Alpha-1 Foundation @AlphaFriend

This Father’s Day, celebrate the dads and father figures you cherish while making an impact for the Alpha-1 community. A donation to A1F helps advance critical research and supports individuals and families affected by Alpha-1 Antitrypsin Deficiency (Alpha-1). Add a personal touch by sending a customized e-card with your gift: alpha1.org/donate

Learn and engage with the Alpha-1 community at the Boise A1F Education Day on Sunday, August 30th! This event offers valuable information from experts, opportunities to ask questions, and a chance to connect with others affected by Alpha-1. Whether you're an Alpha, caregiver, or healthcare professional, you'll leave informed and empowered. Register today: alpha1.org/event/boise-id…

Advancing new treatments for Alpha-1 requires partnership, participation, and research. The Therapeutic Development Network (TDN) helps connect the Alpha-1 community with clinical research opportunities while supporting the development of promising therapies. Every study and every participant helps move the field forward. Learn more about the TDN and its impact on the future of Alpha-1 research: alpha1.org/therapeutic-de…

The 2026 A1F National Conference brought together the Alpha-1 community for a weekend filled with education, inspiration, and hope. From expert-led sessions and the latest research updates to meaningful conversations and memorable events, attendees strengthened connections, shared experiences, and learned about the exciting progress being made across the Alpha-1 landscape. Read the full conference recap and relive the highlights: alpha1.org/2026-alpha-1-f…

Behind every statistic is a person, a family, and a story. The Alpha-1 Research Registry has found that 85% of participants report being affected by either lung or liver disease. By joining the Alpha-1 Research Registry, you can help researchers gain valuable insights that support future discoveries and advancements in Alpha-1 care and treatment. Learn more: alpha1.org/join-the-alpha…

New research continues to move the Alpha-1 community forward. A1F’s May 2026 PubMed Article Summary features the latest published studies and scientific updates focused on Alpha-1 detection, treatment, care, and research advancements. Stay informed on the discoveries and progress helping shape the future of Alpha-1: alpha1.org/may-2026-pubme…

The Elegance in Purple Dinner at the 2026 A1F National Conference was a beautiful evening celebrating the strength and unity of the Alpha-1 community. During a moving presentation, A1F President & CEO Scott Santarella recognized the shared impact of the Alpha-1 Foundation, AlphaNet, and AlphaDetect, highlighting the power of working together for those affected by Alpha-1. As attendees lit up the room, the evening became a powerful reminder that this community stands united in hope, advocacy, research, and support. #A1FNC26

keyboard_arrow_left Previous keyboard_arrow_right Next

The 2026 A1F National Conference is bringing together leading experts and the Alpha-1 community for impactful sessions focused on the future of research, detection, and clinical advancement. Attendees are hearing from experts during “The Future of Alpha-1 Detection” and an engaging Alpha-1 Research Panel, while A1F Scientific Director Dr. Wilson is helping break down the research process during “Research & Clinical Trials 101.” These important conversations are highlighting the progress being made and the future of care and treatment. #A1FNC26

keyboard_arrow_left Previous keyboard_arrow_right Next

Tonight’s Piano Bar Glam Dinner at the 2026 A1F National Conference brought the perfect mix of music, laughter, dancing, and unforgettable memories! From glamorous looks to sing-alongs around the piano, the Alpha-1 community showed up ready to celebrate, connect, and enjoy an incredible evening together. 🎹 #A1FNC26

keyboard_arrow_left Previous keyboard_arrow_right Next

The 2026 A1F National Conference kicked off with inspiring opening remarks from A1F President & CEO Scott Santarella, followed by the “Alpha-1 Empowerment Hour,” featuring real Alphas and members of the Fred C. Walsh Speaker Bureau sharing their stories and experiences. Attendees also learned more about the Alpha-1 Research Registry and Therapeutic Development Network (TDN), and the important role these programs play in advancing research and future therapies for the Alpha-1 community. #A1FNC26

keyboard_arrow_left Previous keyboard_arrow_right Next

The First Time Attendee Lunch at the 2026 A1F National Conference brought together new members of the Alpha-1 community for conversation, connection, and a warm welcome to the event! From meeting others with shared experiences to learning more about the resources and support available through A1F, this special gathering helped set the tone for a meaningful and engaging conference experience. 💜 #A1FNC26

The Emerging Therapies in Alpha-1 presentations at the 2026 A1F National Conference #A1FNC26 will highlight groundbreaking research and innovative treatments that are shaping the future of Alpha-1 care and bringing us closer to a cure. These sessions offer a unique opportunity to hear directly from experts about the latest therapeutic developments and what’s ahead for the Alpha-1 community. Please note that these presentations will not be available on demand after the conference, making live attendance especially important. Learn more and register: alpha1.org/national-confe…

The Platinum Sponsor Presentations at the 2026 A1F National Conference #A1FNC26 offer attendees the opportunity to hear directly from industry leaders about the latest advancements, research, and innovations shaping the future of Alpha-1 care. To tune in, register as a virtual attendee today: alpha1.org/national-confe…

The 2026 Bettina B. Irvine Invitational brought supporters together once again in support of the Alpha-1 community, helping raise critical funds for research, education, and patient programs. Thank you to everyone who helped make this impactful event possible. Read more: alpha1.org/bettina-b-irvi…

Dr. Kohli will present “Alpha-1 Pediatric Liver 101” at the 2026 A1F National Conference #A1FNC26, offering valuable insight into pediatric liver disease and its impact on children with Alpha-1. Virtual registration is still available, allowing attendees to learn from leading experts and stay connected with the Alpha-1 community from anywhere. Register today: alpha1.org/national-confe…

The annual A1F Grant Awards Reception brought together more than 200 members of the Alpha-1 community during the ATS International Conference in Orlando to celebrate the 22 in-cycle grants awarded by A1F, totaling $3.75 million. The evening recognized the researchers, clinicians, and advocates whose work continues to advance Alpha-1 research and bring hope for better treatments and a cure. Read more about the event and this year’s grantees: alpha1.org/a1f-2026-grant…

Thank you to our Platinum Sponsors for the 2026 A1F National Conference #A1FNC26! Their support helps make this event possible, bringing together patients, families, researchers, and healthcare professionals to learn and connect. We are grateful for their continued commitment to the Alpha-1 community and to advancing research and care. For more information about the conference, please visit: alpha1.org/national-confe…

Today, we pause to remember those who gave their lives in service to our nation. We honor their courage and recognize the legacy they leave behind. 🇺🇲 #MemorialDay