TreatingCBS @TreatingCBS
Don Sladek has terminal Corticobasal Syndrome(CBS), & took Biogen's drug BIIB092 in a clinical trial. It was efficacious. After 10 months, he’s resumed BIIB092. treatingcbs.com Rosamond, CA Joined April 2020-
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TreatingCBS retweeted
Had a goodbye call with a patient on hospice today. You wouldn’t guess it, but these calls are filled with both tears and laughter. It reminds me what a gift it is to be invited so intimately into other peoples’ lives.
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@Michaeljos92972 Sending you lots of love 💕
For those that have followed Michael Whelan, he was hacked. Here is his new account.
MICHAEL UPDATE I WAS REMOVED FROM TWITTER. I STARTED A NEW SITE. IS ANYONE THERE.?
@mikejwhelan I’m so happy you got to renew your vows!
@IanPerryb8 @mikejwhelan Absolutely precious!
@mikejwhelan We are holding you in our hearts and prayers.💔
@mikejwhelan Sending you love and strength …there are no words.
@mikejwhelan Sending you both lots of love in this final journey.
@julesinthemoun1 @mikejwhelan Very informative! Thank you!
@mikejwhelan #7 I see you Michael and I hear you. We read your updates daily, bought 12 Bella books, and donate to your GoFundMe monthly. Thank you for sharing your journey!
@mikejwhelan I understand that with hospice diagnosis stops. However, with Rebecca’s mom having vascular dementia a diagnosis might be relevant for other family members. My husband has Corticobasal Syndrome CBS, one brother has Parkinson’s and another had Frontal Temporal Dementia (FTD).
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