Generation Patient@genpatient
Bringing together young adults with chronic and rare conditions through meetings, events, and programs. 100% young adult, disability-led. generationpatient.org/clickme/ Global 🌍 Joined April 2017-
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“It's my hope that more policymakers at the macro level will be able to hear our stories firsthand and begin to see us as individuals rather than statistic.” -Tai Chou-Kudu, 2023 Health Policy Scholar Read more: generationpatient.org/blog #HealthEquity #LivedExperience
Two of our Health Policy Scholar alumni, Grace Shults and Tai Chou-Kudu, had the opportunity to meet Ms. Stacy Sanders, the first Chief Competition Officer at the Health and Human Services! 🤩 Read Tai’s full reflection on our blog: generationpatient.org/blog
Have you been affected by #MedicaidRedetermination? If you're a young adult who's been impacted by the Medicaid redetermination process and you're interested in sharing your story, send us a brief message at [email protected]!
“We need to take a long, hard look at abuses like patent thickets so that patients can truly have more access to new treatments” - @genpatient Health Policy Scholar, Adam Koch
“We need to take a long, hard look at abuses like patent thickets so that patients can truly have more access to new treatments” - @genpatient Health Policy Scholar, Adam Koch
What are patent thickets and how do they affect youg adult patients? Listen to this brief explanation of patent thickets by one of our 2024 Health Policy Scholars, Adam Koch. #HealthEquity #PatentReform
Join our peer-support meeting tonight, Mach 7th, at 5 pm PST/ 8pm EST with Rosa Kelekian & Christina Frenzel!This meeting will focus on coping with test result frustration/anxiety/judgement. For more information on our peer-support meetings visit: generationpatient.org/virtual-meetin…
ICYMI: Check out our opinion article about the need for more oversight of influencers advertising prescription medicines. statnews.com/2024/01/22/fda…
Check out our February recap below and subscribe to our newsletter! mailchi.mp/ee3a42a7cefb/f…
Check out “How Young Voices Can Shape Prescription Drug Policy” on the @commonwealthfnd blog, written by our team and a number of our 2023 Health Policy Scholars! Read more: commonwealthfund.org/blog/2024/how-…
This legislation would be “life changing for patients like her” said Jacqueline Garibay a patient advocate for @P4ADNOW @genpatient #patentreform jurist.org/news/2024/02/d…
@pharmalot wrote an excellent piece in @statnews about the state of @US_FDA enforcement of clinical trials results reporting requirements & @uaem's petition calling for the FDA to increase enforcement & transparency of such enforcement, & FDA's response: statnews.com/pharmalot/2024…
We are very proud of our young adult patient community, especially @marajshapiro for speaking out to ensure the affordability of our life-saving medicines 👏🏽
We are very proud of our young adult patient community, especially @marajshapiro for speaking out to ensure the affordability of our life-saving medicines 👏🏽
Tonight at 8 p.m. EST! We have a peer support meeting for students with chronic conditions (college, grad school, taking a break)! Register for this peer support meeting and others at generationpatient.org/virtual-meetin…
Tomorrow we have a peer support meeting for young adults with chronic conditions! Sign up in the calendar below. We look forward to seeing you there! generationpatient.org/virtual-meetin…
For patients like Sneha who may need medication for the rest of their lives, every year without cheaper generics on the market can mean higher and higher prices they have to pay. I’m working with advocates like Sneha to close loopholes in the patent system to lower prices.
👀 @Merck is a poster child for #BigPharma’s patent abuse. Its blockbuster drug Keytruda is on track to be the highest-selling drug in the world – with 129 patent applications the pharma giant has filed on the drug to maintain its monopoly pricing power – with more to come.
Explore our @statnews piece discussing the role of social media influencers in prescription drug ads, their impact on the healthcare decisions of YA patients, & the FDA and FTC's evolving role. #SocialMediaImpact #PublicHealth statnews.com/2024/01/22/fda…
I am super grateful for our amazing community of young adult patients @genpatient. It is a real honor to ensure our voices are part of reforming the patent system to work better for patients.
I am super grateful for our amazing community of young adult patients @genpatient. It is a real honor to ensure our voices are part of reforming the patent system to work better for patients.
Crohn's and Colitis Y... @CCYANetwork
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“We need to take a long, hard look at abuses like patent thickets so that patients can truly have more access to new treatments” - @genpatient Health Policy Scholar, Adam Koch
“We need to take a long, hard look at abuses like patent thickets so that patients can truly have more access to new treatments” - @genpatient Health Policy Scholar, Adam Koch
I’m so thankful to @MayoClinicGIHep fellows & @MayoFellows for the Teacher of the Year honor! Our fellows are a major source of joy for me. I am inspired by you & learn something new from you all everyday. I’m also proud & inspired by the Humanitarian of the year @dunleavy_katie!
This legislation would be “life changing for patients like her” said Jacqueline Garibay a patient advocate for @P4ADNOW @genpatient #patentreform jurist.org/news/2024/02/d…
And lastly, we support X-linked carriers in the state of Alabama who are facing continued attacks on their reproductive autonomy and are now left with even fewer options to ensure they have a child unaffected by the genetic disease they carry.
Remember The Girls stands for equitable access to IVF in Alabama and beyond. We believe people have a right to access safe and effective reproductive technologies which will allow them to grow their families.
Really channeling my patient-physician (well, future physician) duality today… 🙈💪🏻 #DisabledDocs #IBD #IBDCantStopMe
@pharmalot wrote an excellent piece in @statnews about the state of @US_FDA enforcement of clinical trials results reporting requirements & @uaem's petition calling for the FDA to increase enforcement & transparency of such enforcement, & FDA's response: statnews.com/pharmalot/2024…
📣 This is my story on why I support a prescription drug affordability board 💊for myself and fellow Virginians! The bill has passed both the house and the senate and is on the Governors desk for approval! (1/2)
Sharing 3 new resources I worked on with my @DisabilityCA colleagues about #CARECourt and #SB43 #GraveDisability:
For patients like Sneha who may need medication for the rest of their lives, every year without cheaper generics on the market can mean higher and higher prices they have to pay. I’m working with advocates like Sneha to close loopholes in the patent system to lower prices.
Lead organizer @zoehaswitt spoke with @EmilyPisacreta for @armandalegshow about barriers to insulin manufacturer programs and how MAD can help! Listen to it here: 🔗 armandalegshow.com/episode/is-ins… #insulin4all
Two new Helmsley-funded projects at @scrippsresearch will explore promising therapeutic targets with the aim of improving treatment for Crohn’s disease. Read more here: bit.ly/4brxgcp
👀 @Merck is a poster child for #BigPharma’s patent abuse. Its blockbuster drug Keytruda is on track to be the highest-selling drug in the world – with 129 patent applications the pharma giant has filed on the drug to maintain its monopoly pricing power – with more to come.
Explore our @statnews piece discussing the role of social media influencers in prescription drug ads, their impact on the healthcare decisions of YA patients, & the FDA and FTC's evolving role. #SocialMediaImpact #PublicHealth statnews.com/2024/01/22/fda…
Watching the Pharma CEOs talk in circles at this @HELPCmteDems @GOPHELP hearing first saying "other people make us set high list prices - please help us" and then say "we actually don't make much money off of the [said high] list price." Are we sure this is not an SNL parody?!
In response to years of immense public pressure, @JNJNews finally stopped fighting tooth and nail to defend its monopoly on bedaquiline (an MDR-TB drug). Not even 5 months later they are advertising it before Congress @HELPCmteDems as altruism. You lost. It's not philanthropy.
In response to years of immense public pressure, @JNJNews finally stopped fighting tooth and nail to defend its monopoly on bedaquiline (an MDR-TB drug). Not even 5 months later they are advertising it before Congress @HELPCmteDems as altruism. You lost. It's not philanthropy. https://t.co/RVJZ6aXmsh
I am super grateful for our amazing community of young adult patients @genpatient. It is a real honor to ensure our voices are part of reforming the patent system to work better for patients.
I am super grateful for our amazing community of young adult patients @genpatient. It is a real honor to ensure our voices are part of reforming the patent system to work better for patients.
Today our @genpatient executive director @snehadave98 spoke alongside @SenPeterWelch and @SenAmyKlobuchar for a panel about patent thickets and the need for more timely access to biosimilar and generics.
Big Pharma abuses the love we have for one another to extract incredibly high prices through manipulative tactics. That's why I've introduced bipartisan legislation to make it easier for your neighbor, your family, you, to afford the medications you need.