Dr Sarah Carr @SchrebersSister
Independent researcher, ex-academic for hire. Specialising in social care and mental health research. Grounded in lived experience. sarahcarr.uk Between you, me & the gatepost Joined March 2009-
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Why do @NIHRresearch panels think that having a PhD and working in a University invalidate my lived experience? Why doesn't my 'involvement' count? Why am I considered 'professionalised'? I'm still in MH services. Do they understand what a Lived Experience Researcher is?
Our @MentalHealthPRU paper on the effectiveness, experience & implementation of #peersupport for mental health is out 🚨 Congrats team @soniajohnson @cityalan @kmachin @Phoebe_Barnett3 @Becky_L_J @SosoAllan et al @KingsHSPR @KingsIoPPN @NIHRresearch ⬇️ bmcmedicine.biomedcentral.com/articles/10.11…
Great @NHSEngland Digital Technologies conference today. Fab presentations from @SchrebersSister @gbrennancafc @AQuinnUnbroken @StopOxevision . Vital discussions questioning the ethics of current digital tech models in acute care - but WHY are we only addressing these issues now?
“Thus homosexuals are not a proper beneficial class and I regret that I cannot help you in this matter” #LGBTHM24
Given the number of tragic incidents being reported which describe the negative impacts on people receiving mental health services, this research project focused on avoidable harm across mental health social care is very powerful. @SchrebersSister @TinaColdham
@RITB_ @NHSEngland @NHS_Education @HEIW_NHS @NettleMary @AkikoMHart @Mad_In_America @BenRogersPsych @NHS_JohnClark @RaiWaddingham @RRowanOlive @nikiwebb62 @CompassionMH @AnneCooke14 @mickmckeown2016 @MMHPuk @NSUNnews @SchrebersSister @SocialPowerMH @SurvivorResNet @tamar_whyte Thank you @RITB_ direct link is redfame.com/journal/index.… Innovative study within i/p mh recovery units suggests patients found FE teacher-facilitated psychosoc. educ. was interesting, enjoyable, sociable, transformative, of decent qual. & for future benefit.
@IshamLJ @SchrebersSister and I have written a piece on how constrained choice can result in moral injury in health and social care - sciencedirect.com/science/articl… check it out @UoBSocialPolicy @IMH_UoB @PowerToPersuade
@SchrebersSister @IshamLJ and I have written a paper exploring how constrained choice can result in moral injury in health and social care. Check it out here: sciencedirect.com/science/articl… @IMH_UoB @UoBSocialPolicy
An insightful account of the recent #CVNI23 conference by Jill Anderson @AsylumMagUK @Mad_In_Ireland @MadStudies @IMSJournal @HSpandler @UCCAppSoc @KonstantinaPou1 @Mad_In_America @DrK3Church @TinaColdham @SchrebersSister @miseliz madzines.org/learning-from-…
Critical Perspectives conference in Cork - a unique mental health conference❤️ @AsylumMagUK @NSUNnews @SurvivorResNet @viscidula @HSpandler @PSYfem @DrRJChapman @mickmckeown2016 @TheTealTigerUK @Cris_Monteneg @TinaColdham @SchrebersSister @JillHemmington eventbrite.co.uk/e/15th-annual-…
Paper includes: inaccessibility of ethics panels; what happens when academic researchers and self-advocate researchers disagree - how does power work; problems with the "fund and forget" model of partnership working (drawing on @EidinNiShe ) Might you RT @NIHRinvolvement please?
Paper includes: inaccessibility of ethics panels; what happens when academic researchers and self-advocate researchers disagree - how does power work; problems with the "fund and forget" model of partnership working (drawing on @EidinNiShe ) Might you RT @NIHRinvolvement please?
Social/psychological harm in social care ‣ Poor relationships/communication ‣ Info, involvement, decision-making ‣ Lack of support ‣ Inflexible, bureaucratic systems ‣ Fragmented services & discontinuity ‣ ‘Power over’, discriminatory cultures nationalelfservice.net/?p=175617
Avoidable harm, such as unjustified discharge from social care services, appears to be a widespread experience across service users. Recent review by @SchrebersSister and colleagues. Important reading for anyone involved in mental health social care: nationalelfservice.net/?p=175617
Today @andieashdown summarises a scoping review led by Sarah Carr @SchrebersSister on service users’ experiences of social and psychological avoidable harm in mental health social care in England nationalelfservice.net/?p=175617 #AvoidableHarm #MentalHealth #SocialCare
New paper put together by @DrEppie_Rose with whole team trying to be truthful about how we worked together on our @NIHRSSCR funded research. Genuinely improved by great reviewer comments. @NIHRinvolvement researchinvolvement.biomedcentral.com/articles/10.11…
Big thanks to @andieashdown for a great @Mental_Elf blog on our avoidable harm in mental health social care scoping review paper 😊 @TinaColdham @Georgie_Hudson5
Big thanks to @andieashdown for a great @Mental_Elf blog on our avoidable harm in mental health social care scoping review paper 😊 @TinaColdham @Georgie_Hudson5
How do people experience avoidable harm in mental health social care? nationalelfservice.net/?p=175617 Hey @SocialCareElf - this is a good one for you! 👍🏽
@AsylumMagUK @NSUNnews @JamesScurryUK @DrRJChapman @mickmckeown2016 @BeckstaylorFish @PSYfem @HSpandler @BeresfordPeter @Cris_Monteneg @Shrink_at_Large @TinaColdham @SchrebersSister @JanineBooth @AlisonF101 @TheTealTigerUK @jacquiluvslife @dr_know @anna_rebowska @MorrissLisa
Told 'not to kiss' his partner as it wouldn't be 'a safe thing to do'. Ted's partner was abused in a care home because of his sexuality - as we reveal a report finding hundreds of cases of elderly people experiencing homophobic or transphobic attacks in care settings
CALL TO ACTION at #MadStudies tonight! #EndFundingAboutUsWithoutUs. We lead, 'allies' follow. Why do funders keep giving directly to non Lived-Experience led organisations? How do we change this? Come & be part of the conversation, change, plans, action. pinkskythinking.com/so/7fOcoGP8y?l…
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Hat #StopSIM #StopOxe.. @hatporter
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Irre auf dem Dachbode.. @KLandvermesser
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Stop Oxevision @StopOxevision
896 Followers 578 Following Campaign to stop Oxevision, body worn cameras and other camera surveillance systems being used to breach patient rights on UK psychiatric wards #StopOxevision
Katy @KPompilis8645
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Hamish Kidd @HamishKidd1
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212 Followers 1K Following Join Psychiatry Conference in Paris, France on October 12-14, 2023 Talks about #Psychiatry #MentalHealth #Psychotherapy #PsychologicalDisorder #Neuropsychology
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Recovery in the Bin #.. @RITB_
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Alan Simpson 💙 @cityalan
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The Power Threat Mean.. @PTMFramework
33K Followers 1K Following A conceptual alternative to psychiatric diagnosis.
Disability News Servi.. @johnpringdns
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The McPin Foundation @McPinFoundation
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Royal College of Psyc.. @rcpsych
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Dr Anne Cooke @AnneCooke14
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Bethan Edwards #StopO.. @ResearchPixie
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Paul Lodge @PaulLodge15
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the social work actio.. @swactionuk
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Solidarity is our onl.. @KonstantinaPou1
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sarah madoka currie /.. @kawaiilovesarah
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Vic @VicksterWilson
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ALIVE National Centre.. @AliveNational
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Donald O'Neal @ONealDonaldM
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CPMH 2023 | Amsterdam.. @psychiatryforum
855 Followers 4K Following 3rd International Conference on Clinical Psychiatry and Mental Health Email: [email protected]
iain boag @i_boag
440 Followers 2K Following Working where homelessness and registered care meet. Interested in Psychologically Informed Environments, Trauma-Informed Care and helping people be people.
Elspeth Mathie @elspeth_mathie
1K Followers 2K Following Reader in Health & Social Care Inclusion, University of Hertfordshire, ARC East of England, Patient and Public Involvement. Care home research & dementia.
Brett Smith @BrettSmithProf
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Professor Victoria J .. @VictoriaJPalmer
2K Followers 2K Following Prof Co-Design & Primary Care Mental Health. Ethics, narrative, recovery, experience co-design co-production Co-Director @AliveNational & Co-Design Living Labs
NIHR ARC East of Engl.. @ARC_EoE
4K Followers 2K Following We are the NIHR Applied Research Collaboration East of England, one of 15 @NIHRresearch ARCs supporting applied health and care research for local populations
Graham Davey @GrahamCLDavey
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Jim Thomas @Longhouseman
3K Followers 3K Following Social Care, Health, music, workforce innovation training. @skillsforcare @impadultcare Collecting Stories about people & social care 🇩🇰
Alke Haarsma-Wisselin.. @wisschrift
702 Followers 457 Following Cultural scientist (MA) | PhD psychosis, 'the good life' & collaboration @umcg | scifi faërie eco | Mad Studies | veelkoppiger Mastodon: @[email protected]
Anna Chiara Sicilia �.. @ClinPsySussex
1K Followers 1K Following Human with lived exp of #mentalhealth. Clinical Psychologist and Director at Psychology Brighton Ltd. Clinical Tutor @CCCUAppPsy. Views are my own.
@ruthbeecher.bsky.soc.. @deltacane
657 Followers 909 Following Find me @ruthbeecher.bsky.social NOT ACTIVE ON TWITTER - ANTI MUSK Historian at Birkbeck | Views my own
National Direct Payme.. @NationalDPforum
353 Followers 336 Following Independent professional network for people working in and around direct payments in social care and health. Bridging policy, research and practice.
Melissa Petrakis @MelPetrakis
1K Followers 2K Following Associate Professor. Senior Research Fellow. Interested in #mentalhealth services reform, redesign and coproduction. Views are my own.
Jane Fisher, MH Lectu.. @Jane_Fisher2
2K Followers 2K Following MH nurse, MH lecturer, MH patient. author of THE SUN WILL SHINE AGAIN, illustrated children’s story book exploring maternal mental health
Anna Pettican (she/he.. @AnnaPettican
2K Followers 2K Following Occupational Therapist | Participatory Researcher | Co-production | Health inequalities | Social justice | Physical in/activity | @Uni_of_Essex @UoE_OT
Simon Bottery @blimeysimon
7K Followers 2K Following #Socialcare guy at @TheKingsFund. Trustee @THEActionSpace. From Hull but a bit Italian. Own views.
Ems 🎭 🌶️ @hdninplainsight
287 Followers 711 Following Third year @edgehill counselling & psychotherapy PCE student | Trying to navigate my way through life + cPTSD | Survivor |🐶🐶| AuDHD 🌶️ | #actuallyautistic
Hayley Tyson-Adams @HTysonAdams
52 Followers 91 Following Psychological Therapist: CBT & EMDR. Supervisor. Interests: Complex depression, cPTSD, supervision, therapist wellbeing. NHS & Private Practice. All own views.
Monique Huysamen @monique_huy
1K Followers 3K Following Sexuality and sexual health researcher. South African. Interdisciplinary Critical Qual methods. she/her. Lead researcher on @autlives project
Ryan @ryancowley1989
1K Followers 2K Following Associate Director @wearelscft clin/care prof lead @lscicb practice based leadership fellow @NIHRSSCR social worker...it's alright ma, I'm only tweeting
George Peat @gpeat1
321 Followers 316 Following Lecturer @NorthumbriaUni. Social care. Palliative care. Disability studies.
Dr Eppie Leishman @DrEppie_Rose
507 Followers 584 Following Research Associate, interested in all things social care. Frequently distracted by knitting, the need for more pockets and my animals. She/Her
rebecca rees @lajollabeck
1K Followers 1K Following Teaching/researching: what, why, who & how of systematic reviews. Participation, social science for everyone's planet, dance & sing more... Views my own
Robbie 🦮🧑🏻�.. @RobbieCrow
1K Followers 293 Following Disability inclusion change-maker who champions Social Model of Disability values. Find me more @LinkedIn. RTs & likes ≠ endorsement; all views mine. He / Him
Tom Pollard @PollardTom
9K Followers 3K Following Head of Social Policy @NEF | Previous work on mental health, poverty & social security | NHS Mental Health Social Worker | Views expressed here my own
Dr Jas Sangha @JasSangha101
673 Followers 481 Following Associate Professor and Race Equality Lead at Anglia Ruskin University: @SW_ARU
BHA for Equality @the_BHA
2K Followers 2K Following We protect good health by promoting the well-being of marginalised communities through engagement, education, support services,professional advice and training.
Sainsbury Archive @sainsburyarch
18K Followers 544 Following The Sainsbury Archive documents the history of @Sainsburys from its foundation in Drury Lane in 1869 to now. Visit us @museumoflondon Docklands
Lilith Blair @LilithBlair7
15 Followers 125 Following
BritishMusicHallSoc @musichallsoc
3K Followers 1K Following Cherishing the jewels of the past and actively supporting the interests of the future. Registered charity no. 1128961.
🇬🇧📺 Classic .. @Classicbritcom
148K Followers 8K Following All things Classic British Television from 'Are you being served?' to 'Yes, Prime Minister' come join the fun!
Anne Lister 🪶 @AnneTimeline
3K Followers 193 Following Excerpts from the diaries and letters of Anne Lister and her circle of friends (held by @wyorksarchives). 🎨 by @bicapop
Happy 60th Birthday #Playschool the ultimate classic pre-school programme. This show means everything to me. Being one of the presenters was simply the best time of my life as I was able to spread unconditional love, joy and happiness to all my Playschool Babies from the heart❤️
Can we change Mental Health awareness days and stuff from ‘Let’s Talk’ to ‘Be With Me’
I can't quite put on my finger on why it's felt so uncomfortable to post this, but surprised and of course relieved that a few days ago @LeahJacobsPhD and I were awarded tenure & promotion to associate professor @PittSocialwork. Why uncomfortable...? 🧵 1/x
6. Too many women spend their life behind a mask (or masks) without realising, get misdiagnosed, develop unhealthy coping strategies and - at huge personal cost - somehow muddle through. And then menopause hits. You see…
Hi Darren! 😊
Another 'co-production' programme that excludes me and others perhaps - because of that NIHR/NHSE ceiling of £150. I can't afford to take work at that low rate. (and no you don't multiply that rate by 365 to get a FT salary. Two-thirds of my days are downtime, looking for work)
This once-useful, now outdated payment approach impacts significantly on equity and access to opportunities. .@NIHRresearch @JeremyTaylorNB @NHSEngland
Another 'co-production' programme that excludes me and others perhaps - because of that NIHR/NHSE ceiling of £150. I can't afford to take work at that low rate. (and no you don't multiply that rate by 365 to get a FT salary. Two-thirds of my days are downtime, looking for work)
So delighted with this award from my peers but need to mention that research is a team event - I want also to mention those more junior researchers and people with #LivedExperience without them my research would have less of an #Impact Tx @SIRSGlobal @KingsIoPPN @Kingspsychol
The Schizophrenia International Research Society @SIRSGlobal has announced Prof Dame @TilWykes as winner of the Lifetime Achievement Award & Prof Tom Craig as winner of the President's Award! Discover their impact on the field of #Schizophrenia research👇 kcl.ac.uk/news/professor…
World Social Work Day: lived experience informs the very best social work socialworkwithadults.blog.gov.uk/2024/03/19/wor… It's #WSWD2024 - National #socialworkweek . I'm delighted to share this great blog for @DHSCgovuk from @IndepEmployASC, social care consultant/expert voice of lived experience.
I'm very grateful that @NIHRresearch have got in touch to ask for further information & that my email arguing for the recognition of Lived Experience Researchers has been forwarded onto senior figures across the NIHR for consideration.
Why do @NIHRresearch panels think that having a PhD and working in a University invalidate my lived experience? Why doesn't my 'involvement' count? Why am I considered 'professionalised'? I'm still in MH services. Do they understand what a Lived Experience Researcher is?
My CMHT have agreed to providing 6mths of clinical psychology! Can finally process psychosis-related & iatrogenic #trauma. I'm grateful to staff counselling service & visiting psychiatrist at Manchester Uni who listened to my needs & advocated for me, which made this happen!
Why do @NIHRresearch panels think that having a PhD and working in a University invalidate my lived experience? Why doesn't my 'involvement' count? Why am I considered 'professionalised'? I'm still in MH services. Do they understand what a Lived Experience Researcher is?
Jan Pienkowski's gorgeous pop-up book HAUNTED HOUSE (1979), a hardy perennial for every school library. Six haunted rooms, six beautiful feats of macabre paper engineering, courtesy Tor Lokvig. Every home should have one.
Our @MentalHealthPRU paper on the effectiveness, experience & implementation of #peersupport for mental health is out 🚨 Congrats team @soniajohnson @cityalan @kmachin @Phoebe_Barnett3 @Becky_L_J @SosoAllan et al @KingsHSPR @KingsIoPPN @NIHRresearch ⬇️ bmcmedicine.biomedcentral.com/articles/10.11…
1. The latest paper I’ve co-authored with @MentalHealthPRU. The problem we have with reviewing literature is that results of past research which often not exploring areas of concern identified by Peer Workers, designed, done & written with #LXP researchers is regurgitated >
Our @MentalHealthPRU paper on the effectiveness, experience & implementation of #peersupport for mental health is out 🚨 Congrats team @soniajohnson @cityalan @kmachin @Phoebe_Barnett3 @Becky_L_J @SosoAllan et al @KingsHSPR @KingsIoPPN @NIHRresearch ⬇️ bmcmedicine.biomedcentral.com/articles/10.11…
Good morning. Today is the official publication day for my book troubador.co.uk/bookshop/self-… My contribution to supporting women in academia to navigate the gender asymmetry that exists. #academia #positivepsychology #gender #equity #IWD2024
The uni regs basically told me that anyone can be PI / study lead if the funders permit it and that the unuversity could be held liable for discrimination on the basis of a fixed term employment contract. So with this knowledge I was able to argue my case 8/
Today we are at @NHSEngland Digital Technologies conference. We are presenting, based on our lived experience and extensive FOIs / research, why surveillance technology is not compatible with basic patient rights or safe care #StopOxevision change.org/p/stop-the-rol…
Great @NHSEngland Digital Technologies conference today. Fab presentations from @SchrebersSister @gbrennancafc @AQuinnUnbroken @StopOxevision . Vital discussions questioning the ethics of current digital tech models in acute care - but WHY are we only addressing these issues now?
@SchrebersSister This account of the passing of the 1967 Act might be of interest, too : parliament.uk/about/living-h…
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