Africa Sickle Cell Disease Initiative @ASCDInitiative
Africa Sickle Cell Disease Initiative is an non-profit organisation that seeks to end the sickle cell cycle in Kenya 🇰🇪 and the larger Africa🌍 Nairobi, Kenya Joined October 2019-
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What’s a perfect day look like? 15 of 15 scheduled SickleCell Warriors made it to clinic living their best life And our inaugural inspiring and powerful Patient Action Committee So lucky to call this my job ❤️ #SickleCellAwarenessMonth B
We recently published the abstract book from the 4th Global Congress on Sickle Cell Disease. It's open access - feel free to review this timely content, especially as it's #SickleCellAwarenessMonth. View or download 👉bit.ly/3Ub0vaJ @GlobalSCDN #SickleCellDisease
SickleInAfrica Webinar: Socio-Cultural Challenges to Optimal Sickle Cell Disease Care in Africa. Register: zoom.us/meeting/regist… @bint_mfalme @hassannji2 @SCFG_Official @sicklecellmuhas
September is Sickle Cell Awareness Month We will talking about the importance of raising Awareness about Sickle Cell Disease and share what we have been doing in our respective countries Register: bit.ly/GASCDO-GP2022
#SickleCellDisease has a way of derailing one's life's target. The Dx makes its presence felt through painful attacks which can be debilitating. This is my story. #EndingTheSickleCycle @KEHPCA @NCDAK @ASCDInitiative @ASCAFoundation @yegonemmanuel_ @MOH_Kenya
"Sickle cell chips away who you are as a person. If you do not have a support system, you will just chip away to oblivion..." ~ @emcleans This is #MerabsHealthStory what's yours? Watch youtu.be/kkg8v7zZFK0 #EndTheSickleCellCycle #YourPersonOfInterest
"Sickle cell chips away who you are as a person. If you do not have a support system, you will just chip away to oblivion..." ~ @emcleans This is #MerabsHealthStory what's yours? Watch youtu.be/kkg8v7zZFK0 #EndTheSickleCellCycle #YourPersonOfInterest
Our founder @emcleans spoke to @yegonemmanuel_ about her journey as a sickle cell disease patient. Let's all work together to #EndTheSickleCellCycle by championing for affordable and accessible care for persons living with sickle cell disease Watch: youtu.be/kkg8v7zZFK0
This wasn't easy to do. It stripped me. For the first time, I felt what it is that my news sources feel when I interview them. But @yegonemmanuel_ youtube.com/channel/UCMRCc… did it So, for the 1st time, I am speaking about my experience with #SickleCellDisease #EndingTheSickleCycle
So, here we go. The Whole story on about my experience living with #SickleCellDisease on Yegon Emmanuel's YouTube channel. Shot and edited on mobile Mobile Journalism Africa Speak up to #EndTheSickleCycle #NCDs come in many forms. youtu.be/kkg8v7zZFK0
So, here we go. The Whole story on about my experience living with #SickleCellDisease on Yegon Emmanuel's YouTube channel. Shot and edited on mobile Mobile Journalism Africa Speak up to #EndTheSickleCycle #NCDs come in many forms. youtu.be/kkg8v7zZFK0
We have a range of free sickle cell resources for you, including: videos, booklets, guides, standards, newsletters and more. Get them all for free today here: sicklecellsociety.org/resources/ #SickleCell #Awareness #Education
Sickle cell matters.
matukio ya maumivu. Folic acid ( vitamin B9) : Ni vitamin iliyona kazi nyingi kwenye mwili wa binaadamu ,Huweza kwa pungufu kwenye ugonjwa huu, huboresha uzalishaji wa damu , kando na kazi zengine
Crizanlizumab (Adakveo). Huweza kuunguza idadi ya matukio ya maumivu. Pethidine :Moja wapo ya dawa za maumivu zinazoweza kutumika wakati wa maumivu makali ya ugonjwa huu. Voxelotor (Oxbryta). Ina uwezo kwa kuzuiya hemoglobin isibadilike umbo , hivyo basi kusaidia mgonjwa asipate
Baadhi ya dawa zinazotumika kwa ugonjwa wa seli mundu ( Sickle Cell Disease ). Hydroxyurea (Droxia, Hydrea, Siklos). Huweza kupunguza idadi ya matukio ya maumivu .Haishauriwi kwa mja mzito . L-glutamine oral powder (Endari). Huweza kuunguza idadi ya matukio ya maumivu
.@Novartis and @gatesfoundation are joining forces to discover & develop a gene therapy to cure sickle cell disease with a one-step, one-time treatment that's affordable & simple enough to treat patients anywhere in the world, especially sub-Saharan Africa bit.ly/3kfUEiT
And it leaves a huge gap in the other sickler's life. I know a number of Sickle Cell Warriors who have lost a sibling to the disease. Q: How many sickle cell warriors do you know? @ASCDInitiative @MOH_Kenya
Let's not even talk about the double costs you incur when both are in a crisis. But something else is that these two siblings often behave like twins. what happens to one affects the other. Unfortunately, sometimes one of the siblings succumbs to the disease. @ASCDInitiative
If you are 4, 2 kids often become sicklers (they are often hospitalized) the rest may end up being carriers (They don't get sick but carry the gene and can pass it on). Let me tell you about the sicklers. @ASCDInitiative @MOH_Kenya
With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. What it doesn't tell you is that this hereditary blood disorder affects 25% of the children born in a family. @ASCDInitiative @MOH_Kenya
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