HSconnect.org - HS Connect @HSConnectOrg
We are a nonprofit 501(c)(3) Hidradenitis Suppurativa Org. Learn More-About Us: https://t.co/acMiSQK2kj Our https://t.co/VS9wqk2rjq: https://t.co/Vs7RFuVeUM hsconnect.org Joined July 2019-
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HS Patient advocacy starts with the facts. For so long there has been a plethora of misinformation bombarding our community, its time we set the record straight. Check out our myths vs. facts guide to help you better advocate for yourself & the HS community! #HSConnectorg
When it comes to living with HS I wish they knew how real the pain is. That the isolation can sometimes be a silent cry for help and the constant blows to our confidence can take years of repair. #HSConnect #HSAwarenessWeek #HidradenitisSuppurativa
Hidradenitis Suppurativa is hard to say, but even harder to live with! In simple terms, HS is a chronic systemic inflammatory condition that impacts the whole body, but presents itself on the skin. More info available with the link below! hsconnect.org/what-is-hs/
Whether you’re walking, mingling or showing support, every step helps bring awareness to Hidradenitis Suppurativa. Dont forget to register for the HS 5k Walk move & mingle with the link below. runsignup.com/Race/MI/Shelby… #HSConnect #HS5k #HSAwarenessWeek
Happy HS awareness week warriors, as alot of information comes out this week I want you to remember HS is not rare, its rarely talked about™ & as always, HS is not your fault! #HSConnectorg #HSawarenessweek #LivingWithHS #HSisnotrare
When managing anxiety, especially while living with HS, something as simple as a deep breath can help ground your body & mind. Breath work activates your nervous system’s “calm” response, helping slow your heart rate, ease tension, and reduce feelings of overwhelm. #anxiety
HS warriors, you’re invited 💜 Join us for the Be Seen Brunch in New York on August 22nd — a space for connection, community, and support. Free to attend, but RSVP is required as spots are limited. #HidradenitisSuppurativa #HSWarrior #BeSeenBrunch #HSConnect
FAQ: Is HS contagious or an STD? No. HS is NOT contagious & NOT a sexually transmitted disease. It’s a chronic inflammatory condition that impacts the whole entire body & presents itself on the skin anywhere there is a hair follicle yet predominantly in intimate areas.
Stress doesn’t just affect your mood.. It can impact your body too, especially with Hidradenitis Suppurativa. When you’re stressed, your body releases hormones like cortisol that can disrupt the immune system & increase inflammation, making flare-ups more likely or more intense.
Support groups and why they matter- Our support groups can make a powerful difference when living with Hidradenitis Suppurativa. For more information on the support groups available please use the link below hsconnect.org/supportgroups/ #HSconnectorg #HSsupport #LivingWithHS
Lately I’ve been trying to slow down & notice the little things. A gentle reminder that caring for your mental health doesn’t always have to look big or complicated. Sometimes it’s just sunlight, fresh air, & finding small moments of peace where you can. #HSConnect #MentalHealth
Hidradenitis Suppurativa doesn’t slow down purpose, it just changes the pace. From meetings to advocacy work to managing real-life symptoms in between, this is your reminder that leadership can look like resilience, rest, and showing up as you are. #HSconnectorg #LivingWithHS
Feeling confident in your outfit with Hidradenitis Suppurativa isn’t about hiding, it’s about comfort, choice, and showing up as you are. Wear what feels good on your skin, move how you want, and remember: confidence isn’t about looking perfect, it’s about feeling like yourself.
Clinical trials are essential for improving care for Hidradenitis Suppurativa. They help researchers better understand the disease, develop new treatments, and bring safer, more effective options to the HS community. For more information use link below! hsconnect.org/clinical-trial…
We’re just 2 weeks away from the HS 5K Walk: Move & Mingle in Detroit! 💜 Join us as we come together to raise awareness for Hidradenitis Suppurativa, connect with community, and move at your own pace! runsignup.com/Race/MI/Shelby… #HSevents #HS5k #HSConnectorg #LivingWithHS
We’re heading to Washington, D.C. to advocate for the HS community: ending harmful step therapy, protecting patients from copay accumulator programs, and increasing NIH research funding. Access to care matters. #HillDay #HidradenitisSuppurativa
Struggles with food & body image can happen when living with HS, especially with all the talk about “trigger foods” & the constant weight debate. You’re not alone. We see you, we get you, we got you. For more information use the link below hsconnect.org/disordered-eat…
Flare care will always be a form of self care for us HS Warriors! What is your favorite flare care or skincare item? Drop your go-to tools below and help someone else feel a little less alone. #HidradenitisSuppurativa #LivingWithHS #HSconnectorg
Telling someone you love that you have Hidradenitis Suppurativa can feel overwhelming but it doesn’t have to be perfect. The right people won’t just hear you, they’ll try to understand. 💜 #HSconnect #LivingWithHS #HidradenitisSuppurativa #MentalHealth
Living with Hidradenitis Suppurativa means caring for more than just your skin. Therapies like counseling, support groups, pain management, and stress-reduction practices can help you cope with flare-ups, emotions, and daily challenges. #Therapy #LivingWithHS #HSconnectorg
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