Bleeding Yorkshire @BleedYorkshire
The Yorkshire chapter of The Haemophilia Society. Supporting all those with bleeding disorders in the Yorkshrie region. Joined March 2021-
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Book your place at Haemfest 2022 today! Try jedi-fighting, circus skills, Tai Chi and so much more at Haemfest 2022 which brings together people with a bleeding disorder for a fun, free camping weekend with a festival atmosphere from 24 to 26 June. ow.ly/94xy50HGi55
If you are thinking of going aboard it is essential that you take out appropriate travel insurance for pre-existing conditions. Our travel insurance factsheet is filled with essential advice about how to ensure your trip is hassle-free. ow.ly/6IzZ50HGniE
“Finally, at 38, and after my son was diagnosed, I was confirmed as being a haemophilia carrier and having mild haemophilia myself. We had no idea that in the family we carry these genes, it’s out of the blue.” Talking Red Live, Sat 5 March, York tinyurl.com/4zprj9u4
Inspired by @bleedingyorkshire, we’ll be virtually racing the 25,000km around the world in the lead-up to World Haemophilia Day. Join a team and join us as we unite our community to raise awareness and funds. Find out more: ow.ly/hpql50H72Qu
From everyone at the Haemophilia Society, we wish everyone celebrating a very happy Christmas!
Will you join our Christmas carol service this year? We have a limited number of tickets available for those of you who've missed seeing other members of our community. ow.ly/CWP850GYkCH #Haemophilia #Christmas #ChristmasCarol #cheer #community
We are raising money to develop essential resources that will empower our community to take control of their mental wellbeing and live their lives to the fullest. Check out the link for more: ow.ly/TfMm50GNYQk
Do your heavy periods get in the way of exercising? Do you often have to skip the gym or that yoga class, because of your bleed? If your heavy period is stopping you from doing the activities you love, know that medical support is available! #talkingred #periods #womenshealth
@HaemoSocUK AGM & bleeding disorders forum tomorrow 🧐 👀 out for some excellent talks #Empower #Educate #Advocate 👏🏽🙌🏽 Sounds a LOT like #haemophiliaphysio 🤩👍🏽#MoreThanAScore @HCPA11 @CSPLondon @physio_paul @EAHADnews @BleedYorkshire @Clive_Smith_ @EHC_Haemophilia
Trustee elections: this is your opportunity to vote for the trustees you believe will best represent your interests. Voting closes at 5pm on Friday 19 November 2021, so don’t delay - vote now! ow.ly/ASHQ50GNA0s
Please help us to raise awareness of undiagnosed bleeding disorders, by retweeting! Get to know the symptoms of a bleeding disorder, and find the confidence to ask for medical support, through our online Symptom Checker: bit.ly/talkingredsymp… #talkingred #periods
35,000 women in the UK today live with an undiagnosed bleeding disorder. That’s why we’re #talkingred #periods #bleedingdisorders #womenshealth
Dowsett is using his record attempt to publicise 'how haemophilia should not be a barrier to anyone.' Great article in The Guardian about tomorrow's record attempt by @alexdowsett ow.ly/VIz750GEwf6 Good luck Alex, we are all behind you! 🍀🍀🍀 #bleedingdisorders
Well done to everyone who took part in the Big Red Bridge Walk in London today to raise money for @HaemoSocUK - especially Buddy and his helpers. #makeadifference #bleedingdisorders #bridgewalk
A huge THANK YOU to everyone who’s joined our Bridge Walk London today, especially to Buddy who attracted a lot of attention and raised awareness of bleeding disorders. We said it before and we’ll say it again: we have the best supporters ❤️💪🏻👏🏻
Name a better couple
Hearings have now started today and we resume our series of presentations by Counsel to the Inquiry relating to pharmaceutical companies involved in blood products. This morning the focus of evidence continues on Travenol. Watch live from 10:00: youtube.com/c/InfectedBloo…
Have you struggled to get life or travel insurance because you have been diagnosed with a bleeding disorder? We would love to hear about your experiences for a project we are working on. Please comment below and one of the team will contact you for a chat.
It may seem like Christmas is some way off, but our 2021 Christmas card selection launches tomorrow! Choose from one of our twelve beautiful designs to send to your friends and family this year, while supporting our work across the UK. ow.ly/9squ50GfUSA 🎄🎁
Joanne Coy @JoanneCoy5
0 Followers 74 Following
Graham Manning ❤️.. @GraymF1
2K Followers 5K Following Campaigner for justice for infected Haemophiliacs of the contaminated blood disaster core participant of the infected blood inquiry: Victory for Ukraine ✌🏻🇺🇦
HCD Economics @HCDEconomics
180 Followers 316 Following Health economics experts. Part of the Prime Global group
hjb @hjb1111
10 Followers 63 Following
Trupti Bhandari @BhandariTrupti
42 Followers 76 Following
Annette Bowyer @DrNetBow
111 Followers 153 Following Excited by new projects, new books and new travels. Does not like gravy. adopted Yorkshirer PhD.
Radoslaw Kaczmarek @RKaczmarekDr
2K Followers 5K Following Researcher | #immunology | #gene therapy | #hemophilia | #glycobiology | IU School of Medicine/Hirszfeld Institute
Sejojo Phaaroe @707c53873ae6498
24 Followers 566 Following Grand Father of Cytology , Cancer Diagnostics , cell markers, digital Cytology , designer of Modalities of recall followup system , BI specialist and a Coach.
Kate Starkey @KateStarkey
9 Followers 64 Following
charlene guirdham @CGuirdham
27 Followers 160 Following Wife, Mother, Nurse 🤩 Trainee Advanced Clinical Practitioner. Member of NHS England Workstream3 (Hospitals) Clinical Advisory Group. #NHS #HOOH #STH #SHU
Adele Bridge @AdeleBridge2
31 Followers 1K Following Proud Mum to Hannah and Jack and Granny to Alice and my fur baby Bracken
Sajid Ds wala @SajidQureshiDs
33 Followers 796 Following Virtual Assistant | Product Sourcing | Amazon Seller | Amazon FBM & FBA Expert| LTD & LLC FORMATION
Aggie Mavis Kisakye, .. @mavis_agnes
179 Followers 395 Following Executive Secretary Haemophilia Foundation of Uganda
ZanderM @ZanderMasser
35 Followers 159 Following Occupational Therapist. Public Speaker. Creator/Author of Unburying My Father. More active on Instagram at zandermasser
Ben Evans @justanotherben
183 Followers 110 Following Lead Family Solicitor @coopuklegal. Daddy to two little humans. Husband/car loader/bin man to another. Views my own. #cymraeg 🏴🏉⚽️
Clare Preston @ClarePr80108319
3 Followers 99 Following
Journal of Haemophili.. @haemjournal
707 Followers 209 Following An open-access journal for sharing experience in the care of people with bleeding disorders. Enquiries: [email protected]
FAHEEM MOHMAND @FaheemMohmand3
276 Followers 3K Following WORKING AS VICE PRESIDENT OF HAEMOPHILIA FOUNDATION PAKISTAN. PHILANTHROPIST
🌻 Just Me 🌻 @its_only_me28
278 Followers 898 Following Safeguarding Social Worker 💛 Passionate about children’s rights, all things adoption, safeguarding & children in care. + Haemophilia & #SUP 🙂
notorious asb @alexsb1987
75 Followers 501 Following
Stuart Smith @stuart5smith
533 Followers 2K Following I have a beautiful daughter called Lauren and son called Joshua. Half Ironman x3, Level 3 Football Referee, GLFC football coach, love sport! Also a twin...!
N B-H @A10ELH
99 Followers 422 Following Liverpool FC, Rare Diseases/Medicine/Medical Education/Sales/Marketing, Horses/Poultry, Veggie…
Sonia O'Hara @SoniaOHara13
108 Followers 167 Following A mum of two darlings, who has a great passion for rare disease research, patient empowerment and engagement. Haemophilia trustee, and gymnastics coach.
Syed Shabistan @shabistsn
78 Followers 292 Following #Hemophilia #Education #Volunteering Founder/President @hemophiliaPeshawar. Education Officer @KP, Pakistan
HEMOSTASIS CONNECT @HemeConnect
1K Followers 806 Following COR2ED bringing you Independent Medical Education developed by HEMOSTASIS CONNECT, international experts in bleeding disorders
Claire Foreman @_ClaireForeman
72 Followers 255 Following Ex Head of English, now just muddling through life with my fabulous three. Oh, and @fustes
Stephen Morris @smorris843
983 Followers 1K Following @lufc season ticket holder n8 love running🏃♂️ and the gym💪
Serok Devrim @SerokDevrim
202 Followers 1K Following HU BSc. in Chemistry ⌬ 📍#TEDxHacettepeUniversity Organizer 📍The Hemophilia Society of Turkey Alternate Board Member
Parimal Debnath @debnathpc
2K Followers 2K Following A simple easy going deshi boy. A #bleeder and a #solo #traveler with #disability. Vice President at #Hemophilia Society of #Bangladesh. Always love to smile!
Angela Westoby @AngelaWestoby
1 Followers 2 Following
Leeds Children's Hosp.. @Leeds_Childrens
6K Followers 904 Following Leading the way in healthcare for children, young people and their families. Proud to be part of @LeedsHospitals. Supported by @LdsHospCharity
haemnet @haemnet
1K Followers 362 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Tina Biss/Diddee @TinaB_73
195 Followers 171 Following Haematologist 🩸slow but determined triathlete 🏊🏻♀️🚴🏻♀️🏃🏻♀️and busy mother of 3
Dan Farthing @dan_farthing
315 Followers 592 Following Former @HaemophiliaScot CEO. Hat tip to @edinsketcher for my background illustration. He/Him
Rachel Mahoney @RachelMahoney20
21 Followers 57 Following
Nina Cecconi @PhysioAnin
30 Followers 160 Following 3rd year Physio Student LBU. CSP Bame & LGBTQIA member. Lover of Hiking ⛰️/ 🏋🏽♀️and Netball 🤾🏽♀️. All views are my own 🏳️🌈🇮🇹🇬🇲🇬🇧
rob @wkrslunchtime
834 Followers 2K Following
Rid Ben @Ridbenn
30 Followers 631 Following
Rhona Maclean @MacleanRhona
114 Followers 381 Following NHS Haemostasis and Thrombosis Consultant. Views are my own.
Martin Threadgold @FredgoldMartin
7K Followers 5K Following Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life 🐻❄️
Dan Hart @a9dph
1K Followers 1K Following haematologist, immunologist, honorary senior lecturer Genomics & Child Health, QMUL. Industry early development Clinical Science Lead. views my own
Rachel Snodgrass @DrRachelas
486 Followers 981 Following Clinical Psychologist 🧠 @NUTHPsychology @NewcastleHosps | FND & Adult long-term conditions | #T1D 💉 🏴
Nakalyango Annette Gr.. @GraceNakalyango
182 Followers 255 Following A passionate Physiotherapist,educator and football lover. So dedicated to serving the haemophilia patients.
Jess Page @jeszicama
312 Followers 384 Following Youth ambassador for the UK Haemophilia Society and teacher of small children.
Liz Carroll 💙 @LizCCarroll
898 Followers 951 Following Former charity CEO and cancer nurse, with a passion for people and campervans!
Emelie Moris @Emeliemoris
394 Followers 1K Following A Father and Husband; Pelvic and Mental Health Physiotherapist, Researcher
Candlelighters Trust @CandlelightersT
7K Followers 2K Following Supporting families affected by childhood cancer across Yorkshire and investing in childhood cancer research 🎗️
Musrat Pinnu @musrat_pinnu
7 Followers 30 Following
LTHT Adult Therapies .. @LTHTTherapyCSU
762 Followers 553 Following Welcome to Adult Therapies CSU twitter page - Physio, OT, Dietetics, Speech&Language, Podiatry, Psychology, Chaplaincy, Prosthetics, Orthotics and Wheelchairs
CoalitionHemoB @CoalitionHemoB
1K Followers 739 Following Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B.
Leeds Children's Hosp.. @LTHTPaedPhysio
676 Followers 334 Following Twitter account of the Leeds Children's Hospital Physiotherapy department. All Tweets are published with permission of Staff, patients and families.
Airedale practice edu.. @AGH_Practiceed
64 Followers 14 Following Account for the practice education team at Airedale foundation hospital. Looking after students/preceptors across Nursing/midwifery/neonates/AH professions.
ilovehazel @hazel_cordial
153 Followers 202 Following Haemophilia Nurse Specialist. Travel enthusiast.
Sonia O'Hara @SoniaOHara13
109 Followers 167 Following A mum of two darlings, who has a great passion for rare disease research, patient empowerment and engagement. Haemophilia trustee, and gymnastics coach.
Charlotte O’B @Charl_ob1
17 Followers 19 Following 27, Haemo nurse and crazy cat Mum living in Leeds! 😻
Lou Sayers @SayersLou
178 Followers 186 Following
Tina Biss/Diddee @TinaB_73
195 Followers 171 Following Haematologist 🩸slow but determined triathlete 🏊🏻♀️🚴🏻♀️🏃🏻♀️and busy mother of 3
National Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
Leeds Children's Hosp.. @Leeds_Childrens
6K Followers 904 Following Leading the way in healthcare for children, young people and their families. Proud to be part of @LeedsHospitals. Supported by @LdsHospCharity
Nina Cecconi @PhysioAnin
30 Followers 160 Following 3rd year Physio Student LBU. CSP Bame & LGBTQIA member. Lover of Hiking ⛰️/ 🏋🏽♀️and Netball 🤾🏽♀️. All views are my own 🏳️🌈🇮🇹🇬🇲🇬🇧
Rachel Mahoney @RachelMahoney20
21 Followers 57 Following
Martin Threadgold @FredgoldMartin
7K Followers 5K Following Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life 🐻❄️
Rachel Snodgrass @DrRachelas
486 Followers 981 Following Clinical Psychologist 🧠 @NUTHPsychology @NewcastleHosps | FND & Adult long-term conditions | #T1D 💉 🏴
helen wilkinson @Helen_Wilk1234
179 Followers 177 Following Children's Physiotherapist and manager of a team of fantastic children's physios, Occupational Therapists and Therapy assistants at BTHFT. Own views.
Susan Guy @sjguy78
20 Followers 148 Following
Sean Cavens @seancavens
709 Followers 2K Following ill educated & a burden on society, described as ‘useful material’ as a Haemophiliac #InfectedBloodInquiry @bloodinquiry Re-energised @NUFC fan
Contaminated Blood @CBCBlooduk
277 Followers 196 Following We are campaigning for justice for the victims and their families of the contaminated blood disaster
Infected Blood Inquir.. @bloodinquiry
3K Followers 224 Following The Inquiry examines the circumstances in which patients treated by the NHS received infected blood & blood products, in particular since 1970.
Factor 8 @Factor8Campaign
3K Followers 883 Following The UK’s leading #ContaminatedBlood scandal campaign organisation. Infected Blood Inquiry Core Participant.
Lyndsey T @DrLyndseyT
371 Followers 517 Following Paediatric doctor, NI. ADEPT Leadership Fellow ‘16-17. Interests include: patient/carer & staff support, teaching, QI & Schwartz rounds.
Luke Pembroke @ljpembroke
1K Followers 877 Following Assistant Ecologist 🦇 | Hemophilia & rare disease advocate 🧬 | Wildlife photographer 📸
James Hunt @jameshuntuk
608 Followers 366 Following Worked in theatre a lot now a charity CEO. Advocate for Rare Disease support - NonExec Dir @birdcollegeuk - Trustee @bexleyscouts - All views my own except RTs
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Mark Antony Ward @Haemosexual
2K Followers 5K Following Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood 🩸
HFA @Haemophilia_Au
878 Followers 242 Following Haemophilia Foundation Australia (HFA) represents the Australian bleeding disorders community.
Rob Yeldham (he/him) @RobYeldham
11K Followers 11K Following Transforming lives as director @theCSP. FCIPR. My views mainly on health, rehab, work, comms and environment. shares/likes not endorsements.
Claire Forde @ClaireForde9
62 Followers 98 Following Occupational Therapist, Haemophilia Comprehensive Care Centre, Belfast
Dan Farthing @dan_farthing
315 Followers 592 Following Former @HaemophiliaScot CEO. Hat tip to @edinsketcher for my background illustration. He/Him
Annette Bowyer @DrNetBow
111 Followers 153 Following Excited by new projects, new books and new travels. Does not like gravy. adopted Yorkshirer PhD.
Ethan @EthanOn21
230 Followers 241 Following
Jessica Bomford @jessbomford
164 Followers 280 Following Comms specialist, author, enthusiastic photographer and south London loyalist.
The Haemophilia Socie.. @HaemoSocUK_PI
2K Followers 476 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
HaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
Steph Taylor @TaylorSxtx2
66 Followers 64 Following
NicsHubert @NicsHubert
243 Followers 343 Following Loves all things adventurous, active & outdoors. Always up for the next challenge. Fits in working as a paediatric physio too.
Sheila Roche @sheilsroc
242 Followers 236 Following Clinical Specialist Physiotherapist specialised in Haemophilia.
HemoWeb @HemoWeb
1K Followers 557 Following To improve the lives and well-being of the #BleedingDisorders community. #Hemophilia #Hemo #VonWillebrandDisease #VWD #BleedingDisordersAwarenessMonth #Bleeder
NHS @NHSuk
603K Followers 5K Following We're here to help you and your loved ones stay happy and healthy. We're the NHS. Twitter monitored weekdays 9am - 5:30pm
Liz Carroll 💙 @LizCCarroll
898 Followers 951 Following Former charity CEO and cancer nurse, with a passion for people and campervans!
lesley bottomley 🌈 @Lesley_Jane64
507 Followers 2K Following Harrogate based lover of all things tasty, tuneful, funny and visually pleasing
Tainted Blood @CampaignTB
2K Followers 906 Following Advocates for Haemophiliacs infected with HIV and Hepatitis from #ContaminatedBlood products. Join our fight. https://t.co/5ULuBCuP1o
Pamela Narayan @PamelaNarayan5
11 Followers 27 Following
Rhona Maclean @MacleanRhona
114 Followers 381 Following NHS Haemostasis and Thrombosis Consultant. Views are my own.
Another day in paradise. Yorkshire looking absolutely stunning today. Perfect for a run on the Chevin. #YORKSHIRE #OtleyChevin
Book your place at Haemfest 2022 today! Try jedi-fighting, circus skills, Tai Chi and so much more at Haemfest 2022 which brings together people with a bleeding disorder for a fun, free camping weekend with a festival atmosphere from 24 to 26 June. ow.ly/94xy50HGi55
If you are thinking of going aboard it is essential that you take out appropriate travel insurance for pre-existing conditions. Our travel insurance factsheet is filled with essential advice about how to ensure your trip is hassle-free. ow.ly/6IzZ50HGniE
“Finally, at 38, and after my son was diagnosed, I was confirmed as being a haemophilia carrier and having mild haemophilia myself. We had no idea that in the family we carry these genes, it’s out of the blue.” Talking Red Live, Sat 5 March, York tinyurl.com/4zprj9u4
This New Year, get familiar with NHF's various community programs.hemophilia.org/who-we-are/our…
Inspired by @bleedingyorkshire, we’ll be virtually racing the 25,000km around the world in the lead-up to World Haemophilia Day. Join a team and join us as we unite our community to raise awareness and funds. Find out more: ow.ly/hpql50H72Qu
Thanks to everyone who has made this year so special ❤️
Wishing everyone a safe, peaceful Christmas and Holiday season I hope 2022 will bring us back together to love, laugh and enjoy life again 🏳️🌈🎄♥️🎄🏳️⚧️ #Christmas #Christmas2021
Wishing all our families, friends, volunteers and supporters, a Merry Christmas from all at Candlelighters! Take care and stay safe 💖
Merry Christmas to all our patients, families, colleagues and supporters! Here's patient Oscar and nurse Emily when they met Father Christmas, Mrs Claus and all their helpers at @Leeds_Childrens earlier this week. @LeedsHospitals @LDShospcharity
From everyone at the Haemophilia Society, we wish everyone celebrating a very happy Christmas!
Will you join our Christmas carol service this year? We have a limited number of tickets available for those of you who've missed seeing other members of our community. ow.ly/CWP850GYkCH #Haemophilia #Christmas #ChristmasCarol #cheer #community
We are raising money to develop essential resources that will empower our community to take control of their mental wellbeing and live their lives to the fullest. Check out the link for more: ow.ly/TfMm50GNYQk
The children’s therapy department is looking FANTASTIC thanks to our amazing Paed’s Admin team! The festive season truly has arrived 🎄✨ @LTHTPaedPhysio @Leeds_Childrens #OccupationalTherapy
Speaking out to promote #talkingred, our campaign to raise awareness among women and medical professionals about women’s bleeding disorders, Vicky, 49, said her heavy periods left her feeling exhausted and weak. Read Vicky’s diagnosis story: bit.ly/vickysdiagnosi… #periods
“My first thoughts were for my little boy when we were given his haemophilia diagnosis, but when I was tested too, many symptoms that I’ve been dealing with all my life made sense”, says Claire. Know the symptoms ow.ly/hi5150GPVav Join us on FB tinyurl.com/4ck356am
Do your heavy periods get in the way of exercising? Do you often have to skip the gym or that yoga class, because of your bleed? If your heavy period is stopping you from doing the activities you love, know that medical support is available! #talkingred #periods #womenshealth
@HaemoSocUK AGM & bleeding disorders forum tomorrow 🧐 👀 out for some excellent talks #Empower #Educate #Advocate 👏🏽🙌🏽 Sounds a LOT like #haemophiliaphysio 🤩👍🏽#MoreThanAScore @HCPA11 @CSPLondon @physio_paul @EAHADnews @BleedYorkshire @Clive_Smith_ @EHC_Haemophilia
Trustee elections: this is your opportunity to vote for the trustees you believe will best represent your interests. Voting closes at 5pm on Friday 19 November 2021, so don’t delay - vote now! ow.ly/ASHQ50GNA0s
Congratulations to our very own @HCPA11 member @paula_loughnane and Merel Timmer on joining the #physiotherapists committee of @EAHADnews. Promoting the role of physiotherapy in #haemophilia and #allieddisorders ✨👋🙌✨
A very warm welcome to our two new #physiotherapy committee members, Merel Timmer from 🇳🇱 and @paula_loughnane from 🇮🇪! We are so happy to have you on board. Learn more about Merel and Paula⤵️ eahad.org/physiotherapis…
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