DEBRA UK @CharityDEBRA
DEBRA is the national charity for people living with the extremely painful, genetic skin blistering condition, #EpidermolysisBullosa (EB). Help #StopThePain. debra.org.uk Bracknell, England Joined July 2011-
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This #NationalDNADay, meet our researcher, Dr López-Manzaneda, who is using cutting edge gene editing technology to create a genetic patch to fix errors in the RDEB gene. Read his blog here! 👇 debra.org.uk/blog/improving…
A great day with @DEBRAgolfer at the beautiful @StGeorgesHillGC raising important funds for @CharityDEBRA🦋 Can’t wait to go back ⛳️🤞🏻 debra.org.uk 🦋
📢 It's that time again! Please spare a minute to nominate DEBRA UK and we could win a £5,000 donation towards our #BeTheDifferenceForEB appeal 💙 👉 Nominate here (search for 1084958 DEBRA): bit.ly/41B3E6q Thank you for your support 💙
Us every time we see our charities collaborating ⬇️ @CharityDEBRA and @CRUKScotland are partnering to help increase understanding around the progression of skin cancer in those living with recessive dystrophic epidermolysis bullosa.
Us every time we see our charities collaborating ⬇️ @CharityDEBRA and @CRUKScotland are partnering to help increase understanding around the progression of skin cancer in those living with recessive dystrophic epidermolysis bullosa. https://t.co/uvEwlxjBZU
🔬 Research news! 🔬 We have launched a new research partnership with @CRUK_SI to tackle early onset cancer in patients with recessive dystrophic epidermolysis bullosa (RDEB). Read more: bit.ly/3xJyZuc @CRUKScotland @CR_UK #CancerResearch #EpidermolysisBullosa
🔬 Research news! 🔬 We have launched a new research partnership with @CRUK_SI to tackle early onset cancer in patients with recessive dystrophic epidermolysis bullosa (RDEB). Read more: bit.ly/3xJyZuc @CRUKScotland @CR_UK #CancerResearch #EpidermolysisBullosa
It was a pleasure to attend the @LifeARC Translational Science Summit today. Our Vice-President, Graeme Souness, CEO Tony Byrne, Director of Research, Sagair Hussain and Ambassador Lucy Beall Lott spoke about life with EB, and the future of EB treatments. #LATSS2024
Extremely powerful panel discussion from @CharityDEBRA team about Epidermolysis Bullosa powered by lived experience. Much to consider… #LATSS2024 @lifearc1
A powerful and moving session on the rare condition epidermolysis bullosa with @CharityDEBRA vice-president, Graeme Souness, sharing why he is working so hard to raise awareness, and from Lucy on the reality of living with the condition. #LATSS2024
.@CharityDEBRA leads a heartfelt discussion on the realities of the rare disease #EpidermolysisBullosa and the importance of patient voice at the @LifeARC Translational Science Summit. #LATSS2024
Loch Lomond Golf Club. What a place. Excellent day at the annual @CharityDEBRA charity golf day 🤩⛳️ #charity #golf #lochlomond #visitscotland #scottishgolf #golfday
Thank you to everyone who joined us at our Loch Lomond charity golf day today ⛳️ 🦋
Thank you to everyone who joined us at our Loch Lomond charity golf day today ⛳️ 🦋
My favourite day of the London calendar. Best of luck to everyone running the London marathon this morning! I’ll be at mile 13/22 supporting #TeamDEBRA @CharityDEBRA and @GOSHCharity - donate to a great cause today if you can! youtu.be/3IEE14MRXyA?si… (h/t @SelinaWray)
wishing the best of British to all the heroes running for @CharityDEBRA today. I think you're all amazing!! #LondonMarathon 👏👏👏🏅🏅🏅
We’re here at Shadwell cheering on our #TeamDEBRA @LondonMarathon runners! 🏃 👏 #LondonMarathon #LondonMarathon2024
It's not too late to help our runner's fundraise and support three amazing charities: @CharityDEBRA, @macmillancancer, @SnowdonTrust. Help our runners here: demolition-nfdc.com/news/industry/…
With the London Marathon just a few days away, show your support by donating to @CharityDEBRA who provide care & support to improve the quality of life for people living with EB - a painful genetic skin condition. 🔗 ow.ly/Rl8C50Rh7X0
This Sunday, 17 dedicated individuals will be donning their running shoes to conquer the renowned 26.2 mile @LondonMarathon route, proudly representing #TeamDEBRA. Share your support in the comments below! 👇 #LondonMarathon debra.org.uk/news/meet-our-…
Great commentary article highlighting @EpiCENTR_ICH's recent @MolTherapy paper on airway epidermolysis bullosa 🙏 @CharityDEBRA @GOSHCharity @UCLchildhealth
Great commentary article highlighting @EpiCENTR_ICH's recent @MolTherapy paper on airway epidermolysis bullosa 🙏 @CharityDEBRA @GOSHCharity @UCLchildhealth
Join our 80 Days Global virtual challenge and #BeTheDifferenceForEB! 🌍 This challenge is all about teamwork; with each person who joins our team, we'll cover more ground and raise even more funds! You can walk, jog, run or hike. 🙌🚶 Sign up today: bit.ly/4aEyQqG
Exciting update! 🌟 We’ve just launched a three-year partnership with three fantastic charities, hand packed by our dedicated staff across our company. @AirAmbulancesUK @CharityDEBRA Together For Short Lives Join us in making a difference!
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@CRUK_SI @CharityDEBRA Such important work. Thank you. 💙
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done!
📢 It's that time again! Please spare a minute to nominate DEBRA UK and we could win a £5,000 donation towards our #BeTheDifferenceForEB appeal 💙 👉 Nominate here (search for 1084958 DEBRA): bit.ly/41B3E6q Thank you for your support 💙
Us every time we see our charities collaborating ⬇️ @CharityDEBRA and @CRUKScotland are partnering to help increase understanding around the progression of skin cancer in those living with recessive dystrophic epidermolysis bullosa.
🔬 Research news! 🔬 We have launched a new research partnership with @CRUK_SI to tackle early onset cancer in patients with recessive dystrophic epidermolysis bullosa (RDEB). Read more: bit.ly/3xJyZuc @CRUKScotland @CR_UK #CancerResearch #EpidermolysisBullosa
🤝We have just launched a 5-year partnership with @CharityDEBRA to develop pre-clinical cancer models that will help increase understanding around the progression of skin cancer in patients living with recessive dystrophic epidermolysis bullosa (RDEB) debra.org.uk/news/debra-uk-…
Extremely powerful panel discussion from @CharityDEBRA team about Epidermolysis Bullosa powered by lived experience. Much to consider… #LATSS2024 @lifearc1
A powerful and moving session on the rare condition epidermolysis bullosa with @CharityDEBRA vice-president, Graeme Souness, sharing why he is working so hard to raise awareness, and from Lucy on the reality of living with the condition. #LATSS2024
If you spot our lovely team members @louisewren and @EmilyHeathward at the Summit do say hello! #LATSS2024
.@CharityDEBRA leads a heartfelt discussion on the realities of the rare disease #EpidermolysisBullosa and the importance of patient voice at the @LifeARC Translational Science Summit. #LATSS2024
Loch Lomond Golf Club. What a place. Excellent day at the annual @CharityDEBRA charity golf day 🤩⛳️ #charity #golf #lochlomond #visitscotland #scottishgolf #golfday
@R0Poem @CharityDEBRA Yes! Please. They have a fabulous shop on Maryhill Road ! You must go there - wonderful cause, great shop with lovely friendly staff 💚❤️
Thanks @CharityDEBRA …please support this wonderful charity ♥️
@CharityDEBRA @LondonMarathon Go team @CharityDEBRA 🤞👏🏻👏🏻🦋
My favourite day of the London calendar. Best of luck to everyone running the London marathon this morning! I’ll be at mile 13/22 supporting #TeamDEBRA @CharityDEBRA and @GOSHCharity - donate to a great cause today if you can! youtu.be/3IEE14MRXyA?si… (h/t @SelinaWray)
wishing the best of British to all the heroes running for @CharityDEBRA today. I think you're all amazing!! #LondonMarathon 👏👏👏🏅🏅🏅
With the London Marathon just a few days away, show your support by donating to @CharityDEBRA who provide care & support to improve the quality of life for people living with EB - a painful genetic skin condition. 🔗 ow.ly/Rl8C50Rh7X0
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