Lewy Body Dementia Resource Center @lewybodyny
Lewy Body Dementia Resource Center raises needed awareness of Lewy Body Dementia (LBD) while offering loving support to LBD patients & their families. lewybodyresourcecenter.org New York, NY Joined June 2016-
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Lewy Body Dementia affects people worldwide 🌏. We aim to help as many people as possible. Please share with others who may benefit from these new language options. 🙌Special thanks to our translators. We couldn't have done this without your incredible support.
Why Lewy Body Dementia (LBD) is often unrecognized or misdiagnosed? 💜Help us bring awareness by sharing this post! To read this blog, go to: lewybodyresourcecenter.org/why-lewy-body-…
Mary Lou Falcone, our esteemed board member, is featured in today's NEW YORK TIMES!! The article highlights her new passion as an advocate for Lewy Body Dementia. nytimes.com/2023/10/23/art… #lewybodydementia #maryloufalcone #caregiversupport
📕Read this NEW BLOG, written by a caregiver about the support that is helping her through this LBD journey with her husband. You are not alone! 👉To read the blog, go to lewybodyresourcecenter.org/struggling-wit…
OCTOBER IS LBD AWARENESS MONTH 💜We are happy to announce a new webinar. Lara Scher, Speech Therapist, is offering a free session for people living with LBD on how to boost your confidence and communication. Send us an email to [email protected] and we will send you the zoom link
👉"I DIDN'T SEE IT COMING ", is here ! 📕😃 If you didn’t have the chance to pre-order a copy of your book📕, go to lewybodyresourcecenter.org to place your order now. 📌Official launching day ☀️
🎉"October is Lewy Body Dementia Awareness Month. 👉We believe it is crucial to bring awareness to LBD so that people are diagnosed correctly. For LBD symptoms, see: lewybodyresourcecenter.org/what-is-lbd/sy… 💜When you share our post, you help us bring awareness. Thank you!
🔷A reminder that Cognitive Fluctuation are a distinctive characteristic of Lewy Body Dementia. ⭐️If you feel this can help others you know, please SHARE. We are here to help at: lewybodyresourcecenter.org #dementia #cognitivefluctuations #lewybody #hallucination #caregiver
🔷A reminder that Hallucinations are a distinctive characteristic of Lewy Body Dementia. ⭐️If you feel this can help others you know, please SHARE. We are here to help at: lewybodyresourcecenter.org
🔷People with LBD may not have every LBD symptom, and the severity of symptoms can vary greatly from person to person. The most common symptoms include changes in cognition, movement, sleep, and behavior.⭐️Help us bring awareness by sharing this post
💜Always happy to hear our community members feeling happy 😇with LBD Resource Center groups. 🧡Remember that you are not alone ! Besides our bi-monthly support groups, we are also available on our ☎️HELPLINE 365 days a year at 516-218-2026 (or 833-LBD-LINE)
🧡Always happy to hear our community member being happy😇with LBD Resource Center groups. 💜Remember that you are not alone ! 📌Besides our bi-monthly support groups, we are also available on our ☎️HELPLINE 365 days a year at 516-218-2026 (or 833-LBD-LINE)
LBD Family🤩: We are happy to present you with our monthly NEWSLETTER -NEW EDITION-📬 🟣Please subscribe by going to the bottom of our home page at lewybodyresourcecenter.org 🟠If you have already subscribed but are not receiving our emails, please re-subscribe. #lewybodydementia
BLOG: 👉 lewybodyresourcecenter.org/de-escalation.… Being a care partner for someone with LBD can be both emotionally and physically taxing, if you need support from those who understand the experience ☎️ Our helpline is available 7 days a week at 516-218-2026 to discuss anything related to LBD.
👉🎼To register go to: concertsinmotion.org/our-virtual-co… 📌You and your 😍loved ones can enjoy the music you love from anywhere in the world. #concertsinmotion #healingexperience #dementia #lewybody #caregiver
Coping with hallucination- Go to our blog : 📷Part 2 lewybodyresourcecenter.org/coping-with.../ 📷Part 1 lewybodyresourcecenter.org/coping-with.../ #lewybody #dementia #hallucination #delusion
👉Register for free at: caringkindnyc.org/rsvp-monthlyed…
👉Join our founder, Norma Loeb, on an online webinar hosted by CaringKind of NYC on Monday, July 10 at 6:00 pm Eastern time. 📌Please register (for free) at: caringkindnyc.org/rsvp-monthlyed…
LBDA @LBDAssoc
4K Followers 2K Following Lewy Body Dementia Association is the leading US health organization promoting education, support & research for people affected by LBD.
Lewy Body Society @lbsorg
6K Followers 2K Following We are the only UK charity dedicated solely to Lewy body dementia. Our mission is to raise awareness & fund research #LBD
Maladie à corps de L.. @a2mcl
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LewyLady @LewyLady
1K Followers 512 Following Sketch maniac. Resting screenwriter . Recovering barrister. Novonovocastrian.Founder of @lbsorg and @lewybodyint. All art copyright LBS. Nulla dies sine linea.
Meg Bossong @MeggieB528
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2k💙💙 @AnitaMcDonald1
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Eeks @dr_eeks
6K Followers 5K Following Not your cup of tea; From a small town; Public Health by Day; https://t.co/2iwLp7jSVO; Hosts the Causes or Cures Podcast; My Tweets are my Opinions (Or my dog's)
Dr. Christine Miller @YTdementiadoc
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John Venen @JohnVenen
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Movement disorders cl.. @parkinson_clini
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orhan @orhan39729992
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Timothy Hudson @stratcoms
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Andrew C 🍊 @AndrewCornwall5
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Charlotte Has Opinion.. @stockwell_c
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KB @KB30503725
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Linda Hart @linhart116
181 Followers 326 Following Grandmother to 7, retired U of Guelph, love to travel, 🇨🇦🇩🇰. “Alone we can do so little; together we can do so much.”Helen Keller
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Steven Poast @coachpoast
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Philippe de Linares �.. @LinaresPhilippe
256 Followers 561 Following Vice-président de l'Association des Aidants et Malades à Corps de Lewy ( A2MCL)
John Bowers @JBowers51
159 Followers 230 Following Alzheimer’s Ad💜ocate @AlzMaryland | Friend of @IowaNursing @IowaCsomay | 🖤💛@TheIowaHawkeyes ❤️NewHampshire ❤️UkeMusic ❤️TheBeatles | #DementiaCaregiving
Lewy Body France @lewybodyfrance
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Marta Crt 🦭 @MartaCortinovis
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Kevin Kendrick @KevinKe20647145
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Young Dementia Networ.. @YoungDemNetwork
14K Followers 2K Following The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.
Jacqueline Shaia, MS @JacquelineShaia
1K Followers 3K Following Anatomist; Clinical & Translational PhD student @ CWRU Passion: IIH & vision research 🧠; blogger (she, her) (opinions are my own) follow IG @ jacquelens_phd
Au Contraire @J_contraire
371 Followers 4K Following Interests include: Mass infecting diseases | Long Covid | ME/CFS | Autism | PDA | Alexithymia | Civility |Repost/Follow doesn't imply endorsement.
Trastornos del movimi.. @TrastMovMx
1K Followers 306 Following Información para pacientes, cuidadores, familiares y toda persona que quiera saber más. Enfermedades neurodegenerativas, Parkinson y trastornos del movimiento.
Pamantha @PammyWD
77 Followers 700 Following
Dementia Ireland Empo.. @dementiaireland
3K Followers 4K Following Dementia Ireland hopes to bring some clarity & awareness to the minefield that is Dementia. Carmel Geoghegan is a Freelance Consultant & Training Provider.
Wendy Norcross @wendy_ENDALZ
1K Followers 2K Following Paddling & Purpose💜MN girl with MI ties ❤️Steaming lattes 🫐scones & 🐶!! ALZ Advocate 👀on science. RT ≠ endorsement
Marti Meier @CatllMarti
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Budi Antolis @budi_antolis
80 Followers 159 Following
AlzeCure Pharma AB @AlzeCure
653 Followers 3K Following AlzeCure is a Swedish pharmaceutical company that develops new innovative drug therapies for the treatment of severe diseases and conditions.
Lewy Body Society @lbsorg
6K Followers 2K Following We are the only UK charity dedicated solely to Lewy body dementia. Our mission is to raise awareness & fund research #LBD
Alzheimer's Associati.. @alzassociation
168K Followers 5K Following The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ
Maladie à corps de L.. @a2mcl
610 Followers 647 Following Association des #aidants et malades à #corpsdeLewy #MCL Soutenir les familles, encourager la recherche médicale, informer les professionnels et le grand public.
Ian Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQu
Alzheimer's Society @alzheimerssoc
203K Followers 1K Following We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.
Dementia UK @DementiaUK
117K Followers 2K Following Dementia UK provides specialist dementia support for families through our Admiral Nurse service. We respond to messages 9-5 Monday to Friday on Twitter.
Cognition Therapeutic.. @CogRx
458 Followers 696 Following Developing innovative, small molecule therapeutics against age-related degenerative diseases of the CNS and retina
Helena Quaid @helenaquaid1
1K Followers 3K Following Chair of the DCCN Dementia Carers Campaign Network @DCCNIRL Co-Founder of Lewy Body Irl
HRB NCTO @HRB_NCTO
3K Followers 422 Following Health Research Board - National Clinical Trials Office
Lewy Body Ireland @LewyBodyIRL
381 Followers 166 Following We aim to make the island of Ireland one of the centres of excellence for the detection, treatment and management of Lewy Body Disease.
Jose Gigante, FRSA (h.. @SportEducation
1K Followers 396 Following Trainee Consultant Wealth Management | Founder at Lewy Body ESPAÑA | Director at Global Accessibility Associates
LBD Australasia @lbd_australasia
383 Followers 197 Following Online support for those living with Lewy Body Dementia and their Caregivers. Join our support group on Facebook with this link...👉 https://t.co/RSe3ttUSzm
Andrew Morris @andrewmorrisuk
16K Followers 2K Following Passionate about how IT solutions can bring positive value to our business and personal lives. Proud #autisticparent. Son of a parent with #dementia
Lewy Body Internation.. @lewybodyint
260 Followers 199 Following To promote awareness & knowledge of Lewy body dementia globally through a network of international dedicated LBD organisations. Secretariat by @lbsorg
FringeNYC @FringeNYC
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Lewy Body Dementia Wa.. @LewyBodyWarrior
574 Followers 755 Following Advocate 4 Lewy Body Dementia Research. Caregiver to my father living w/Lewy Body Dementia. and mother with Alzheimer's. Neither had any dementia risk factors.
ARCH Respite for Fami.. @ARCHRespite
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6K Followers 760 Following Caring for an aging parent or spouse? Get free, practical caregiving advice that helps you solve real-life challenges. Sign up to get top tips emailed daily
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Giselle @giselle2323
4K Followers 4K Following Mother, daughter, friend and full of endless possibilities. #BA75 Happiness is the best choice!
Dementia Helpline @Walesdementia
2K Followers 532 Following Wales Dementia Helpline provides support, information and signposting. The 0808 808 2235 no. is free from landlines + most mobiles
Kathy Collard Miller @KathyCMiller
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Vicky @VicLHampton
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Elizabeth Dole Founda.. @DoleFoundation
33K Followers 24K Following Empowering, supporting, and honoring military and veteran caregivers, our nation’s #hiddenheroes.
Caregiver Monday @CaregiverMonday
4K Followers 551 Following #CaregiverMonday is the day dedicated to the care of caregivers.We did it! A giant mile-long scarf wrapped SEVEN times around the @RoyalAlbertHall. A huge thanks to all the knitters, volunteers and to Susan Hampshire & @onebiggins for your incredible support. A few more people now know about Lewy body dementia thanks to #AScarfForLewy 💙
Today’s the day! This morning we are wrapping a giant scarf around @RoyalAlbertHall to raise awareness of Lewy body dementia. Scarves knitted lovingly by those affected by the disease. Come and help if you are nearby! #AScarfForLewy
Good luck today @KevinQuaid3 as you collect your cap and gown, we'll be there! Thanks for everything you do for people living with #dementia, in particular Lewy body dementia @LewyBodyIRL @lewybodyny @lbsorg @lbd_australasia @lewybodyint @LBDAssoc @alzheimersocirl @GBHI_Fellows
The day has finally arrived for the Longford International Presidential award in Croke Park and I am on the train,can’t ever remember being this nervous
Miche, After 30 years, I’m not sure why you look exactly the same and I don’t. I do know that I won the lottery that day—that I couldn’t have asked for a better life partner. Happy anniversary, sweetheart!
Massive congratulations @KevinQuaid3 This award is so well deserved. Thank you for being on our #PPI @DementiaTrials panel working to raise the profile of people living with #lewy @LewyBodyIRL @LewyBodyLab @LewyBodyArg @lbd_australasia @lbsorg @LBDAssoc @lewybodyint @lewybodyny
Words cannot describe how I feel after getting such an award
Lewy Body International se lanzo en Junio de 2022 en Newcastle, Reino Unido durante la ILBDC. Leer mas aqui en Castellano sobre @lewybodyint Y sus Miembros: @lbsorg @lbd_australasia @LBDAssoc @LewyBodyIRL @a2mcl @lewybodyny gigantesanchez.wixsite.com/lewy/post/lewy…
Support #GivingTuesday with a bid on a signed, personalized #JamesTaylor package that benefits @LewyBodyOrg. - @YamahaMusicUSA guitar - Sweet Baby James pop-up book - @RedSox baseball cap - Guitar strings belonging to #JT bit.ly/3xBVf5e
The first programme is (surprise surprise) Lewy Body Disorders with @KevinQuaid3 @helenaquaid1 Prof Ian McKeith @UniofNewcastle @TylorNorwood @RobinFilm #OctoberLewyBodyAwarenessMonth @LBDAssoc @LBD_Australia @HecklePodcast @LewyBodyIRL @SonderRadio @LewyLady @lewybodyorg @lbsorg
Lewy Body Dementia Resource Center NEWSLETTER JULY 2018 Read, Subscribe and Share!! lytolbd.wixsite.com/so/bMI9x1Iw?ci…
Art Rx Symposium 2018 In honor of Robin Williams An educational forum inspired by the creativity, compassion, and laughter that Robin Williams delivered to the world through his acting, comedy, and contagious zest for life. By bringing together... artrx.usc.edu/forum
FDA’s recent statement on BPA’s safety was neither unfounded nor premature. So what does it really mean? factsaboutbpa.org/blog/was-fda%E…
Hey kids. I'm in my 60s. You've never lived in an America where the rich paid their fair share. I have. Let me tell you what that was like: * We built new schools * We built new highways * We cut the poverty rate * We lead the world in technology * WE WENT TO THE FUCKING MOON
We hold monthly Family Caregiver Support Groups in Kauai. This is a great opportunity for caregivers to connect with other caregivers who are facing similar situations. For more info, please see the flyer attached!
With a shortage of specialists and an aging population, generalists need to be able to identify and treat Lewy Body Dementia alzres.biomedcentral.com/articles/10.11… @FamilyPracNews @FamilyMedForum @familydoctor @PracticalNeuro @emresidents @IntMedNews @ClinNeuroNews @AMAmedstudents
The incidence of Lewy Body Dementia is much higher than what is reported in the literature due to misdiagnosing it as Parkinson’s disease w/ PD Dementia. @LBDAssoc @lbsorg @lewybodyorg #Lewybody #LBD #Parkinsons #dementia #misdiagnosis #alzheimers #alz
Lots of valuable information for carers - Look In To The World Of Dementia: Lewy body dementia Paperback 2017 by Karen Wilson (Author)
.@jamiebrickhouse, a member of our Board of Directors shares his memories about his mom who had #LewyBodyDementia. bit.ly/2thwoEP
Thx 4 share @lewybodyorg! We explain what Lewy body #dementia is, how it’s different from #Alzheimers & #Parkinsons, and the 5 main symptoms x.com/lewybodyorg/st…
5 main symptoms of #LewyBodyDementia. via @DailyCaring #LBD bit.ly/2qC7bQe
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