Adult Preemie Advocacy Network @Adultpreemies
We are a group of like minded adults born prematurely that strive to connect with and advocate for other adults born early. adultpreemies.com Joined January 2021-
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Likes106
We co-produced this survey with @ChiesiGroup for those born prematurely living with asthma and/or Chronic Obstructive Pulmonary Disease (COPD). Open until the end of June for preemies in the UK, USA, Germany, France and Spain adultpreemies.com/research-3/ #asthma #COPD #adultpreemies
Thank you @l_prem_88 for sharing - you spoke so eloquently about what is needed going forwards: - ⬆️Awareness that prematurity is a chronic condition & should be part of adult history taking - ⬆️Research into longer term impact & use of routine data @Adultpreemies
Thank you @l_prem_88 for sharing - you spoke so eloquently about what is needed going forwards: - ⬆️Awareness that prematurity is a chronic condition & should be part of adult history taking - ⬆️Research into longer term impact & use of routine data @Adultpreemies https://t.co/aVvbo3bFEL
House of Lords individual and @Adultpreemies submissions done. Unable to cover all points but hope we've raised things to consider.🤞💜
💜 1 year since the Adult Preemie Advocacy Network @Adultpreemies became a Community Interest Company. Please consider visiting our website and clicking the Buy Me A Coffee button to support our work. Preterm is for life, not just for NICU! #premlivedexperience #prematurity
Free to download: Low Birth Weight Babies and Disability nap.nationalacademies.org/catalog/27375/…
Thank you @NeonatalSociety! Epigenetic scores are DNA methylation-based surrogates for circulating proteins. Low birth gestation is associated with 43 EpiScores in a set enriched for inflammatory proteins, providing new insights into immune dysregulation in preterm infants.
Thank you @NeonatalSociety! Epigenetic scores are DNA methylation-based surrogates for circulating proteins. Low birth gestation is associated with 43 EpiScores in a set enriched for inflammatory proteins, providing new insights into immune dysregulation in preterm infants.
ATTENTION parents and preemies! @TheHouseofLords are holding a committee looking into preterm birth, we will be submitting evidence at the end of March and want to hear your voices too! adultpreemies.com/news/ #prematurebirth #adultpreemies #NICU #pretermbirth #borntoosoon
Always happy to speak to @healiowomen and Rose Weldon about my favorite topic! Preterm Birth Outcomes & the importance of mitigating risk. @Adultpreemies @VUNursing
Always happy to speak to @healiowomen and Rose Weldon about my favorite topic! Preterm Birth Outcomes & the importance of mitigating risk. @Adultpreemies @VUNursing
Nev has just supported us via @buymeacoffee! 🎉 You can buy us a coffee here or find the button on our website — buymeacoffee.com/adultpreemies/…
Check out our new blog post, click to find out what ChatGPT/AI knows about life after premature birth! adultpreemies.com/2024/01/17/tal…
*Update* Check out a new research project we've added to the website, it is being run by Polly who's a preemie herself! Open to those born prematurely who live in any country and have had support in the past or are currently seeing a counsellor adultpreemies.com/research-3/
Happy 3 year anniversary @Adultpreemies So much to be proud of... and so much more to do!
Read about Mental health, pain and tiredness in adults born very preterm or with very low birthweight - Hollund @WolkeDieter et al - 2024 - Acta Paediatrica - Wiley Online Library onlinelibrary.wiley.com/doi/10.1111/ap…
Relevant to people born preterm! A question worth adding to parent questionnaires? @Adultpreemies
Relevant to people born preterm! A question worth adding to parent questionnaires? @Adultpreemies
Today is International Day of Persons with Disabilities. Did you know that prematurity is the leading cause of disabilities in children? That is why today is an important day for all of us at CPBF. Share your stories with us.
Are you interested in how touch and close relationships throughout our lives are impacted by premature birth? Get in touch with Emily to share your experiences #adultpreemies #lifelongimpact
Take a look at some of the new and exciting research opportunities you can get involved with adultpreemies.com/research-3/
Delighted that the @Adultpreemies website has reached 2000 visitors for this year. Double 2022 with 4 weeks to go! Thank you and please keep sharing. 😊💜 @l_prem_88 @julietteprem28 #adultpreemie #adultbornprem #adultbornpreterm #preemie
We marked #WorldPrematurityDay with a powerful lecture from Lauren Ingledow, born @ 26 weeks (430g) in 1988, founder @Adultpreemies. *crucial to hear the life experiences of NICU graduates* A time to 🙏all research participants, helping us work out the basis of resilience.
❗️SURVEY CLOSING TODAY❗️ Last chance to have your say as this survey must close TODAY. Get in quick....only takes about 15mins to complete Have your voice heard & contribute to improving outcomes for the tiniest babies Survey Link: bit.ly/45Qjn4h #TogetherWeCan
Dr C (Rachel) 💙 @DrColeFletch
2K Followers 3K Following Psych lecturer, #preemie mum & conscientious disruptor. #BAPM family advocacy & support lead. #Neonatal #FICare missionary! My soul is Greek & purple.
Neena Modi @NeenaModi1
8K Followers 758 Following Professor of Neonatal Medicine, Imperial College London; Past-President BMA, MWF, RCPCH; Neonatal Society; President-Elect EAPM; My views #HealthIsNotACommodity
Cheryl Battersby @DrCBattersby
5K Followers 3K Following NIHR Clinician Scientist Imperial College| Neonatologist| Whole Population Data linkage preterm & surgical babies | @neowonder20 | @BAPM_Official Hon Secretary
Dr Afif EL Khuffash @afif_elKhuffash
6K Followers 2K Following Neonatologist | Lactation Consultant | Professor of Paediatrics | Digital Artist | Podcast Host
Nick Embleton 🦋�.. @NeoResearch_Net
5K Followers 2K Following #NEC #Breastmilk #Babyloss https://t.co/bEsaJA9NKO personal tweets #MDS stem cell transplant https://t.co/qTJNvbh81z
EFCNI @EFCNIwecare
4K Followers 2K Following European Foundation for the Care of Newborn Infants; founder of @GLANCE_network Imprint: https://t.co/zXmFYwkPQn Netiquette: https://t.co/vb6VW7oKfK
Souvik Mitra @souvik_neo
4K Followers 2K Following Neonatologist @BCWomensHosp; Associate Prof @UBCPediatrics; Clinician-Scientist @BCCHresearch |Interests: Preterm hemodynamics |Assoc. Editor @CochraneNeonate
Charles C Roehr @ccroehr
4K Followers 939 Following Neonatologist, Clinical Scientist, Irish-German, living and working in UK, immediate past-president ESPR, dedicated European. Opinions are my own
Rebecca Chilvers 💙 @Neonatalpsych
3K Followers 3K Following Consultant Clinical Psychologist working in neonatal intensive care, occasional writer, photographer and musician. Mother of three boys. Views my own.
Fabiana Bacchini (she.. @FabianaBacchini
2K Followers 4K Following Executive Director @canadianpreemie | Author -From Surviving to Thriving-A Mother's Journey | NICU | Preterm Birth | Cerebral Palsy | 🇨🇦 🇧🇷| Love 🎥
Ruth Butterworth @REButterworth
4K Followers 3K Following Clinical Psychologist and mum with a passion for parent, infant, family and community mental health; compassion & social justice. Relationships matter! She/her
Adam Lewandowski @DrAJLewandowski
1K Followers 508 Following Deputy Chief Scientist for the UK Biobank and Associate Professor in Cardiovascular Science at Oxford University 👨🏻🏫👨🏻🔬👨🏻💻🌈
Ailie Hodgson @AilieHodgson
643 Followers 1K Following Mum of 3. Northern Neonatal Care Coordinator. Occupational Therapist by background. All views are my own.
ESPR @ESPR_ESN
7K Followers 4K Following The European Society for Paediatric Research (ESPR) develops & applies research to improve newborn & child health. ✉ Sign up to our Newsletter: https://t.co/w2EtCBDP65
NW Neonatal ODN @NWNeonatalODN
4K Followers 857 Following North West Neonatal Operational Delivery Network. Working together to provide the highest standard of care for babies and their families.
Chris Gale @DrCGale
4K Followers 2K Following Professor of Neonatal Medicine, Imperial College London & Chelsea and Westminster Hospital, improving neonatal care through clinical trials, for #neoEBM
James P Boardman @JamesPBoardman
2K Followers 1K Following Prof of Neonatal Medicine, Edinburgh. Past president @NeonatalSociety. Interested in the brain. Views own.
Ravi Mangal Patel @ravimpatelmd
4K Followers 890 Following Neonatologist, researcher: NEC, transfusion, caffeine, #preemie survival. Passionate about #neoEBM #QI #preventNEC. Advisor @NECSociety, Chair @EBNEO Tweets=own
Ben Courchia MD @drnicu
3K Followers 1K Following Director of Neonatal Innovation and BPD at @Envision_Cares and @HCAhealthcare • Co-host of @nicupodcast • Adj Faculty @NSUMDCollege • 🇫🇷🇺🇸 • views = my own
Maggie Frej @malgotoja
1K Followers 1K Following Mum, Clinical Fellow in Simulation @edinburghUni, Paeds Reg, digital artist, neonatology, #FiCare #TiC 🌱BSc(Hons) MBChB MRCPCH
Calum Roberts @calumtheroberts
1K Followers 266 Following Neonatologist and researcher at @MonashChildrens and @SCSMonash, Scottish Melburnian.
Get Evidenced-Neo @doctorvito
8 Followers 95 Following I am a passionate and resilient Clinical Neuroscientist specialized in neonatal neurophysiology and savvy user of eye tracking methods and fNIRS.
Annex DaGoose @AnnexDagoose
2 Followers 74 Following
Nevil Skelton @NevilSkelton
1 Followers 2 Following
Sam @samflem_
145 Followers 449 Following
Angela Marsh @AngelaMarshCP
515 Followers 2K Following Neonatal Consultant Clinical Psychologist. Passionate about promoting a Psychologically supportive, compassionate Neonatal environment. All opinions are my own.
Natalie May @Natalie25459180
64 Followers 297 Following Doctor: East Midlands Paediatrics, Mother & slightly rusty undergraduate philosopher.
emma_lewis @emmalew84262217
89 Followers 245 Following BSc Psychology & Child Development * Stage 1 Health Psychology Trainee * Topics of Interest * Neonatal * NICU * Child Development * Mental Health * Wellbeing *
PRENCOG Study @prencog
31 Followers 89 Following 4 interlinked studies: We want to discover how and why premature birth affects the developing brain. https://t.co/SP4dOzFljE
Catriona Ogilvy @catriona_ogilvy
6K Followers 7K Following Founder @_SmallestThings Charity | Advocacy | Political Campaigns • Children’s Occupational Therapist | SEND | Education
Kirsty Irvine @KirstyTrapper
88 Followers 268 Following Chair, Advisory Group for Data (NHS England), Solicitor (non-practising), views my own but retweets don’t necess. signify endorsement
Preemie @PreemieSensor
761 Followers 854 Following #Preemie performs automatic and reliable human milk analyses and personalises #MilkFortification for #preterm and low birth weight infants.
Sarah Fenton @sarahemfenton1
759 Followers 1K Following Neonatal Pharmacist, Employment Based PhD Candidate @infantcentre. Preterm nutrition & Healthcare Informatics. Mum to 🧑🏻🦰👩🏻 🧒🏻 🐶
oddly_serendipitous @oddlyserene1
1 Followers 68 Following
Marianne Spicer @Mariann49211228
138 Followers 186 Following
Lisa Leppard @LisaLeppard4
218 Followers 314 Following Long time neonatal nurse. Lead care coordinator Love being a mum and so proud of my 2 beautiful kids. All thoughts are my own
House of Lords Preter.. @HLPretermBirth
293 Followers 158 Following News and information from the House of Lords Preterm Birth Committee. Produced by staff on behalf of the committee.
BASE Trial @BASEtrial
142 Followers 177 Following BASE - looking at the use of sodium bicarbonate for metabolic acidosis in premature babies. Research study funded by @NIHR and coordinated by @NPEU_CTU
Burak Salgin @BurakSalginQMUL
312 Followers 1K Following Neonatologist and programme director to MSc Advanced Neonatal Practice at Queen Mary University of London.
North East together @NorthEtogether
540 Followers 718 Following Together we are stronger- A user led regional network for people with lived experience of mental health difficulties
Matt Bagley @BagleySports
740 Followers 716 Following Former sports broadcaster & podcaster. Now a programmer. I tweet a lot about my favorite teams (Raiders, Timbers & Thorns, #USMNT) and the sports radio biz.
Aisling @aisling2010
53 Followers 457 Following Open-minded and open-hearted ♡ We were raised to see life as for the taking if we can ♡
Lauren Dhugga @LaurenDhugga
162 Followers 294 Following Neonatal simulation & transport fellow 👶🏽🚑 RCPCH LTFT rep 🩺 mum 👩🏽🦱👧🏼👶🏽 proud geordie ⚽️🖤🤍
James Webbe @COIN_neoepoch
701 Followers 1K Following
Susan R Hintz MD @SusanHintzMD
1K Followers 350 Following Neonatologist and perinatal epidemiologist, working to better understand and improve outcomes for high-risk infants, complex fetal patients, and their families.
Shenell Reynolds @shenellreynolds
20 Followers 108 Following NICU fellow committed to addressing the health disparities that prevent babies who look like me from reaching their full potential
Dr. Sobana Wijeakumar.. @DrSWijeakumar
650 Followers 1K Following Assistant Professor @UniofNottingham🇱🇰🇴🇲🏴🇺🇸🏴| @LeverhulmeTrust Research Fellow | PI on @neurosyncP | Neurocognitive development
Ethan5e @TechieEngineer5
251 Followers 3K Following ADHD | Gay | INFJ | Inquisitive | Techie | 5ft4in/163 cm preterm adult guy that loves cookies, big 🧸 hugs, anime/manga...Basically, 100% certified geeky nerd🧐
Dr Gemma Pearce @GemmaSPearce
4K Followers 3K Following Associate Professor | Lead for @hEDStogether research | UK lead for @CoCreatingWell projects | #HealthPsychology #Migraine #EDS #POTS | Views own
Elizabeth Day @Lizday67
106 Followers 594 Following Mother to 4, Neonatal nurse, infant feeding lead, love research, Scouting, DofE leader, international host parent & Volunteer YHA Hostel Manager.
Fabiola Suano @FabiolaSuano
214 Followers 738 Following Paediatrician. Researcher and Professor of Pediatric Nutrition, Sao Paulo, Brazil. @unifesp @fmabcoficial 🇧🇷🌎🚴🏻♀️🧪🩺
Joanna Bradshaw @JoannaB25382704
16 Followers 83 Following
Cath @cath_mcclenn
2K Followers 2K Following Director for NHS Improving Me programme. Passionate about enjoying life and improving lives. All views my own.
Lizzy Bonney @lizzybonney
685 Followers 725 Following Consultant Obstetrician with special interest in the prediction and prevention of preterm birth
♠️Doc Jen♠️ @jennylehman121
2K Followers 5K Following Lvl 35 (she/her) 🏳️🌈✖️5/6/14 7/7/14 9/15/14 9/15/15✖️ ➗7/1/17 10/20/18➗ 🟰10/31/21🟰 ➖8/11/23 8/12/23➖Profile pic: @niwazekisho
Annemarie Lodder @Ampel70
139 Followers 335 Following Research Fellow Imperial College; Dutch living in UK, triathlete. Interests: Psychology- Parenting- Stigma - Mental Health- child development
Steven Voy @steven_voy
114 Followers 304 Following Scottish 🏴 | Consultant Psychiatrist👨⚕️| Runner 🏃♂️
Mark Watt @MarkWatt85
55 Followers 857 Following Dad, husband, project manager & Psychology graduate. General interest in occupational psychology, stress & parental pre-term (including NICU) birth experiences.
Hilary Richardson @hi.. @hil_richardson
820 Followers 954 Following Lecturer (Asst. Professor) at the University of Edinburgh 🏴. Developmental cognitive neuroscientist. Mom. Michigander ✋. she/her(s).
Dr Mel Wiseman 💙�.. @meljwiseman
858 Followers 1K Following Clinical Psychologist in Neonatal | CYP #Autism / #ADHD | Health | Mind-Body | Neurodivergent | Compassion | Solidarity | Thriving | LGBTQ+ | 😷 | own views
Colm Darby @DarbyColm
333 Followers 306 Following
Sumaiya Cassim @sumaiyamc
24 Followers 121 Following
Narasimha Rao @Polythenia
2K Followers 3K Following Neonatologist @UHNM_NHS. Training Program Director @wmpaeds Here to learn & share.
kate jones @katejones80
254 Followers 516 Following Neonatal SALT and IBCLC 💙 Speech therapy lead-KSS Neonatal ODN 💙Brighton 💙 Promoting positive feeding experiences & early communication. All view are my own.
Neena Modi @NeenaModi1
8K Followers 758 Following Professor of Neonatal Medicine, Imperial College London; Past-President BMA, MWF, RCPCH; Neonatal Society; President-Elect EAPM; My views #HealthIsNotACommodity
Cheryl Battersby @DrCBattersby
5K Followers 3K Following NIHR Clinician Scientist Imperial College| Neonatologist| Whole Population Data linkage preterm & surgical babies | @neowonder20 | @BAPM_Official Hon Secretary
Charles C Roehr @ccroehr
4K Followers 939 Following Neonatologist, Clinical Scientist, Irish-German, living and working in UK, immediate past-president ESPR, dedicated European. Opinions are my own
Rebecca Chilvers 💙 @Neonatalpsych
3K Followers 3K Following Consultant Clinical Psychologist working in neonatal intensive care, occasional writer, photographer and musician. Mother of three boys. Views my own.
BAPM @BAPM_Official
9K Followers 721 Following Join a growing community dedicated to shaping the delivery and improving the standard of perinatal care in the UK. https://t.co/XJfBq7bxy5
Adam Lewandowski @DrAJLewandowski
1K Followers 508 Following Deputy Chief Scientist for the UK Biobank and Associate Professor in Cardiovascular Science at Oxford University 👨🏻🏫👨🏻🔬👨🏻💻🌈
ESPR @ESPR_ESN
7K Followers 4K Following The European Society for Paediatric Research (ESPR) develops & applies research to improve newborn & child health. ✉ Sign up to our Newsletter: https://t.co/w2EtCBDP65
NW Neonatal ODN @NWNeonatalODN
4K Followers 857 Following North West Neonatal Operational Delivery Network. Working together to provide the highest standard of care for babies and their families.
Catriona Ogilvy @catriona_ogilvy
6K Followers 7K Following Founder @_SmallestThings Charity | Advocacy | Political Campaigns • Children’s Occupational Therapist | SEND | Education
Canadian Premature Ba.. @canadianpreemie
2K Followers 2K Following Our vision is a brighter future for all premature babies and their families. We empower families of premature babies, through support and education.
House of Lords Preter.. @HLPretermBirth
293 Followers 158 Following News and information from the House of Lords Preterm Birth Committee. Produced by staff on behalf of the committee.
EnRICH Research @EnRICHResearch
181 Followers 72 Following Research lab focused on enhancing the quality and usefulness of clinical research in child health to improve health outcomes.
Melinda Cruz Turner @melinda_cruz
2K Followers 789 Following NICU mum & Parent Representative @trialscentre & @alphacollab 🌏 | Also find me at @niculived 🌾 & Easy Family Co 🌱🌞
Sarah Tandy @SarahTandyOT
453 Followers 792 Following Neonatal Network Occupational Therapist @NWNeonatalODN Clinical @PrestonNICU Special Interests #DevelopmentalCare #FiCare #Sensory #CoOccupation views my own
Becky Moss @BeckMoss
112 Followers 153 Following Thrift shopper, health and social care qualitative researcher, mum of two grown up sons (not necessarily in that order)
Lauren Ingledow @l_prem_88
177 Followers 450 Following Adult born prem (26 weeks gestation, 430g) Co-founder Adult Preemie Advocacy Network Adult Preemie Network @Adultpreemies
NNRD-UK @NNRDbase
3K Followers 2K Following UK National Neonatal Research Database (NNRD): neonatal units collaborating to benefit babies via real-world data via @HDR_UK Gateway & Imperial College London
Will Lammons @william_lammons
141 Followers 346 Following Public Involvement in Research, Visual Culture, Caffeine
Lisa Juniper @MrsLisaJ
271 Followers 645 Following Proud Mum of 2 (one born 25/40) | Developmental trauma/SEND advocate | deaf aware | NWNeonatalODN PAG | SENDAC volunteer | School Governor | Grateful 💜
National Neonatal Aud.. @NNAP_RCPCH
3K Followers 151 Following NNAP supports and helps to improve care for babies born too early, with a low birth weight or who have a medical condition requiring specialist treatment.
The Neonatal Society @NeonatalSociety
7K Followers 102 Following Brings together scientists and clinicians with an interest in the fetus and newborn with the objective of promoting neonatal science (registered charity 260349)
NeoNav @NeoNavUK
171 Followers 216 Following A free, independent directory of neonatal support and resources. For families, healthcare professionals, charities and community groups in the UK.
Emer Ryan @WhatwouldEmerdo
694 Followers 821 Following Paediatrician. IBCLC. PhD. Avid people watcher. Believer in science, community and family.
Warwick Preterm Resea.. @PretermWarwick
204 Followers 267 Following RECAP+PremLife preterm research groups at the University of Warwick https://t.co/j4TbXlTaza https://t.co/uCkYome7wy
Jane Tobias, DNP, CPN.. @JaneTobias19
177 Followers 382 Following Pediatric nurse practitioner, advocate for children, nurse educator, proud to be a nurse!
Michelle M. Kelly, Ph.. @MichelleMKelly1
313 Followers 397 Following PNP & NNP. Associate Professor. Researcher translating longitudinal research of preterm birth survivors to clinical practice.
Dr Sarah E Seaton �.. @SarahESeaton
3K Followers 3K Following Paediatric epidemiologist with @TIMMSleicester, co-PI of @PICANetAudit & @NIHRcommunity fellow. She/her 🏳️🌈 Views all mine
Rachel Plachcinski @Stroppybrunette
2K Followers 3K Following Facilitating user involvement in maternity research. Likes: weather, horses, outdoors, Heroes: Carl Rogers, Pat Smythe, Iain Chalmers. All views my own
Prematurity # itstart.. @PrematurityI
208 Followers 273 Following Group of medical professionals working with prematurity. Supporting the First 1000 days, attachment, ACE and early intervention for preemies in RSA🇿🇦
SIGNEC signec.org @SIGNECconf
2K Followers 2K Following SIGNEC is the special interest group for NEC (necrotising enterocolitis) founded by Prof. Minesh Khashu @mkrettiwt
Juliette Lee @julietteprem28
181 Followers 252 Following Adult born pre-term, ex 28 weeker. TTTS survivor. Lone twin. Paediatric RN. BAPM steering group. Confounding Director of APAN. Chief Nurse Intern Alumni.Trends for United States
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