌻🌹💐🌺, and a Research Fellow at @ucl 🇬🇧. @Sanchutha1's research focuses on a "poorly characterized" cohort of UTI patients, renal transplant recipients (1/2)
I'm especially interested in if this account can be a better resource for UTI researchers, clinicians who diagnose and treat UTIs, and, importantly, patients who suffer from UTIs.@ChronicUTIAus @ConfusedBladder @BladderHealthUK @cuticuk @liveUTIfree
We're focusing a lot right now on drumming up excitement for our upcoming conference, but that’s not the only purpose of this account. What other kinds of content would you like to see from us? I'll try to make it happen :) #UTI #chronicUTI
Since my cancer diagnosis in 2017 (recurrence in 2021) I've had 3 surgeries, 12 organ resections, 2 stoma formations, 2 heated chemo treatments, 7 rounds oral chemo, 6 rounds IV chemo, several PEs & multiple bowel obstructions. I still have cancer but today I started a new job 😊
Due to ill health I have stepped down as mesh lead with immediate effect and will therefore no longer be engaging on social media on this topic 1/2
So proud to say I was about of this interview to raise awareness! The NHS needs to take accountability!
Guidelines are letting down patients with chronic UTI. Thanks to the inews for highlighting this debilitating, life-changing condition. inews.co.uk/inews-lifestyl…
It’s lovely being back on twitter but there is a huge Prof shaped hole. His presence is missed. I still can’t believe he’s gone. It doesn’t feel real. We must keep fighting to be heard because he never once stopped fighting for us. He gave us every part of him. Forever thankful.
Listen to women and their experiences and symptoms. Too many UTI sufferers are fobbed off after “failing” ancient diagnostic tests that the scientific literature has long since shown are flawed. We need more empathy, more research funding —> better tests and treatments
Guidelines are letting down patients with chronic UTI. Thanks to the inews for highlighting this debilitating, life-changing condition. inews.co.uk/inews-lifestyl…
Diagnosis,support & treatment for UTIs & indeed Chronic UTIs were not included in the vision for the woman’s health strategy, despite 50-60% of getting a UTI in their life time. Ineffective diagnosis & treatment can lead to rUTI/cUTI,ruining lives. @lregan7 can you consider this?
Congratulations to Dame Lesley on her historic appointment as Women’s Health Ambassador for England. We are looking forward to working together to improve education for primary care, and to support the work to achieve the ambition of the strategy. @lregan7 #WomensHealth
@ConfusedBladder This pragmatic approach is def required for UTI. Eternally grateful to you for helping to get this out there
Part of the Rohn Lab contingent on our way to @ASMicrobiology #MICROBE2022 in Washington! Come find us if you want to chat about #UTI bugs, #AMR, host/pathogen interactions or human bladder models! @Sanchutha1 @ClaudioDelFatti
Impressive results from @GarethLuTheryn using ultrasound and bubbles to disrupt biofilms and bacteria. We cannot wait to see more of his research and talk about implications for practice.
Spending the evening presenting some of our @AMR_Research @uDRIP_Group work at #LGBTQSTEMUCL My first, but hopefully not last conference specifically highlighting the work of LGBTQ+ colleagues in STEM
Mild Cystitis is not a diagnosis! Don’t trivialise! Rates of recurrence are high; 25-35% of patients have symptomatic or microbiological recurrence following standard antibiotic treatment & up to 70% experience another UTI within a year. Thks @theipaper inews.co.uk/news/health/ch…