ASAP.org @ASAPorg
Providing research, education & support #syringomyelia 🧠 #Chiari ⚕️#nonprofit established 1988 2024 Conference 🔜 Durham, NC https://t.co/q9CnJcahMQ ASAP.org Worldwide Joined October 2009-
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⏰Tomorrow! The Global Neurosciences Institute’s Chiari support group focuses on #tetheredcordsyndrome ⬇️ sign up below
ASAP's LEARN Points can get you to our 36th Annual Conference nearly FEEE! 💰 Read more about LEARN Points and start your own fundraising page: asap.org/conferences/20… 🔜Join us July 16-18, 2024 in Durham, NC #neuroconference #fundraising #chiariawareness
📢Registration is now OPEN for the American Syringomyelia & Chiari Alliance Project's 36th Annual Conference! asap.org/product/confer… Durham, NC July 16-18 💜
Thank you to our many wonderful volunteers supporting our organization for the past 36 years! 💜💜💜 youtube.com/watch?v=TZp8Sh… #NationalVolunteerWeek #volunteer #volunteerAppreciationWeek #thankyou #asap
Syringomyelia initially compresses & permanently damages crossing fibers of spinothalamic tract. Symptoms include dissociated sensory loss, presenting as a CAPE-LIKE distribution of decreased sensitivity to pain & temperature, and flaccid atrophic paralysis in upper extremities.
@docxusofficial Syringomyelia. Syringomyelia is the development of a fluid-filled cyst within the spinal cord. The cyst, which is sometimes called a syrinx, can grow larger over time. When it does, it can damage the spinal cord and cause pain, weakness and stiffness. Syringomyelia has several…
#Siringomielia Report A #syringomyelia and other rare #diseases resources collection report flipboard.com/@zabolla/sirin… via @Flipboard
During our last journal club we covered an exciting paper discussing the surgical treatment of Chiari malformations in patients with and without Syringomyelia. As always, thank you to our wonderful moderators @DamirezFossett and @FredricMeyerMD !!
🔎 Research study update: Craniocervical instability fusions in people with #EDS ➡️ What does that mean for #chiarimalformation patients? . Full study details: ncbi.nlm.nih.gov/pmc/articles/P… #EhlersDanlosSyndrome #hEDS #Hypermobility #HSD #CCI #CCS #Neurology #Neurosurgery #MedTwitter
We know this one! Chiari malformation 🧠
We know this one! Chiari malformation 🧠
Did you know? ➡️ Asap.org #chiari #chiarimalformation #brain #neurosurgery #pediatricneurosurgery
💡Did you know these neurosurgery 🧠 facts? thejns.org/focus/view/jou… #neurosurgery #neurosurgeon #neurosurgeons #womeninmedicine #womanneurosugeon #femaleneurosurgen #womeninneuro #diversity #diversityinmedicine #brainsurgery #femalesurgeon
[NEW RESEARCH] Nutritional Disorders in Hypermobility Disorders There is a strong association between #mastcellactivationsyndrome (#MCAS) and #hypermobilespectrumdisorders (#HSD), such as hypermobile #EhlersDanlosSyndrome (hEDS). People with MCAS and hEDS often experience…
It’s #WINSxResearchMonday! Check out this article by @elijahpp_ et al. from @BrownNSGY showcasing a statistically rigorous approach to assessing how diversity indices in #neurosurgery compare to other specialties. #WomenInNeurosurgery #DiversityInNeurosurgery #Diversity
It's a complex world 🌎 of words 📜 when it comes to Chiari malformation and syringomyelia. 🧠 ASAP's "Comprehensive Guide to Understanding the Chiari I Malformation and Syringomyelia" provides the first step to understanding these painful disorders: asap.org/chiari-and-syr…
A recent study by @BendyBrain published in BMJ Public Health found that individuals with generalized joint hypermobility might face a greater risk of not fully recovering from COVID-19. Read all about it here: ehlers-danlos.com/study-finds-pe…
"Ohhh, just...hanging out" 😉 har har har #chiari #chiarimalformation #humortherapy #punny #iykyk #brain #brainhumor #brainpuns #brainsurgery #neurosurgery
How do you celebrate your "Chiariversary?" 📷 📷📷 #chiari #chiarimalformation #chiariversary #brainsurgery #neurosurgery
IleneRuhoyMDPhD @RuhoyMD
7K Followers 1K Following Neurologist treating chronic and complex disease #NeuroEDS Medical Director #ChiariEDS Center @MS_SouthNassau Book Release Spring 2025
Daniele Martins @danivaiviver
1 Followers 29 Following
Casey Morrow @CaseyMorro24413
9 Followers 647 Following
Cole & Kai @Kerbear610
587 Followers 2K Following
Neil M Salian @abhi1998m
107 Followers 383 Following • Opinions my own • Vice President for External Affairs @msai_india
Larissa Bruch Caetano.. @laribc
102 Followers 542 Following Brazilian neurosurgeon 🇧🇷 Neurosurgey networking. Neurocirurgiã de crânio, coluna vertebral adulto e pediátrica. 🧠
Ali Kat @AliKat755967141
0 Followers 2 Following
ChronicCareCompass @ChronicCompass1
19 Followers 187 Following Created by @Fwcdeborah, Chronic Care Compass offers tips and tools to make living with a #ChronicIllness a little easier. #EhlersDanlos #MECFS #Spoonie #POTS
Julian Savage @JulianSava62346
76 Followers 3K Following
Preston Neurosurgery @PrestonNeuro
1K Followers 591 Following Department of Neurosurgery, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, United Kingdom
DannyFitz8 @CCwell8
404 Followers 686 Following
Beth Garrett @BethGar79072061
72 Followers 1K Following
Johns Hopkins Neurosu.. @HopkinsNsurg
8K Followers 545 Following Cushing | Dandy | Walker | Long | Brem
Patrick Maloney MD @PatMaloneyMD
189 Followers 398 Following Chief of Neurosurgery @NorthBayHealth; Mayo Clinic Care Network Member; @NeurosurgUCSF and @VANorthernCA Staff Neurosurgeon; #USAF Veteran
Evelyn @cochran_evelyn6
143 Followers 3K Following
Miranda Riley @miranda_ri3054
109 Followers 3K Following
سَلمَان الح.. @Salman_SA5
131 Followers 2K Following مستثمر ومتداول في الأسواق المالية ومُتخصص في العلوم العلمية والعلوم المالية وكاتب مالي وكاتب علمي ومؤلف لِمُؤلفات علمية ومالية وعضو في الجمعيات العلمية ..
Sandra Browning @BrowningSa40521
103 Followers 3K Following
Andy @AndyBayo_
352 Followers 2K Following Chronic Fatigue. Orthostatic Hypotension. Heat Intolerance. Impaired Cognition. Possible CCI. Possible brainstem compression. #mecfs #mespine #severeme
Rudy J. Rahme, MD @RudyRahme
647 Followers 468 Following Comprehensive Vascular Neurosurgeon, GNI; Neurosurgery Pathway Director @DrexelUniv; @MayoClinic, @NeurosurgeryNM and @NUFeinbergMed alumnus
Susan @susanbolivar4
3K Followers 4K Following
hklp @hklp43842403
0 Followers 286 Following
Paritosh Goyal @PaGo2607
51 Followers 710 Following #MachineLearning and #NLP researcher, previously MSc. @UAlberta and @AmiiThinks
Kaiya King @king_kaiya98934
105 Followers 3K Following
zach schuman @ZSchuman
13 Followers 87 Following
Duke Neurosurgery @Dukeneurosurg
9K Followers 663 Following A leader in research, education and patient care in brain tumor, cerebrovascular, skull base, spine, pediatric, functional, and global health
UAB Neurosurgery @NeurosurgeryUab
1K Followers 229 Following Welcome to the official Twitter account of the Department of Neurosurgery at The University of Alabama at Birmingham. https://t.co/6stUy4uaZY…
oluwalofunmibi @afeniforofunbi
55 Followers 249 Following 💁🏽I SUPPLY CAMBODIAN AND VIETNAMESE RAW HAIR TO VENDORS 🌲WHOLESALE/BULK SUPPLIER 🌲I OFFER THE BEST FACTORY PRICE + FREE SHIPPING TO🇳🇬
Dr. Sheri Dewan @drsheridewan
1K Followers 601 Following Neurosurgeon •Clinical Professor @ Chicago Medical School• Director of Neurosurgery• Outreach chair @WINSneurosurge1 • Bestselling Author “Cutting A Path”
Michigan Neurosurgery @umichneuro
6K Followers 726 Following The University of Michigan Dept. of Neurosurgery's official feed. Signal boosting our faculty, staff, resident, and alumni's incredible work. RT =/= endorsement
HP @haapee2
117 Followers 849 Following
Makenna Wright @MakennaWri70178
115 Followers 3K Following
Denise @trameldenise2
184 Followers 3K Following
Ali Niyaf ⚕MD MS MC.. @AliNiyaf
6K Followers 790 Following Senior Consultant in Neurosurgery, former President of Maldivian Medical Association @mma_mv #autismdad #neuroendoscopy #IIH #chiarimalformation#
SpoonieLionessa @spoonielionessa
0 Followers 8 Following Uniq Strong Lady❣️ Write poems, quotes & lyrics📝 Graphic designer💻 L(EARN)ing💌 Chiari Malformation Warrior🧠 Syringomyelia Warrior🥄 Hydromyelia Warrior🥄
Lillie @lillie83brown
161 Followers 3K Following
Guadalupe @Guadalupe186475
100 Followers 3K Following
Anna @anna7bentley
106 Followers 3K Following
Andrea Williams @AndreaWill41844
126 Followers 3K Following
Luciana Stein @stein_luci16067
104 Followers 3K Following
⚓️🏴☠️�.. @SpicyMcCall44
25K Followers 24K Following Happily married~Your Words Surround You Like Fog And Make You Hard To See- Blackbeard ~ DM for friends only. Fins Up Always Forward
Patricia @patricia48dale
332 Followers 3K Following
Amanda @hermanamanda34
631 Followers 3K Following
Nikki @Nikki40646358
62 Followers 384 Following
Terri Quintos @tequintos
901 Followers 3K Following A #infinitelearner. Researching, reading and learning are my passion. Consciously living life open hearted— in His Hands. Dog lover, too! Paralegal by trade.
Donna Grey @thedonnagrey
38 Followers 518 Following
Doc Arbor, PsyD - @Dr.. @BlueGhost163
549 Followers 3K Following Retired Clinical Health Psychologist, Disabled #PwME Myalgic Encephalomyelitis for 30+ years & Syringomyelia. @DrArbor.bsky.social
Luis Alejandro De Jes.. @LuisDJSnchez
98 Followers 116 Following #RadRes @UChicagoRads #ProductoUPR : UPRM and RCM. Formerly Unmatched. First Gen x 2. Proud Boricua 🇵🇷 . Opinions are my own.
Conquer Chiari @ConquerChiari
2K Followers 54 Following Mission: To improve the experiences and outcomes of Chiari patients through education, awareness, and research.
Jennifer Strahle, MD @strahleMD
2K Followers 679 Following Professor of Neurosurgery, Neurosurgeon-Scientist, Mom to 3 girls. @wustlmed @STLChildrens @WashUNeurosurg
IleneRuhoyMDPhD @RuhoyMD
7K Followers 1K Following Neurologist treating chronic and complex disease #NeuroEDS Medical Director #ChiariEDS Center @MS_SouthNassau Book Release Spring 2025
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Washington University.. @WashUNeurosurg
5K Followers 640 Following World-class expertise in aneurysm, brain tumor, cerebrovascular, functional neuro, pediatric neurosurgery, skull base, spine, and neurotechnology.
Gregory Zipfel @GregoryZipfel
5K Followers 459 Following Neurosurgeon, scientist, father, husband, and golfer. @WashUNeurosurg @WUSTLmed @BarnesJewish @cvsection https://t.co/ZyuqasDlNa
Dysautonomia Support .. @DysSupport
4K Followers 112 Following Dysautonomia Support Network is a non-profit that provides a community that empowers and supports those impacted by dysautonomia to live their best lives.
wstfcure @wstfcure
4K Followers 2K Following Our mission is to educate the world about the disease Syringomyelia and Chiari malformation.
Chiari, Tethered Cord.. @CordChiari
46 Followers 108 Following Education & advocacy: Chiari, Tethered Cord, Syringomyelia, CCI, POTS, MCAS, and other EDS-related conditions. Better care for Canadian children & adults.
HUCM AANS @hucm_aans
177 Followers 86 Following Howard University College of Medicine Student Chapter of the American Association of Neurological Surgeons
Brain Physics Cambrid.. @BrainPhysics
554 Followers 665 Following Brain Physics Lab - Division of Neurosurgery - University of Cambridge: Latest research news on links between Neurosciences, Neurosurgery and Engineering.
Krystal Tomei, MD @KLTomei
1K Followers 100 Following Pediatric Neurosurgeon @UHRainbowBabies, @UHCLENeurosurg Residency Program Director, Health policy fanatic, World traveler, Foodie. Views are my own.
The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
UMichNeurosciences @UMneurosciences
2K Followers 747 Following The University of Michigan Clinical Neurosciences center is at the forefront of patient care, education and research in neurology and neurosurgery.
ASPN American Society.. @TheASPN
357 Followers 86 Following Dedicated to the advancement of all aspects of the subspecialty of pediatric neurological surgery
Bobby Jones Chiari & .. @bobbyjonescsf
2K Followers 318 Following The Bobby Jones Chiari & Syringomyelia Foundation is built on leadership, vision & commitment to find a cure for #Chiari, #syringomyelia & related disorders.
Brain & Spine Foundat.. @brainspine
15K Followers 4K Following Providing frontline professional Neuro services, innovative research and bold campaigning for change. Speak to a neuroscience nurse today on 0808 808 1000
Institut Chiari BCN @icsebcn
238 Followers 105 Following Centro neuroquirúrgico de alta especialización. Lean nuestra última publicación sobre #EnfermedadFilum y Síndrome Neuro-Cráneo-Vertebral: https://t.co/pVofKzkNss
NIH @NIH
1.7M Followers 323 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3huRk Engagement ≠ endorsement
UTMB Neurosurgery @UTMBNeurosurg
527 Followers 161 Following Official Twitter account for the Department of Neurosurgery Residency Program at University of Texas Medical Branch.
The University of Okl.. @OUPedsNeurosurg
630 Followers 112 Following Pediatric neurosurgery leading the future of academic medicine at The University of Oklahoma College of Medicine and The Children's Hospital at OU Medicine.
Albany Medical Center.. @AMCNeurosurgery
937 Followers 528 Following Neurosurgical training program dedicated to advancing the field of brain and spine surgery 🧠
UR Neurosurgery @URNeurosurgery
1K Followers 610 Following The official page for the Department of Neurosurgery at the University of Rochester Medical Center.
BIDMC/HMS Neurosurger.. @BIDMCNeurosurg
1K Followers 247 Following The official Twitter account of the Division of Neurosurgery at Beth Israel Deaconess Medical Center @BIDMCHealth / Harvard Medical School. RTs ≠ Endorsements.
University of Utah Ne.. @UofUNeurosurg
2K Followers 989 Following Department of Neurosurgery @UofUHealth Our mission: provide outstanding neurosurgical care, education and research. 🧠 🔬 @UofUCNC | #MedEd
WVU Neurosurgery @WVUNeurosurg
2K Followers 72 Following Training neurosurgeons while providing state-of-the-art care to adults and children with disorders of the brain, spine and spinal cord.
Peter Kranz @PeterGKranz
3K Followers 654 Following Division Chief of Neuroradiology at Duke University Medical Center. Research in #spinalCSFleak/#SIH. Tweets my own. No discussion of individual patient care.
Lansing Neurosurgery @lansingneuro
1K Followers 1K Following Our Mission: To provide excellence in the care and treatment of patients with brain and spine disorders - http://t.co/fi3PoAYnxQ
Pediatric Neurosurger.. @pedsNSGYatl
287 Followers 183 Following Dedicated to the neurosurgical care of all children 🧠 @childrensATL | Tweets are our own
Mayo Clinic Florida N.. @mayoflnsgyres
443 Followers 9 Following #Twitter account by the residents @MayoClinic FL Neurosurgery.
Young Neurosurgeons @youngneuros
13K Followers 921 Following The Young Neurosurgeons Committee (YNC) of the American Association of Neurological Surgeons (AANS) empowers future leaders in neurosurgery
Cleveland Clinic Neur.. @CleClinicNS
618 Followers 355 Following Leaders in the treatment, research innovations, and education of complex neurological disorders of the brain, spine, and peripheral nerves @ClevelandClinic
UT Houston Neurosurge.. @NeurosurgUTH
428 Followers 134 Following Top ranked Neurosurgery department at the UT Houston McGovern Medical School. Viewpoints are the residents’ own and not of UT Houston. IG: uthealth_neurosurgery
LSU Health Shreveport.. @UNeurosurgery
720 Followers 545 Following Department of Neurosurgery at LSU Health Shreveport (@LSUHS).
UMMC Neurosurgery @UMMCNeurosurg
513 Followers 255 Following Highly-skilled multidisciplinary team approach to specialized care for disorders/injury affecting the central & peripheral nervous system, back and neck.
Miami Pediatric Neuro.. @MiamiPedsNsgy
324 Followers 46 Following Pediatric Neurosurgery group at Nicklaus and Holtz Children's Hospital, Miami, specializing in #epilepsy #oncology #spine #hydrocephalus #globalsurgery
UNMC Department of Ne.. @UNMC_NeuroSurg
384 Followers 136 Following
London Neurosurgery P.. @LNP_Spine_Neuro
821 Followers 475 Following A group of 13 spinal and cranial neurosurgeons working together to deliver an unparalleled level of spinal and neurosurgical care.
DrJFM - Juan C. Ferna.. @drjfm_stanford
6K Followers 289 Following Stanford Professor of Neurosurgery. Brain/SkullBase/Pituitary Surgery. Surgical Innovation, Translational Neuroanatomy. Proud Spaniard & Made American.
WFBH Neurology and Ne.. @WakeNeuro
443 Followers 18 Following Wake Forest Baptist Health Neurology, Neurosurgery & Neuroscience @WakeHealth #WakeNeuro #Neurology #Neuroscience #Neurosurgery
Society of Neurologic.. @SNS_Neurosurg
3K Followers 29 Following Resident education and governance, promoting excellence in Neurosurgery #MedEd #Neurosurgery
NWH Neurosurgery @NWHNeurosurgery
805 Followers 550 Following The unofficial channel for the Northwell #Neurosurgery Residency Program! Views expressed are our own.
Brown Neurosurgery @BrownNSGY
749 Followers 177 Following The official twitter account of the Department of Neurosurgery at Brown University/Rhode Island Hospital
Canadian Neurosurgery.. @CanNsxResearch
638 Followers 744 Following Established in 2015, the Canadian Neurosurgery Research Collaborative is a research focused group of physicians aiming to improve patient care.
MCW Neurosurgery @MCWNeurosurgery
863 Followers 186 Following Official Twitter account for the Department of Neurosurgery at the Medical College of Wisconsin. Excellence in patient care, research, and education.
Preston Neurosurgery @PrestonNeuro
1K Followers 591 Following Department of Neurosurgery, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, United Kingdom
Neurosurgery at Memor.. @MSKNeurosurgery
1K Followers 152 Following Brain, Skull Base and Spine expertise with a focus on superb patient care, research and education . 212-639-8557 @MSKNeurosurgery
UW Neurological Surge.. @UWNeurosurgery
1K Followers 108 Following The official Twitter account of the University of Washington Department of Neurological Surgery
Lurie Children's Pedi.. @Lurieneurosurg
880 Followers 390 Following Course Registration: https://t.co/o73VgmAnxH
VCU Neurology & Neuro.. @VCUNeuro
1K Followers 93 Following Official Twitter account for the Departments of Neurology and Neurosurgery, and Residency Program at VCU.
brainsurgery_shifu @DrWalterJean
6K Followers 3K Following Skull Base/CV Neurosurgeon, LVHN Endowed Chair & Chief of Neurosurgery/Lehigh Valley Fleming Neuroscience Institute, creator of “Skull Base Surgery: Strategies”
Neurology and Neurosu.. @NeurosciencesCS
1K Followers 461 Following Cedars-Sinai is a leader in the treatment of 150+ complex neurological disorders and conducts research that brings new hope for patients and caregivers.
Video aims to consolidate knowledge (see list of supporting videos in you-tube description). Test your knowledge on differential diagnosis for acute spinal canine patient. I discuss prognosis & whether to manage in 1st opinion or recommend referral. youtu.be/2Qdvev-_YGo
@docxusofficial Syringomyelia. Syringomyelia is the development of a fluid-filled cyst within the spinal cord. The cyst, which is sometimes called a syrinx, can grow larger over time. When it does, it can damage the spinal cord and cause pain, weakness and stiffness. Syringomyelia has several…
@BrownJHM @Radiopaedia Chiari I Malformation with Syringomyelia Explanation: Chiari I malformation is a condition where the lower part of the brain, called the cerebellar tonsils, extends into the foramen magnum (the opening at the base of the skull). This can block the normal flow of cerebrospinal…
@BrownJHM @Radiopaedia Chiari I Malformations: Learn more and generate your own summaries at neuralconsult.com 🧠 🎯 #MedX #MedTwitter #FOAMed #MedEd #USMLE #step1 #STEP2CK
A 25 yo m with progressive muscular weakness for two years. Likely diagnosis? (Image @Radiopaedia, case by Hidayatullah Hamidi) #FOAMrad
Simple way to remember the different levels of the spinal nerves!
Syringomyelia initially compresses & permanently damages crossing fibers of spinothalamic tract. Symptoms include dissociated sensory loss, presenting as a CAPE-LIKE distribution of decreased sensitivity to pain & temperature, and flaccid atrophic paralysis in upper extremities.
Syringomyelia is a syrinx (fluid filled cavity) within the spinal cord that progressively expands and leads to neurologic deficits and syringobulbia is a syrinx within the brainstem that leads to neurologic symptoms. The pathogenesis usually results from lesions that partially…
#Siringomielia Report A #syringomyelia and other rare #diseases resources collection report flipboard.com/@zabolla/sirin… via @Flipboard
2nd poster @BSava #congress #bsava24 presented by Uni Surrey MSc Kristiana Ivanova on software developed to triage likelihood of #chiari pain or #syringomyelia. Plan is to develop the #app to better able monitor response to treatment. Check it out at chiari-check.surrey.ac.uk
During our last journal club we covered an exciting paper discussing the surgical treatment of Chiari malformations in patients with and without Syringomyelia. As always, thank you to our wonderful moderators @DamirezFossett and @FredricMeyerMD !!
Join us tomorrow for Journal Club at 2PM (ET) where Paul Mandigers and Citlalli Limpens will discuss The effect of MRI-based screening and selection on the prevalence of syringomyelia in the Dutch and Danish Cavalier King Charles Spaniels. hubs.li/Q02sc-g20
Chiari malformation(herniation of cerebellar tonsil through foramen magnum)
Diving deep into the genetics of Chiari malformation 🧬🔍 Discover what makes familial cases unique through a comprehensive review and real-life stories. #ChiariMalformation #Genetics #Neuroscience Read more: neurexplain.com/2024/04/13/unl… #neurosurgery
Outcomes of Craniocervical Instability Fusion Surgery in People with EDS buff.ly/3xvWsis #EhlersDanlosSyndrome #EDS #hEDS #Hypermobility #HSD #NEISvoid #CCI #CCS #AAI #ChiariMalformation #Neurology #Neurosurgery #MedTwitter #Doctors #Zebras
We'd like to introduce you to our Skull Base Surgery Team! Our team offers solutions using both traditional and minimally invasive techniques, aiming for the best outcomes with the least impact on your life. @OUAVMdoc @graffeo @OUskullbaseMD @HakeemShakirMD
We are pleased to host Dr. Rory Goodwin, Spine Services Director @DukeSpine Center for Brain and Spine Metastasis as the 2024 Silber Lecturer. The Silber Lecture is an annual lecture in honor of Brian D. Silber, and is supported by the @briansilberfund! We are so grateful to…
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